The Parkinson’s Perspective Volume 43, Issue 4
Fourth Quarter, 2023
Serving OR and S. WA
Advocating for Yourself CONTRIBUTED BY NIA JONES, PROGRAM COORDINATOR Self-advocacy is an essential skill for anyone living with Parkinson’s disease. Simply put, self-advocacy is the ability to communicate your needs. While that may be an uncomplicated definition, it can be difficult to know where to start and how to build the skills to become confident in advocating for yourself. From navigating the complex healthcare system to confronting misconceptions and stigma, all while remembering to take your carbidopa/levodopa, living with Parkinson’s disease can feel like a constant battle. Assuming an active role in expressing your needs empowers you to take control of your health, enhances your quality of care, and promotes positive change for yourself and everyone in your community. Self-advocacy can be broken down into three main pieces: information, communication, and support. Being a proponent for yourself starts with understanding your needs. As
we mature, our needs change and grow, too. Your needs as a child differ from your needs as an adult, just as your needs differ as a person living with Parkinson’s disease from a person living without PD. So how do you identify your needs?
Learn your disease. It takes time to thoroughly understand PD but there are a lot of resources from reputable sources available to help. It is never too late to start learning about PD. Whether you are an auditory learner who would benefit from a lecture, or you learn best through reading, arming yourself with knowledge allows you to make informed decisions and equips you with the information to communicate your needs and concerns effectively. The New Parkinson’s Treatment Book, by J. Eric Ahlskog, PhD, MD, is a fantastic resource to help build knowledge about PD. Functioning like an encyclopedia, the book aims to educate people with Parkinson’s about all aspects of the disease, from diagnosis, to treatment, to
MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG
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symptoms and symptom management. Attending educational events hosted by Parkinson’s organizations are another way to learn about PD. Parkinson’s Resources of Oregon, Davis Phinney Foundation, Michael J Fox Foundation, and more, host online and in-person education events focused on empowering people with Parkinson’s through education, covering topics that respond directly to the current needs of the PD community. Connecting with a support group or peer mentor is a way to learn about PD from others navigating the disease. As opposed to reading a book or watching a webinar, support groups offer immediate discussion about topics important to the members of the group. Through conversation, you are introduced to new ideas and information about the tools others are using to manage their PD. While a support group is not a place for medical advice, it is a place to hear about what others are experiencing, what resources (Continued on page 6) FOURTH QUARTER, 2023 • 1
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Calendar of Events REGISTRATION AT WWW.PRO.EVENTBRITE.COM Some of the details on these (and other programs) are still being finalized as we go to print. Please check our website (parkinsonsresources. org) or the event registration site (pro.eventbrite.com) for the latest information! It is critical that you register, even for free programs so that we may gauge interest, plan materials and send links for virtual programs. IN PERSON * HYBRID * VIRTUAL Please take note how various courses and programs are offered. At YOUR request and with support from the presenters and instructors - more programs are being offered in person. Nothing beats the experience of connecting and reconnecting, we hope to see you soon!
WELLNESS
Communication Skills Group
Singing
Join at any time - Fridays, 11AM -------- VIRTUAL -------Parkinson’s can take a toll on voice strength and clarity – research shows that people with Parkinson’s speak about 60% less than similarly aged people without Parkinson’s. Join us to see if practice might help you beat these odds.
3rd Thursday of the month October 19, November 16, December 21 - 2:00PM -------- HYBRID -------All are welcome - and we hope you will join us LIVE at the PRO offices in Beaverton. We’ll have a zoom link to share for those who are unable to join us in person due to geography or transportation constraints. Participants who join the fun virtually will also receive a song list and lyrics in advance of the group. December 21st will be our holiday sing-a-long!
This virtual series is led by Julia Robinson, Speech-Language Pathologist. Just as you exercise your body to maintain movement, participating in voice exercise will help maintain voice clarity, volume and breathing! This class is great whether you have participated in speech therapy or not, practicing within a group setting allows for fun social connection as well! Offered in partnership with Legacy Health.
You will sing along with our gifted and beloved volunteers, Michelle Garratt, Jill Williams and Kera Magarill!
