North East Regional Extra

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north east regional extra | May 8 - 14, 2019

nemedia.com.au

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May 8 - 14, 2019

◆ DETERMINED: Katelyn Papakostas is passionate about raising awareness of, and funds for, multiple sclerosis. PHOTO: Mel Guy

By KYLIE WILSON

SPENDING six months last year in medical limbo before finally receiving a diagnosis of a rare paediatric form of multiple sclerosis (MS), Wangaratta teenager Katelyn Papakostas is passionate about raising funds for research into the condition, as well as raising awareness. She first went to the doctor in February 2018 after experiencing tingling sensations in her leg, along with weakness and even falling asleep in class, but said doctors initially believed it was related to her anxiety. After having an MRI, doctors believed she may have had a tumour, and she soon had further tests done at Melbourne’s Royal Children’s Hospital. While the tumour was ruled out, medical teams then thought she had demyelination (loss of protective covering) of a nerve in her back, but when symptoms recurred, she was finally diagnosed with MS in August last year. Multiple sclerosis in young people is rare, with only about five per cent of people with MS experiencing disease onset before they reach the age of 18, but Katelyn is philosophical about her situation. “The main thing now is just living with it everyday,” She said. “I have a different outlook on things now.” Balancing her medical needs with her Year 12 studies, Katelyn has plenty of big plans for this year.

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