The Parkinson’s Perspective
Empowering Individuals & Families since 1980!
“What am I missing that I need to know more about?”
This question comes up frequently in our helpline calls and at support groups, and we completely understand why. The landscape of information there is to learn about Parkinson’s can be overwhelming, especially with so much available online. If you’ve had conversations with other people who have been impacted by Parkinson’s, you already know how unique each person’s experience is. There is no single roadmap of what living with Parkinson’s might look like, which can be frustrating for anyone trying to invest their time and energy in the best direction for the greatest impact. Learning about Parkinson’s isn’t just about understanding how symptoms are managed, but also building skills while learning how to cope, adapt and thrive - in ways big and small. Sometimes the topics that don’t feel relevant yet are the very ones that help nurture confidence and a sense of preparedness for a future that still holds joy and meaning, no matter what challenges arise. Each year brings new hope with scientific discoveries and innovative new treatment options so building a strong foundation of understanding Parkinson’s wherever you’re at in the journey so that you can navigate ever-evolving landscape with more clarity and confidence.
At PRO, we create space for all who are impacted by Parkinson’s to connect and explore. We help people find what
works for them according to the latest evidence-based guidance as well as real life experiences shared by others. We were thrilled to see over 200 people join us at our Empower Portland and Empower Bend events this last April! With the help of our expert presenters, generous sponsors, and many amazing volunteers and community partners, we set out to not only educate but inspire and empower. For an entire afternoon we learned, moved, and laughed together. To everyone who took the time to join us or support these endeavors, we thank you!
Our team is eager to keep the momentum going with our third Empower event, Empower Eugene, which will have just concluded by the time this newsletter hits mailboxes.
There are plenty more opportunities coming up this summer to empower
yourself with education and strengthen your connections within the community in whatever ways work best for you! Check out our calendar of upcoming activities on page 4. Consider attending or starting a support group where you live. Call our helpline if you have questions or just need to feel heard by someone who understands. Join us at our Sole Support for Parkinson's walks to raise awareness and help others find hope and empowerment.
Living with Parkinson’s is a journey without a map but you don’t have to navigate it alone. Every step you take to learn, connect, and engage builds confidence and community. And every time you show up for yourself or for someone else - you help create a future where people impacted by Parkinson’s feel supported, informed, and empowered. We’re here to walk alongside you, and we can’t wait to see you soon!
What is Sole Support for Parkinson’s?
Why is it Important?
Sole Support for Parkinson’s is Parkinson’s Resources' largest awareness and fundraising event, bringing communities together across four cities this fall. Join us for a meaningful day of connection, movement, and support.
Every dollar raised through Sole Support helps provide free, vital services and programs to our communities. If you've attended a program, you've seen PRO’s impact firsthand through education, connections, and local support to those living with Parkinson's. Every step makes a difference.
Join the Fun. Make a Difference. Support a Local Cause.
1. Sign up. It only takes a minute solesupport.org or give us a ring at 800.426.6806.
2. Start fundraising. Raise $100 to get this year's Sole Support shirt. Stay tuned for the exiting prizes at the $250 and $500 level. One step at a time, there is no limit to how much you can raise - Every dollar makes a difference!
3. Personalize your Sole Support page. Add a photo and share your personal story. Why does PRO matter to you? Share your reason for walking via email and social media straight from your Sole Support page.
4. Spread the word and don't be shy! Send a personal ask via email, text, or social media. The most effective fundraisers reach out early and often. We're here to help you craft the perfect message.
5. Supercharge it with a Facebook fundraiser. Launch a Facebook fundraiser directly from your Sole Support page to tap into your social network. It takes just a few clicks and can make a huge impact!
Contact Jeannine (jeannine@parkinsonsresources.org) if you want custom postcards, donation envelopes, or flyers to share.
Calendar of Events
Some of the details on these (and other programs) are still being finalized as we go to print. Please check our website or the event registration site (pro.eventbrite.com) for the latest information!
Want to stay current with updates and new program additions that occur between the quarterly print publication? Sign up for our emails! Call PRO if you aren’t receiving email from us at 800426-6806.
WELLNESS
Communication Skills Group
Fridays, July 10 - September 25 at 11 am - 12 pm (No Class August 21)
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Parkinson’s can take a toll on voice strength and clarity – research shows that people with Parkinson’s speak about 60% less than similarly-aged people without Parkinson’s! Join us to see if practice might help you avoid this situation.