PRO Wellness Classes | Fill your week with a variety of classes! Registration Required: www.pro. eventbrite.com
Mindfulness Meditation New session: November 8th-December 13th Wednesdays at 12;15 -------- VIRTUAL -------Anxiety, stress and depression? Try one of our free Mindfulness sessions. Mindfulness activates brain circuits that help with feeling happy and regulates emotions. Practicing mindfulness can also reduce stress, anxiety and depression.
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MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG
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Movement Classes w/LauraLou New sessions start first week of October -------- VIRTUAL -------Offered three times a week, our chair-based program instructed by LauraLou is on Monday, Wednesday or Friday. Registration for each day is separate. These virtual classes are ideal if you are unsteady on your feet or feel safer seated. Participate in an upbeat experience while focusing on a full range of movement and communication support.
Movement Class in McMinnville Starts October 5th Thursdays 11-12:30PM -------- IN PERSON -------PRO Movement classes are offered in-person in McMinnville. Bill Wilson instructs the weekly program. Participants must register to join. There is a sliding scale registration fee with scholarships available.
Table Tennis On-going, Weekly -------- IN PERSON -------There is strong evidence to support Ping Pong for Parkinson’s as therapeutic with benefits as a form of exercise and helpful with eye-hand coordination.
EDUCATION DBS Conversations 4th Quarter DBS with Dr. Elise Anderson October 27th at 4:00 PM Virtual -------- VIRTUAL -------For this session Dr. Anderson will be giving a quick run through the DBS evaluation process, and open the group up to Q& A. Whether you are contemplating DBS, are in the DBS process or have had the procedure, she can answer your questions!
Managing Depression in PD Thursday, November 2nd at 11:00 AM - Bend East Library
-------- HYBRID -------Presented by Amarleen Singh, LCSW Behavioral Health Specialist from Oregon Older Adult Behavioral Health. In Parkinson’s disease, changes to mood and emotional well-being are prevalent and important to understand and address. Depression is a common symptom in Parkinson’s disease. Learn to recognize signs and symptoms, as well as self-help and professional supports that are available and effective. Our presenter will also address the differences between depression and apathy.
What is This Pill For? Wednesday, November 15th, 12:00 PM - Beaverton office -------- HYBRID -------Presented by Dr. Michael Shih, PharmD, BCCCP with the OHSU Parkinson Center of Oregon. This lecture will discuss medications typically prescribed for the management of the motor symptoms associated with Parkinson’s
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Disease. Dr. Shih’s talk will cover the different classes of drugs, their mechanism of action, both their common and serious side effects, and the considerations for administering these medications.
Personal Care Series December 7th & 14th 2:00 PM -------- VIRTUAL -------We have opened this series up to people with Parkinson’s and their Carepartners! During this 1.5 hour program (once a week for 2 weeks) Occupational Therapist, Mindy Laidlaw, will give instruction and ideas on applying strategies and equipment to assist the person with PD with bathing, dressing, toileting, mobility, and cooking/feeding.
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Calendar of Events CONTINUED FROM PAGE 3 Rural Outreach Initiative Education & Connection -------- IN PERSON -------PRO is committed to expansion of programs and services to meet the needs in rural communities as we continue our initiative for impact by connecting with clients, families, and professionals! This quarter PRO will be in 3 cities, Klamath Falls, Coos Bay and Roseburg!
AT NIMBUS What is the Appropriate Assistive Device When I’m Walking? A PT Talk Wed October 25th, 12:00 PM Beaverton Office -------- IN PERSON -------Mobility challenges often occur as Parkinson’s disease progresses. To maintain independence and ensure safety it’s important to find the right fit for an assistive device. Physical Therapist, Laura McIntyre will discuss what to consider when looking for a specific device and what are indicators for moving to a different device.
