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PUBS Newsletters: KKI Clinical Connection v1

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Clinical Connection

News, Updates and Support for Healthcare Professionals

Dear Colleague,

At Kennedy Krieger Institute, we are committed to providing specialized medical and therapeutic care for children and young adults with disorders and injuries of the brain, spinal cord and musculoskeletal system. Our medical staff comprises hundreds of clinicians representing more than 80 specialty clinics and programs, and a staff of 2,500 dedicated employees provides your patients and their families with unique access to the latest in research and treatment for neurorehabilitation, behavioral disorders and other developmental disorders.

To ensure your patients receive the best care possible, we take a team approach, as appropriate, bringing together physicians, psychologists, therapists and other clinicians to address all of a patient’s needs. Our staff members work closely with you, and your patients and their families, to develop comprehensive and individualized treatment plans.

We offer care in a variety of settings, including a specialty pediatric hospital and outpatient centers that see more than 24,000 patients a year, day treatment services, and home- and community-based programs. We now have outpatient locations in Odenton and Columbia, Md., in addition to our Baltimore locations, to offer added convenience for your patients and their families.

Enclosed is a copy of Potential magazine, which contains inspiring stories from around the Institute. We appreciate your trust in referring patients to us, and we value your input. Please call us at 443-923-9403 or email us at FindASpecialist@KennedyKrieger.org to get in touch.

I am retiring from my positions as president and CEO this summer, and Dr. Bradley Schlaggar will take the helm. It’s been an honor to lead Kennedy Krieger for the past 30 years. Thank you for your support.

Sincerely,

INSIDE THIS ISSUE:

• Expert Treatment for Children and Adolescents With ARFID

• Developmental and Behavioral Disorders: Bridging the Gap

• How Community Violence Impacts Youth—A Student Perspective

• Study Finds Reduced Brain Size in Children With ADHD Symptoms

REFERRING YOUR PATIENTS

To support the needs of physicians and healthcare professionals, our care management team is available to provide information on appropriate clinical programs, handle referrals, obtain consultations with Institute specialists, and schedule appointments for patients and families.

Call 443-923-9403 to reach our Physician Referral Line, or visit KennedyKrieger.org/Referrals for information and resources for physicians and healthcare professionals.

For general information, visit KennedyKrieger.org or call 1-888-554-2080.

OUR CULTURE OF CARE

Kennedy Krieger Institute recognizes and respects the rights of patients and their families and treats them with courtesy and dignity. Kennedy Krieger Institute provides care that preserves cultural, psychosocial, spiritual and personal values, beliefs and preferences. Care is free from discrimination based on age, race, ethnicity, religion, culture, language, physical or mental disability, socioeconomic status, sex, sexual orientation, and gender identity or expression, including transgender. We encourage patients and families to become active partners in their care by asking questions, seeking resources and advocating for the services and support they need. © 2018 Kennedy Krieger Institute 6/2018

Students Raise Awareness About Community Violence Impact on Baltimore Youth

Today’s children live in a world where violence, bullying and traumatic events are very real threats to their health and well-being. From school shootings and human trafficking to community violence and family issues, traumatic events can have lasting impacts on children.

Kennedy Krieger Institute’s Center for Child and Family Traumatic Stress offers interdisciplinary, evidencebased therapies to treat and support children and their families to mitigate the effects of traumatic stress. This past March, students from Kennedy Krieger’s youth trauma program premiered two compelling short films they created to address the personal impact of violence in their communities. The students created these compelling works while participating in a youth therapy program at Kennedy Krieger. Through these films, young people came together and used their voices to become part of the movement to end community violence.

Visit KennedyKrieger.org/ TraumaticStressCenter to view the films.

Bridging the Gap in Healthcare for Children With Developmental and Behavioral Disorders

Approximately 13 percent of children in the United States have a developmental disorder, and studies indicate that as many as 20 percent of children have emotional or behavioral disorders. Many children present with behavioral disturbances in early childhood and are referred to specialists for diagnosis and management. Long waiting lists to see specialists and the long distances many families must travel in order to see specialists pose obstacles for families trying to get care for their children, especially for those in rural communities and underserved populations.