This virtual series is led by Julia Robinson, Speech-Language Pathologist from Legacy Health. Just as you exercise your body to maintain movement, participating in voice exercise will help to maintain your voice clarity, volume and breathing! This class is great whether you have participated in speech therapy or not; practicing within a group setting allows for some fun social connection as well! Thank you to Legacy Health for your support and partnership with this program.
Sing-Along
Now separate sessions for IN-PERSON AND/OR VIRTUAL!
Online: Wednesday, September 23, at 2:30 pm - 3:30 pm
In-Person at PRO Beaverton Office: Friday, September 25, at 2:30 pm3:30 pm
------ IN PERSON & VIRTUAL
We’re shaking things up and separat-
ing out our very popular Sing-Along in to an “In-Person” group and a “Virtual” group on two separate days- join one or both! Join us for this fun and supportive song circle to practice projection, voice control and coordination through the joy of singing! Each session will start with a practice vocal warm-up and then sing your favorite songs with guitar accompaniment.
Movement Classes
Mondays, July 6 - September 28, at 12 pm (No class September 7)
Fridays, July 10 - September 25, at 1 - 2 pm (No class July 3)
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This exercise program is designed to increase flexibility, strength, balance, and coordination, improve communication, voice power and speech clarity. Drawing from yoga, tai chi, and dancing this seated exercise program focuses on doing movements with ease, moving intentionally and slow completion of movements one at a time. It is great for those concerned with balance, needing the support of a chair, or simply hoping to add to an existing exercise program. Taught by Anne Cooper.
McMinnville Movement Series
McMinnville Senior Center
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This class is not currently being offered while we recruit for a new instructor. Please contact Nancy@parkinsonsresources.org if you are a fitness instructor in the area who is interested in learning more!
Mindfulness Meditation Class
Wednesdays at 12:15 - 1 pm
New session June 17 - July 22, and August 5 - September 9
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Studies reveal the benefits of the practice, including reductions in symptoms related to anxiety, depression, stress, chronic pain and more. Recent studies now specifically addressing
the benefits of mindfulness for Parkinson’s Disease confirm promising results. This class is about befriending the mind so that we can to the best of our ability work with the stressors in our life. Using the breath as our guide allows us to discover our innate capacities of compassion and wisdom to work with our lives. Instructor Martha McJacobs has been a mindful practitioner and teacher for over 40 years. Carepartners are welcome to attend.
EVENTS & ACTIVITIES
Beaverton: Parkinson’s Disease, More than Motor Symptoms
Presented by PRO Annual Sponsor Acadia
July 8 (Wednesday) 1 – 2 pm
PRO Beaverton Office
-------- HYBRID
Parkinson’s disease is often associated with movement—but many people experience symptoms that go beyond motor changes. In fact, non-motor symptoms can play a significant role in daily quality of life. Join Dr. Matthew A. Brodsky, neurologist at Oregon Health & Science University, for an informative and engaging presentation exploring the non-motor aspects of Parkinson’s disease. With more than 20 years of clinical and research experience, Dr. Brodsky will help shed light on symptoms such as hallucinations, delusions, and other cognitive or emotional changes. He will also offer guidance on how to communicate effectively with your healthcare team and develop a personalized approach to care.
Portland: Climbing & Parkinson’s –Learn the Benefits and Give It a Try!
July 10 (Friday) 10 am – 12 pm
Portland Rock Gym Beaverton Location
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Join us for an energizing and eye-opening session on how rock climbing can support strength, bal-
ance, coordination, and confidence for people living with Parkinson’s. Our presenter, Dr. Laurie Mischley, ND, MPH, PhD, is a naturopathic physician, researcher, and fellow climber who specializes in the treatment and management of Parkinson’s disease. She will join us virtually for a presentation before skilled belayers from the Portland Rock Gym will be on hand to guide participants through the basics of climbing. Whether you’re brandnew or have climbed before, this is a supportive, no-pressure opportunity to explore something new.
Navigating End of Life for Those Living with Parkinson’s
July 15 (Wednesday) 6 - 7:30 pm -------- VIRTUAL
This workshop is dedicated to individuals living with Parkinson's disease and their caregivers, focusing on the important yet often challenging preparations surrounding end-of-life planning. We will explore how to approach death with clarity and compassion, delve into the role of death cafes and death doulas, and offer practical strategies for ensuring that personal wishes are communicated and respected. Join us to empower yourself and foster greater peace through proactive planning and meaningful dialogue. Angela Franklin, will lead the workshop. She is an experienced Older Adult Behavioral Health Specialist, death midwife, and community educator based in Southern Oregon.