Program from our Partners Supernus Beaverton Office Saturday October 28th -------- IN PERSON -------One of the best ways to advocate for yourself is to become an informed health consumer, educated and informed about treatments and 4 • FOURTH QUARTER, 2023
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Living Well Importance of Exercise, Nutrition, Socialization, Self-care, and Education Friday, October 6th - Klamath Falls Wednesday Nov 8th - Coos Bay -------- IN PERSON -------Join us for an afternoon workshop focused on lifestyle strategies. Between visits to the doctor, your daily choices can help you manage symptoms. We will discuss the evidence behind recommendations about exercise, answer questions you may have about nutrition, provide strategies to manage your care and learn about resources available.
Hope in PD Saturday Nov 4th - Roseburg -------- IN PERSON -------Presented by Dr. Kristina Hart, Movement Disorder Specialist with Oregon Neurology in Springfield Oregon. There are more treatment options for Parkinson’s disease now than there have ever been. This is an exciting time with the development of new biomarkers for Parkinson’s disease through spinal fluid, as well as new diagnostics through skin biopsy. Dr. Hart will be discussing current treatments, ongoing research studies, and how to maintain hope in the face of Parkinson’s Disease.
care. PRO’s Annual Partner, Supernus, is offering an in-person opportunity to learn more about their PD therapy.
Diagnosed Support Group or brand new to PRO, we’ll have information to share and staff will answer questions.
Understanding OFF Episodes and Dyskinesia in PD Saturday, October 28th, 11:00 a.m. Speaker Dr. Pinky Agarwal, MD from Evergreen Health Medical Group, in Washington. Dr. Agarwal has clinical expertise in Movement Disorders, Parkinson’s disease and Parkinsonism.
RSVP to Nia, Program Coordinator, at Nia@ParkinsonsResources.org or call 971-727-3532.
Newly Diagnosed Meet-Up at PRO Friday November 3rd, 4:00pm5:30pm Beaverton Office -------- IN PERSON -------Have you been diagnosed with Parkinson’s disease in the past three years or so? Looking to connect with people in the Portland Metro region also navigating PD? Come to PRO for an afternoon of snacks, chatting, and connection. Whether you are interested in meeting folks you see online during the Newly
39th Annual Options and Opportunities Symposium When: Saturday, October 28th 9:00 – 2:30pm PT -------- HYBRID -------Where: Bauccio Commons, University of Portland What: The Parkinson Center of Oregon at OHSU is hosting their symposium featuring presentations, research updates, an interactive performance by Rebel Fit, as well as an acupuncturist, massage therapist, and reiki specialist! Contact Jhaline Mast, Education & Outreach Coordinator at the OHSU Movement Disorders Program. 503.494.6671
MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG
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A Tribute to Greg Chaillé (1949-2023) For decades Parkinson’s Resources of Oregon has been blessed with a dedicated and passionate board of directors who have guided the organization through seasons of growth and development. On June 30, 2023, we lost one of our treasured board members Greg Chaillé. Since joining the board in 2012, Greg has been a tireless champion for the clients and families we serve at Parkinson’s Resources and has fought to ensure that every family that needed help had access to PRO services free of charge. With an unparalleled career that spanned over thirty years as a philanthropic leader with the Oregon Communi-
ty Foundation (OCF), Greg brought his unique talent, subtle powers of persuasion, and personal connections to fundraise for Parkinson’s Resources. Greg dedicated his time so that PRO could offer customized programs and personalized services to patients and their families living with Parkinson’s disease. “In our work at Parkinson’s Resources, we are privileged to bear witness to countless courageous battles with Parkinson’s disease,” said Kelly Sweeney, Chair for the Board of Directors of Parkinson’s Resources of Oregon. “Greg was a true champion of this community, never hesitating to open doors, forge connections
and lean into any opportunity to help others find their own path with PD and engagement with PRO.” Parkinson’s disease was a personal battle for Greg, one that he faced with grace and courage. While we mourn the loss of our friend and colleague, we know the impact Greg had on the Parkinson’s community and Parkinson’s Resources of Oregon will live on for years to come. On behalf of the board, our staff, and our clients, we extend our sincere condolences to Greg’s family and loved ones.
