How might we strengthen dignity, connection, and emotional wellbeing in home-based dementia care?
Survey of 85 primary caregivers of Person living with Dementia (PWD)
“As a mother I now have to be a caregiver for my children, as well as my parents. I have no time to take care of myself. ”
“Families can go to doctors for diagnosis, but the real challenge begins once we return home.”
“Small changes in routine and communication can make a big difference, but we got no advice and learnt this only from trial and error.”
“Doctors only talk about medicines and nobody addresses the big changes the family goes through.”
“Caring for someone who can’t leave the house has kept me tied to home and slowly erased my social life.”
By 2035, 230 M
Indians will be senior citizens (>60 age), making up 15% of the total population.
Alzheimer's and Related Disorders Society of India, 2022
11.5 M
People living with dementia, and growing at a yearly rate of 3%.
11.5 M x 4.5 = ~52 M
Indians living with OR taking care of a loved one with dementia
Participant Observation
CAREGIVER
The burden of caregiving falls on women of the family, with lack of awareness and help causing burnout.
FAMILY
Family dynamics shift as dementia progresses, yet few families are supported in adjusting to these changes intentionally.
DOCTORS
Able to help on a cognitive level, with less assistance on behavioural level - which is the daily experience of caregiving
Dementia Care drive in Bangalore, India by NIMHANS anary,
AWARENESS & EDUCATION
ACTIVE FAMILY ENGAGEMENT BEHAVIOUR TRACKING
Care Circle
Home first caregiving ecosystem that enriches deeper family connections and encourages shared family engagement in care. earlier
Care Circle
Bringing your Care Circle closer to you.
Physical
Home Kit
common group activities
guided quality interaction
Shared micro-learning for Reframes
open delegation of responsibility
Care Circle
Within
Bringing your Care Circle closer to you.
common group activities
guided quality interaction
Shared micro-learning for Reframes
open delegation of responsibility Within
Bringing your Care Circle closer to you.
Behaviour tracking
Short-form Micro-learning Content
Targeted Niche community
Extended care circle
Microlearning
Shared Activities for families
Behaviour Tracking
Microlearning
Care for extended family
Add a Concern
How would you like to be supported in this moment? Micro Learning Family Support
Is there anything you’d want to note for the doctor’s visit?
Video tips
1,134 comments
Rajashree K
This makes so much sense! Haven’t hosted diwali at home for so long now..
PK
What if my dad yells in social situations? Can
you teach us about de-escalation!!
Priya Mathur
My mom doesn’t recognise anyone that meets
us during diwali but she definitely remembers
Lara Kapur
That was such a helpful tip, I’m going to try it
out tomorrow!
Write a comment
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Desired Outcomes
Transfering the burden of care from one to many
In the moment, relevant care
guidance via microlearning
Increased shared
family engagement
with PWD
Insight generation for accurate and targeted medical care
Next
Steps
Testing Prototype
and iterating Developing data privacy guardrails
Exploring AI in better micro-learning suggestions
Thank You