Vancouver: LIFT Workshop for Family Caregivers
July 17 (Friday) 2 – 3:30 pm Boomerang Physical Therapy (New Location!), Vancouver -------- IN PERSON
Physical therapist Emily Kaemmerlen, PT, of Boomerang Therapy Works, will lead you through the proper and safe techniques to transfer your loved one who has mobility issues due to Parkinson’s disease. This program is intended for family care partners only There will be 5 interactive stations 1) Sit to stand 2) Transfer in and out of
bed 3) Transfer in the bathroom 4) Transfers in and out of the car 5) Lastly, how to get up off the floor. Each caregiver will participate, rotating to each station and practicing with other caregivers. Class size is limited to 10 participants.
Longview: PD 101 & Town Hall Coming to Longview!
July 23 (Thursday) 2 – 4 pm
Longview Public Library, Longview WA
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Don’t miss this engaging opportunity to learn, connect, and be heard! PRO is bringing PD 101 to Longview—an empowering introduction to Parkinson’s care with practical strategies for living well, presented by Dr. Abigail Bossart, Movement Disorders Fellow Neurologist from OHSU. Next, we’ll have a Community Town Hall discussion, where your voice helps shape the future of Parkinson’s support in your area. Come be part of the conversation—your perspective matters!
Beaverton: Imagine Your Days with More Consistent “On” Time
Presented by PRO Annual Sponsor Supernus
August 1 (Saturday) 1 – 2 pm
PRO Beaverton Office -------- IN PERSON
You and your family are invited to join us for an informative and engaging presentation on ONAPGO, a newer treatment option for people living with advanced Parkinson’s disease. Led by movement disorder specialist Dr. Pinky Agarwal of the Booth Gardner Parkinson’s Care Center, this session will explore how and why “ON” and “OFF” periods occur—and what options may help create more consistent symptom control throughout the day. You’ll learn how ONAPGO, a continuous wearable infusion therapy, works to reduce OFF time, what to expect from treatment, and how to determine if it may be a conversation worth having with your care team. This is a great opportunity to learn from a leading expert, ask questions,
and connect with others navigating similar experiences.
Portland: Parkinson’s Disease 101 August 6 (Thursday) 11 am – 12 pm Friendly House, Portland -------- IN PERSON
This introductory presentation offers a clear and approachable overview of Parkinson’s, a chronic neurological condition that can impact movement as well as mood, memory, and daily life. We’ll cover what to expect, available treatments, and practical strategies for living well. Participants will also learn about the important role of exercise, along with local resources and support available in the community. Presented by Eduardo Fernandez, Community Health Education Coordinator, Parkinson’s Resources of Oregon.
Dysautonomia Practical Session
Eugene: August 5, (Wednesday) 1:00 –2:30 pm at Garden Way Retirement Portland: August 26, (Wednesday) 10:30 am -12:00 pm PRO Office Beaverton -------- IN PERSON
Continue to gain knowledge about Cardiac Dysautonomia and Neurogenic Orthostatic Hypotension in our small group practice session. If you find yourself thinking: Why am I so fatigued? I'm lightheaded when standing in line? I can’t keep up in exercise class? Know that nearly half of People with Parkinson’s disease have Neurogenic Orthostatic Hypotension (NOH)—a serious but often overlooked blood pressure disorder. Join our small group session to learn how to measure and record your Orthostatic Vital Signs. Discover if you have this disorder and what you can do about it.
Bend: Vyalev, A Different Approach to Treating Parkinson’s Disease Presented by PRO Annual Sponsor AbbVie
August 12 (Wednesday) 1 – 2 pm Partners In Care, Bend -------- IN PERSON
Presented by Jill Baird, MD, Movement Disorders Specialist with Legacy Health. This educational program will explore Vyalev and how this newer treatment approach may offer an alternative option for individuals living with Parkinson’s disease. Attendees will learn more about how Vyalev works, who may be a candidate, and important considerations when exploring advanced treatment options.
DBS Conversations: Speech and Swallowing
August 17 (Monday) 4 – 5:30 pm -------- VIRTUAL
Did you know that assessing speech and swallowing is an important step when exploring if deep brain stimulation is a good option for someone living with Parkinson’s? This special edition of our DBS Conversations program will include a presentation from Brooke Shea, M.S., CCC-SLP, Speech Pathologist with OHSU and a member of OHSU’s multidisciplinary DBS team. Brooke will explain why a full speech and swallowing assessment can be so important prior to DBS surgery, what to expect this assessment to include, and what changes might occur in speech and swallowing as a result of DBS surgery. We’ll also have plenty of time for your own questions!