BOARD OF DIRECTORS Chair: Kelly Sweeney Vice Chair: Justin N. Smith 2nd Vice Chair: Kristin Whitney Treasurer: David de Fiebre Secretary: Todd Bauman 3rd Vice Chair: Gregg Giboney Directors at Large: Laurie Ayers Pino Melody Boyce Larry Bradley Barney Hyde Jerry Hulsman George Lee Chad Naganuma Scott Philips Joseph Quinn, MD Richard Rosenbaum, MD Ann Usher
(Greg Chaille (left) and Jerry Hulsman at a recent Sole Support)
MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG
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Advocating for Yourself (CONTINUED FROM PAGE 1) are available in the community, and how people have successfully advocated for themselves.
Communicate your needs. With an understanding of PD, the next step to advocating for yourself is vocalizing your needs. With most people seeing a Movement Disorder Specialist or neurologist just twice a year, arriving to appointments prepared is critical. Keeping an ongoing list of questions and concerns to share with your doctor helps keep the conversation on track and ensures that topics that matter to you are being heard and addressed. Don’t hesitate to reach out to your doctor via the online portal between visits. Speak up if something is bothering you! Beyond communicating questions and concerns with medical professionals, part of promoting your needs as an essential component of your medical care is communicating your goals. Setting a goal that is meaningful to you provides
a target to work toward with your care team, keeps care patient-focused, and helps you stay actively engaged. Goal setting can start by saying what you value and develop into a conversation about what everyone can do to help you maintain that. Communication is a two-way street. While it may be challenging to change providers, it is ultimately beneficial to work with a team that you feel comfortable communicating with. You know your body, your symptoms, experiences, and medical history better than anyone else. Finding care providers that respect your lived experience and react to your needs results in better quality of life and care.
Build support. Advocating for yourself is hard work. Surrounding yourself with people who are your champion can help lessen the pressure of being the only one speaking up for you. Helping educate family members, friends, and profession-
als, about your experience with PD, creates a community of care and compassion. We cannot always easily speak for ourselves, but if there are people close to you who understand your needs, they can help amplify your message. Be kind to yourself as you navigate life with Parkinson’s. No matter where you are in your journey, Parkinson’s disrupted your life and forced you to manage a whole other aspect of your health. It can take time to learn what your needs are, how to communicate, and identify a support team, but you can do it. What you have to say matters! It can and should be heard. You can lean on PRO to help gather information about Parkinson’s disease, build a support network, and learn what is available in your community. We are on your side and here for you.
PEER-TO-PEER PROGRAM CELEBRATES FIRST MATCHES Over the past year we have been encouraged by the feedback and how folks who are matched with a mentor report new encouragement and insight into what living with PD means. Mentors are volunteers who draw from their own lived experience to provide emotional support, encouragement and helpful tips. They also receive a great deal back from the relationships they build with the peers they are guiding. Here is what a couple of our mentors have to share about their experiences:
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“The time we spent together as mentor/mentee has grown into a wonderful friendship that is continuing beyond the official PRO connection. What a nice way to find a new friend!” “My experience with the mentoring program has been helpful for both my mentee and myself. I think I’ve been helpful and the experience reminds me of how far I’ve come in dealing with PD and how the journey for each of us is so different. I am grateful for the opportunity to
ease the burden with anyone with PD, even if just to share a cup of coffee with on occasion.” As the program grows, we need additional mentors and are actively recruiting peers to be matched! If you are interested in learning more about the program, please email Mike at Mike@ParkinsonsResources.org
MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG
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Help Improve the Way We Diagnose and Treat PD. YOU HAVE THE POWER TO MAKE A DIFFERENCE To this effort, Oregon Health & Science University (OHSU) is looking for volunteers for a study that is sponsored by The Michael J. Fox Foundation: FoxBioNet ECV-004. The study involves a one-time biosample collection to develop tests to help diagnose PD and to monitor disease progression and treatment.
Dr. Penny Hogarth & Alison Freed Our team would like to invite you to learn more about Parkinson’s disease (PD) research and how you can help! Scientists do not yet fully understand what causes Parkinson’s disease, but they continue to explore the role genetics and our immune system play as contributing factors.
