20190327_xtra by The Times-Herald

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calendar of events 48 08 e $ e Idaho 5 lb. Bag frlb. Potatoes inside 08 #1 $ 48ea. 5 lb. Bag➤ #1

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BY SARAH FAY CAMPBELL

“I’ve seen her crawl Georgia’s first year was hard. But things have got- before out of a nger – ten easier. “Once we got almost every milestone past the first year, I was she’s ever hit was out of like – I don’t want any anger,” Minor said. “She is other person to have to feel so mean and has so much as awful as I did this first personality. She’s like a Sour Patch kid,” she said. year,” Minor said. “Georgia is very aware Now, “It’s almost strange how normal it is, the way that she can’t walk or crawl that makes Bistecordedoresstuff. frescoAnd machacado our lives are. It freaks me her angry. Some kids are out sometimes,” she said. paquete de cualquier tamaño “We used to go to therapies fine with lying on the floor all day. is not. three times a week." Bistec de res Georgia fresco machacado Though she’s still small, Georgia wants to do stuff." de cualquier tamaño Minor said one of GeorGeorgia is doing very wellpaquete for a 2-year-old with Tri- gia’s therapists said she doesn’t normally take kids somy 18. She can sit and stand that young, but she likes with help, and tries to Georgia’s personality. Combo“She Pack says, ‘Whatever I crawl. She loves playing with toys and watch- tell her to do, she does the U.S.D.A. opposite,’” Minor ing “Mickey Mou s e exactSelect said. Clubhouse." Minor says Georgia’s The Hot Dog Song is her favorite, and as it plays, progress is thanks to a lot of therapy. There is speech she’ll say “dog dog dog.” She’s learned to sign therapy, physical therapy, s ome word s , s uc h a s vision therapy, aquatic “milk” and her favorite – therapy. She goes to a cardiologist, an audiologist, a “all done." “She’ll be at therapy and nephrologist for her kidwhatever she is all done neys, a sleep doctor. She with, she taps. She’ll tap was recently released from gastrointestinal the therapist – I’mU.S.D.A. all done the selecto paleta doctor. When Minor found out with you,” Minor said. de res sin hueso And she can say six about an intensive physiU.S.D.A. selecto paleta that could help words: Dada, dog, duck, go, cal therapy de res sin hueso learn to crawl Georgia get and good. and walk, her insurance But not Mama. Not yet. Minor said Georgia has wouldn’t pay for it. The Facebook group Chatty “a lot of sass.” A nd she thin ks that Newnan Women raised strong will and attitude are the money so Georgia a big reason why Georgia could get the therapy. Children with Trisomy has accomplished so much.

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sarah@newnan.com

Three weeks after the birth of her daughter, Kimberly Minor was told that her infant had Trisomy 18. The woman at her pediatrician’s office told her – over to phone – to “Google it." What she found was something very scary. That her daughter was “incompatible with life.” Georgia Minor recently celebrated her second birthday. Minor takes advocacy very seriously. March, the third month, is the month for awareness of trisomy disorders, and March 18 is National Trisomy 18 Awareness Day. For a while, one of the first results on Google for Trisomy 18 was a story about Georgia i n T he Newnan Times-Herald, written when she was just a few months old. “That ’s what I want people so see when they google it,” Minor said. “That’s one of the reasons why we fight to make sure we get Georgia’s story out there,” she said. “If I had Googled it and I had seen a kid like Georgia, I would have probably had a hell of a lot more hope than I did in the beginning,” Minor said. “That is what should pop up versus scary stories."

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Georgia Minor can now stand with support, and tries to crawl.

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18 often have heart problems, and Georgia is no exception. She was born with three heart defects. But one has healed completely, Minor said, and another is “starting to close up on its own.” And that’s with no surgeries. Minor said she and and her husband, Patrick, have often had to fight for their daughter’s treatment. Because so many children w it h Trisomy 18 don’t live more than a few months – or weeks – babies are often sent home on “comfort care,” Minor said. “Parents will carry the baby to term and then not have any medical interven-

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have no clue what the Through joining groups future might for that kid. for parents with trisomy We don’t do something like conditions and advocatthat for somebody like my ing for the children with dad, who has cancer. When the condition, Minor has you get terminal cancer, met many other Trisomy they’re not going to just 18 parents. One mom took let you die. Nobody does her child home on hospice that,” Minor said. “I don’t and comfort care. She was understand why we Carne do that de told her molida daughter would cerdo with children." die within a few tamaño weeks. paquete de culaquier “Parents take their kids “The baby didn’t die. Carne cerdo molida home to die happily in de She’s still alive. They didn’t paquete de culaquier tamaño their arms,” she said. “I start therapies until she respect that everybody has was a year old,” Minor said. a choice to do what they “We lose the opportuwant. But I think a lot of nity to see what they're parents make that choice going to be because efforts because a medical profesaren’t exhausted, parents sional has convinced them that their kid is not going GEORGIA • 2

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