Bend: Breathing for Better Movement: Functional Breathing for Parkinson’s September 3 (Thursday) 3:30 pm –4:30 pm
Partners In Care, Bend
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Did you know that how humans breathe impacts every aspect of life: balance, posture, emotional regulation, digestion and voice? Please join Dr. Andy Sabatier, PT, DPT of Academy West Breathing Performance for a special introductory event exploring how breathing mechanics and diaphragm function play an important role in movement and daily function for individuals living with Parkinson’s. We’ll also leave plenty of time for questions and exploration. This live educational event will help you to understand the
most important movement a human performs 20,000 times each day and night. Go beyond “just breathe” to learn about “breathing performance”.
SOCIAL, COMMUNITY & FUN
We host a variety of ongoing activities at our office in Beaverton. Scan this QR code to see what’s happening:
Coach’s Invitational Table Tennis Tournament
August 15 (Saturday) 12 – 3 pm
PRO Beaverton Office
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The Coach has selected the top five Table Tennis (Ping-Pong) Players with Parkinson’s Disease to play for the 2026 invitational championship. You are invited to join the fun as a spectator! No registration or cost to come watch these highly skilled players compete, and cheer them on as we see who will be crowned the champion.
NEW Speech Therapy
PRO Office Beaverton
Mondays 1:30 - 4:30 pm & Wednesdays 10:30 am - 1:30 pm by Appointment
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Specialized speech therapy services for individuals living with Parkinson's in all stages of PD with Lauren Brasfield M.S. CCC-SLP. Speech therapy sessions address voice projection and speech clarity, swallowing function, memory and cognition, communication effectiveness and confidence in daily life. The SPEAK OUT! Therapy Program uses evidence-based techniques specifically designed for Parkinson's. To get started schedule a FREE 15-minute consultation: www.theneurowellnesscollective. com
Call: 971-245-2654
Email: info@theneurowellnesscollective.com
NEW PD Boxing Club
Wednesdays & Fridays 1-1:55 pm and Sundays 11:30 am - 12:25 pm
Northeast Community Center, Portland -------- IN PERSON
Each class is designed to address and mitigate common symptoms of Parkinson's with certified coaching and the latest science backed information. While every session will be a bit different, expect a group warm up, balance and agility work, speed and endurance through boxing fundamentals and lots of vocalizing. Our PD Boxing Club members will work the heavy bag, wall mount menace bag, mitts, TRX and more! Come prepared to sweat, have fun and find your community with us. Contact 503-284-3377 or fitness@necommunitycenter.org
BOARD OF DIRECTORS
Chair: Justin N. Smith
Vice Chair: Scott Philips
Treasurer: David de Fiebre
Secretary: Laurie Ayers Pino
Directors at Large:
Elise Anderson, MD
Todd Bauman
Melody Boyce
Larry Bradley
Janelle Chorzempa
Chad Naganuma
Scott Philips
Joseph Quinn, MD
Ann Usher
Kristin Whitney
Area Group Meetings
GENERAL INTEREST PD GROUPS
All Area General - Zoom 1st Wed, 1:00 pm PRO, 800.426.6806
Albany - In Person 2nd Wed, 4:00 pm Lynn, 541.936.6154
Ashland - In Person 3rd Wed, 3:30 pm Laurie, 650.575.8434
Astoria - In Person
2nd Mon, 1:00 pm Donna, 503.738.5295
Beaverton - In Person 2nd Wed, 10:00 am PRO, 800.426.6808
Bend - In Person 3rd Wed, 2:00 pm Nancy, 503.799.5311