OHSU is one of four participating sites located throughout the US. If you or someone you know are interested and would like to hear more, please contact us at the information below. You could be compensated up to $200 for your participation. In addition, The Michael J. Fox Foundation will reimburse reasonable travel costs (flights, hotel accommodations, mileage) for those interested and eligible who are willing to travel to one of the participating sites.
Oregon Health & Science University (Portland, OR) Dr. Penny Hogarth Study Coordinator: Alison Freed Telephone: 503-494-6838 Email: freeal@ohsu.edu Check out our Study Page at: https://tinyurl.com/yrtxtbjf
Support After Loss This summer, PRO hosted a 4-week long grief group for care partners whose loved ones with Parkinson’s had died in the last year and a half. There were six participants and although none of them knew each other prior to joining the group, significant bonds and connections were made almost immediately. Caring for a loved one with Parkinson’s is a unique experience and some of the most complex feelings of grief occur during the later stages of caregiving. The group allowed participants to share their stories of love and loss, consider things like identity and purpose, and in turn feel less alone during a difficult time of transition. PRO is committed to supporting families affected by Parkinson’s through every stage of the disease and will continue to offer this grief group annually. If you are interested in support after loss, please call Nia or Libby at PRO and ask about the “Beyond PD” group.
MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG
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Ask Your Doctor for Your Orthostatic Blood Pressure JEAN DONOVAN, FIRST PERSON ACCOUNT attack, dementia, stroke, and early death. The MRI taken at NIH of my brain already showed evidence of white matter hyperintensities, most likely, evidence of numerous episodes of reduced oxygenation to my brain. Every time I stood up, my brain suffered from reduced oxygen.
Don’t forget your non-motor symptoms. Over the past 20 years, the definition of Parkinson’s has expanded to include over 50 non-motor symptoms, such as: loss of smell, constipation, sleep behavior disorder, urinary urgency, and skin rash. Furthermore, many of these appear as much as a decade before the motor symptoms. Most of these disorders are annoying, but not serious, with at least one notable exception—Neurogenic Orthostatic Hypotension (NOH). Besides its difficult name, it can be debilitating or deadly. NOH is a chronic, incurable disorder in which one’s blood pressure quickly drops very low and stays there when one stands up. As with the motor symptoms of PD, it is caused by a problem with the nervous system. In this case, rather than being the result of a lack of dopamine in the brain, it is the result of a lack of norepinephrine, a different neurotransmitter, in the Autonomic (sympathetic) nerves of one’s heart. It is a non-motor aspect of PD. 8 • FOURTH QUARTER, 2023
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My Story Ten years ago, I was diagnosed with Parkinson’s Disease (PD). Two years later I began to have difficulty breathing when climbing stairs. And, it got worse over the next eight years, even though a small army of specialists was looking for answers. None of my doctors could find a clear diagnosis. As a nurse, I began to do my own reading of medical research—finally finding a condition that seemed to match my history. I contacted the head of research on Dysautonomia and Parkinson’s at the National Institutes of Health (NIH) and entered a study. After testing at the NIH, I learned my diagnosis—Neurogenic Orthostatic Hypotension (NOH). Even though it is simple to test for and it is common—affecting about 30 percent of those with PD (or 300,000 people in the US)—I had never been tested for it by any of my doctors. Serious Consequences NOH has serious consequences. It increases one’s risk of falls, fractures, and poor quality of life, as well as heart
Diagnosing NOH Despite its seriousness and its prevalence, my experience is sadly not unusual. NOH is routinely underrecognized, underdiagnosed, and undertreated. While it is extremely simple to screen for in any doctor’s office, it is seldom done. One 2018 study by Vanderbilt researchers found that 43% of sufferers switch providers at least three times before they receive a NOH diagnosis and 64% of those with NOH symptoms never received a diagnosis. This means that potentially thousands of PD sufferers are not diagnosed and not treated for this debilitating disorder. Most people with NOH have NO recognizable symptoms, making diagnosis difficult. Therefore, current research suggests all PD patients be screened for orthostatic BP at each visit. Furthermore, many are recommending that patients learn how to take and record their own orthostatic BP readings at home and bring this information to their doctor’s attention. Hopeful Future Although NOH has no cure, many measures, including medications, can be undertaken to improve symptoms and quality of life for NOH sufferers. Hopefully, PD patients will no longer have to wait years for a diagnosis of this serious BP disorder.
MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG
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Let Your Legacy Tell the Story of Your Generosity HELEN SHAFRAN, DIRECTOR OF DEVELOPMENT Planning a gift through your estate allows you to incorporate causes you care about into you financial and estate plans without negatively impacting your current lifestyle. With careful thought and foresight, you can create a meaningful difference for individuals and families living with Parkinson’s disease. We know that many of our supporters are also interested in making gifts that have immediate impact, and we welcome and encourage contributions of cash, securities (stocks and publicly traded funds, or real estate. Every dollar we receive, now or in the future, helps fortify our organization’s distinctive ability to support and serve our local Parkinson’s communities.
Donor-Advised Funds
You Decide How You Give
Beneficiary Designation
Which planned gift option is best for you? Consult with a professional advisor regarding the type of gift, tax issues, and timing but know that there are many simple options that don’t require establishing a trust or other legal instrument.
Beneficiary designations are one of the simplest ways to support those with Parkinson’s. Specify Parkinson’s Resources of Oregon as a full or partial beneficiary of your IRA, 401K, or other qualified retirement plan, or your life insurance, investments or bank account; the process is easy to do when you simply contact your plan administrator.
IRA Charitable Distribution If you meet the age criteria for a required minimum distribution (73 in 2023), you can speak with your account manager about a gift from your IRA directly to PRO and bypass income taxes on the money.
Testamentary Gifts A bequest made through your will or living trust and is both easy to establish and revocable. Your bequests can be a stipulated amount of cash, securities, or other assets, or as the “residue” or “percentage of the residue” of the estate.
(Bonnie Conger (center) and friends at PRO gathering)
Through a donor-advised fund, you have the flexibility to recommend the quantity and frequency of your funds that are granted to Parkinson’s Resources of Oregon.
As treasured longtime PRO friend and supporter Bonnie Conger says, “PRO was a lifesaver for me. In 2004 they came to my rescue when I no longer knew how to care for my husband, who had been diagnosed with PD in 1992 when our son was 10 years old. In addition to their guidance, I found love and support in one of PRO’s amazing care partner groups. After my husband passed away in 2011, I wanted to do more to help other PD families get the assistance, services, educational
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programs, and encouragement that they need to guide them through the challenges of PD, which is why I donate annually to PRO and included them in my estate plan.” Your support ensures that no one goes through Parkinson’s alone, and that our services and support are provided for all who need them, regardless of ability to pay. Gifts at all levels make a difference, and we are deeply grateful for your consideration, generosity, and compassion.
PARKINSON’S RESOURCES OF OREGON CAN ACCEPT YOUR DONATIONS OF PUBLICLY TRADED STOCKS AND APPRECIATED SECURITIES. CALL US IF YOU’D LIKE THE DIRECTIONS TO SHARE WITH YOUR BROKER AS OUR ACCOUNT DETAILS HAVE RECENTLY CHANGED.
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Area Group Meetings Our peer-led groups are meeting in person, online, and hybrid. If a group is hybrid, you can join via Zoom or in person. We also have PRO staff hosted meetings for all clients and carepartners needing support or engagement.