To address the shortage of behavioral and developmental specialists who evaluate and manage children in Maryland, Kennedy Krieger Institute has created a grantfunded collaborative for training medical professionals to identify and treat childhood developmental, emotional and behavioral issues. The program, called the Kennedy Krieger Institute Network for Early Childhood Telehealth, intends to transform participating pediatric primary care and school-based health center clinicians into local experts.

Weekly virtual training clinics are hosted by an interdisciplinary team of Kennedy Krieger clinicians, and are attended by primary care and school-based clinicians from healthcare centers in rural and underserved areas of Maryland. Through guided practice and didactic learning, the program fosters participants’ increased knowledge and comfort in implementing evidence-based screening, evaluation practices and officebased interventions within their communities.

To date, Kennedy Krieger has held 40 training clinics, each one with didactic and case-based learning sessions. So far, the clinics have saved about 10,000 miles of patient travel, and the didactics have provided more than 180 CME hours for our community partners.

Contact Dr. Mary Leppert (Leppert@KennedyKrieger.org) or Janna Steinberg (SteinbergJ@KennedyKrieger.org) for more information about this program.

707 North Broadway

Baltimore, Maryland 21205

PATIENT CARE PROGRAMS & SERVICES

Specialty Pediatric Hospital

Feeding Disorders

Neurobehavioral Unit (NBU)

Rehabilitation Unit—brain injury, complex medical, pain management, post-orthopedic surgery and spinal cord injury

Outpatient Centers, Programs and Services

International Adoption Clinic

Aquatic Therapy Program

Assistive Technology Clinic

Audiology Clinic

Center for Autism and Related Disorders

Barth Syndrome Clinic

Behavior Management Clinic

Bone Disorders Program

Brachial Plexus Clinic

Center for Brain Injury Recovery

Phelps Center for Cerebral Palsy and Neurodevelopmental Medicine

Child and Family Support Center

Child and Family Therapy Clinic

Community Rehabilitation Program

Concussion Clinic

Constraint-Induced and Bimanual Therapy Program

Cranial Cervical Clinic

Deafness-Related Evaluations Clinic

Center for Development and Learning

Pediatric Developmental Disabilities Clinic

Down Syndrome Clinic and Research Center

Pediatric Epilepsy and Neuropsychiatry Program

Pediatric Feeding Disorders Program

Focused Interdisciplinary Therapy Program

Fragile X Clinic

Healthy Lifestyles Therapy Program

Infant Neurodevelopmental Center

Moser Center for Leukodystrophies

Limb Differences Clinic

Military Behavioral Health Services

Center for Genetic Muscle Disorders

Neurobehavioral Unit Outpatient Program

Neurology and Neurogenetics Clinic

Clinical Neurophysiology Clinic and Laboratory

Neuropsychology Outpatient Clinics

Specialized Transition Program Neurorehabilitation Day Hospital

Nutrition Clinic

Occupational Therapy Clinic

Orthopedic Clinic

Osteogenesis Imperfecta Clinic

Pain Rehabilitation Program

Physical Therapy Clinic

Psychiatric Mental Health Program

Pediatric Psychology Program

Rehabilitation Clinic

Seating Clinic

Sickle Cell Neurodevelopmental Clinic

Sleep Disorders Clinic and Laboratory

Speech and Language Clinic

Philip A. Keelty Center for Spina Bifida and Related Conditions

International Center for Spinal Cord Injury

Hunter Nelson Sturge-Weber Center

Center for Child and Family Traumatic Stress

Tuberous Sclerosis Clinic

Weight Management Program

Continuums of Care

Continuums allow patients to be seen through all stages of care, including in 24-hour inpatient programs, day treatment, home- and community-based services, and outpatient programs. They include Pediatric Feeding Disorders, Neurobehavioral Disorders and Pediatric Rehabilitation (brain injury, complex medical, pain management, post-orthopedic surgery and spinal cord injury).

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