Brookings- In Person 1st Thurs, 3:00 pm Teigan, 541.247.3074
Canby - In Person 1st Mon, 1:00 pm Shirley, 503.380.1712
Clackamas - In Person 3rd Tue, 3:00 pm Kim, 503.698.1600
Coos Bay - In Person 2nd Thurs, 1:00 pm Aaron, 541.808.1336
Eugene- In Person 2nd Tue, 10:30 am Dave, mwsdbs1@comcast. net
Florence - In Person 4th Thur, 1:00 pm JoAnne, 541.633.3330
Gresham - In Person 2nd Tue, 2:00 pm Stephen, 503.341.3757
Hillsboro - In Person 2nd Mon, 2:30 pm Mark, 503.718.7484
Hillsboro, East - In Person
3rd Fri, 10:15 am Tina, 971.803.8144
CARE PARTNER GROUPS
All Area Care PartnerZoom
4th Wed, 1:00 pm PRO, 800.426.6806
Ashland - Zoom 2nd & 4th Fri, 9:30 am Ann, 415.279.8754
Beaverton - In Person
1st Mon, 10:00 am Gail, 575.202.2288
Bend - In Person Fridays, 9:30 am Mary Jo, 541.693.4488
Beyond Parkinson’sZoom Care Partner Loss Group
3rd Thurs, 3:00 pm Libby, 541.345.2988
Caring for a ParentZoom
3rd Thurs, 5:00 pm Dakota, 702.682.0954
Dementia and PDZoom
1st Thurs, 4:30 pm Libby, 541.345.2988
Klamath Falls - In Person
4th Tue, 1:00 pm Ron, 541.591.0686
La Grande - In Person 1st Thur, 4:30 pm Kate, 541.969.0883
Longview - In Person 3rd Thur, 1:30 pm Shawna, 360.423.3333
Medford - In Person 3rd Sat, 12:30 pm Curt, 541.601.0602
Medford, Rogue Valley Manor- In Person 3rd Tue, 1:30 pm Meridel, 541.857.6605
Milwaukie, Rose VillaIn Person 2nd Tue, 10:00 am Ann, 503.652.3046
Newberg - In Person 3rd Thur, 11:00 am Marshall, 503.550.7670
Newport - In Person 2nd Mon, 3:00 pm Greg, 541.272.2595
Pendleton - In Person TBD May, 541.668.6599
Portland NE - In Person 3rd Weds, 2:15 pm Phil, 503.819.8033
Redmond - In Person 2nd Mon, 1:00 pm Ginny, 541.548.6310
Roseburg - In Person 2nd Mon, 1:30 pm Sandy, 541.430.1286
Salem - In Person 2nd Tue, 1:30 pm Jayne, 503.930.4239
Sherwood - In Person 3rd Thurs, 1:00 pm Dillon, 503.625.9481
Silverton - In Person 3rd Wed, 12:00 pm Drew, 541.771.2521
The Dalles - In Person TBD PRO, 800-426-6806
Tillamook - Zoom 2nd Thur, 2:00 pm Randy, 314.458.1970
Vancouver, WA - In Person 4th Mon, 1:00 pm Jan, 360.433.6400
West Vancouver, WA -In Person 3rd Fri, 1:00 pm Hope, 518.265.0340
West Linn - In Person 2nd Thur, 1:00 pm Tiffany, 503.557.4704 Jan, 503.319.7062
Willamette Valley - In Person 3rd Wed, 1:00 pm Ken, 541.912.2636
Wilsonville - In Person 4th Thur, 11:30 am Tamara, 503.534.6060
Eugene - In Person
1st Mon, 3:00 pm Tim, 541.525.1883
Eugene - Zoom
4th Tue, 1:30 pm Libby, 541.345.2988
Lewy Body Dementia - Zoom
2nd Sat, 1:00 pm 4th Sat, 10:00 am Kathy, 971.222.7526
SPECIAL INTEREST GROUPS
Alternative ApproachesZoom
2nd Tue, 7:00 pm (alternate months) Tasha, 503.788.2333
Eugene/Springfield YOPD <50 - Zoom
3rd Wed, 1:00 pm Libby, 541.345.2988
MSA/PSP/CBD - Zoom
Last Sat, 10:30 am Akiko, 503.853.9584
Newly Diagnosed < 3 yrs - In Person Beaverton 4th Tues, 3:00 pm Nelson, 814.482.0906
MSA/PSP/CBD - Zoom
3rd Fri, 10:30 am Laurie, 503.523.9970
Portland - Zoom 1st Tue, 7:00 pm PRO, 1.800.426.6806
Portland Women Coffee Chat- In Person
3rd Thurs, 10:30 am Martha, 503.830.7246
Redmond Group Breakout - In Person 2nd Mon, 1 PM
Newly Diagnosed < 3 yrs - Zoom
2nd Wed, 1:30 pm PRO, 800.426.6806
PD without a Partner - Zoom
4th Thurs, 2:00 pm PRO, 800.426.6806
(odd months) Ginny, 541.548.6310
Women, AM- Zoom 1st Tues, 11:00 am Martha, 503.830.7246
Women, PM- Zoom 1st Wed, 3:00 pm Mary, 503.332.1700
Vancouver, WA- In Person 1st Mon, 1:00 pm Jan, 360.433.6400
Portland Young Onset Happy Hour - Zoom
3rd Fri, 4:30pm Jeff, jeff.lasley@gmail.com
Women with PD - Zoom 1st Mon, 5:00 pm PRO, 800-426-6806