GENERAL INTEREST PD GROUPS All Area General - Zoom 1st Wed, 1:00 pm PRO, 800.426.6806
Coos Bay - In Person 2nd Thurs, 1:00 pm Aaron, 541.808.1336
La Grande - In Person 1st Thur, 4:00 pm Kate, 541.969.0883
Salem - In Person 2nd Tue, 1:30 pm Jayne, 503.930.4239
Albany - In Person 2nd Wed, 4:00 pm Lynn, 541.936.6154
Corvallis - Hybrid 2nd Tue, 11:00 am Betty, 541.760.1737
Medford - In Person 3rd Sat, 11:00 am Curt, 541.601.0602
Sherwood - In Person Last Thur, 1:00 pm Teresa, 503.625.9481
Ashland - Hybrid 3rd Wed, 3:00 pm Laurie, 650.575.8434 Gail, 479.420.8939
Eugene/Springfield Hybrid 2nd Tue, 10:30 am Dave, 541.686.8615
Medford, Rogue Valley Manor - In Person 3rd Mon, 1:30 pm Meridel, 541.857.6605
The Dalles - In Person 1st Thur, 10:45 am Chad, ChadSw@mcmc.net
Astoria - In Person 2nd Mon, 1:00 pm Donna, 503.738.5295
Florence - In Person 4th Thur, 1:00 pm JoAnne, 541.633.3330
Newberg - In Person 3rd Thur, 10:00 am Marshall, 971.344.4384
Beaverton - Zoom 1st Thur, 9:00 am Charlene, 503.421.5058
Gresham - In Person 2nd Tue, 2:00 pm Kevin, 503.278.0516
Pendleton - In Person 2nd Mon, 1:00 pm Jennifer, jennifercalhoun80@gmail.com
Bend - In Person 3rd Wed, 2:00 pm Jess, 541.668.6599
Hermiston - In Person 3rd Wed, 1:30 pm Carol, 541.720.4256
Bethany - In Person 2nd Thur, 2:00 pm Andrew, 319.429.8611
Hillsboro - In Person 2nd Mon, 2:30 pm Mark, 503.718.7484
Canby - In Person 1st Mon, 2:00 pm Shirley, 503.380.1712
Klamath Falls - In Person 3rd Tue, 1:00 pm Ron, 541.591.0686 Kate, 541.882.3928
Clackamas - In Person 3rd Tue, 3:00 pm Kim, 503.698.1600
Providence Portland Zoom 2nd Tue, 10:00 am Theresa, 971-358-9499
Tigard - In Person 2nd Wed, 10:00 am Jane, 630.564.2624 Caren, 336.202.6601 Tillamook - Hybrid 2nd Thur, 2:00 pm Randy, 314.458.1970 Vancouver, WA - In Person 4th Mon, 1:00 pm Jan, 360.433.6400
Redmond - In Person 2nd Mon, 1:00 pm Ginny, 541.548.6310
West Vancouver, WA Hybrid 3rd Fri, 1:00 pm Hope, 518.265.0340 Pat, 360.823.6683
Roseburg - In Person 2nd Mon, 1:30 pm Sandy, 541.430.1286
West Linn - In Person 2nd Thur, 1:30 pm Tiffany, 503.557.4704
INTERESTED IN HELPING TO START A NEW SUPPORT GROUP FOR YOUR COMMUNITY? PRO PROVIDES RESOURCES, TRAINING, AND ONGOING ADMINISTRATIVE SUPPORT FOR THE VOLUNTEER GROUP FACILITATORS IN OREGON AND SW WASHINGTON. CONTACT NIA (NIA@PARKINSONSRESOURCES.ORG) FOR MORE INFORMATION!
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MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG
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Area Group Meetings Continued from Page 10
SPECIAL INTEREST GROUPS Alternative Approaches Zoom 2nd Tue, 7:00 pm (alternate months) Tasha, 503.788.2333
Eugene/Springfield YOPD <50- Zoom 3rd Wed, 6:30 pm Libby, 541.345.2988
MSA/PSP - Zoom Caring for a Parent - Zoom 4th Sat, 10:30 am Care Partner Group Akiko, 503.853.9584 3rd Thurs, 5:00 pm PRO, 800.426.6806 Newly Diagnosed < 3 yrs Zoom 2nd Wed, 1:30 pm PRO, 800.426.6806
PD without a Partner Zoom 4th Thurs, 1:00 pm Shari, 503.348.2665
Veteran’s PD Group Zoom 2nd Fri, 10:00 am Kristi, 503.220.8262 x58594
Portland YOPD Happy Hour - Zoom 3rd Fri, 4:30pm Jeff, jeff.lasley@gmail.com
Women with PD - Zoom 1st Mon, 5:00 pm Nicol, 253.226.4069
Lewy Body Dementia Zoom Care Partner Group 2nd Sat, 1:00 pm 4th Wed, 10:00 am Kathy, 971.222.7526
Tigard Women - Zoom Care Partner Group 1st Wed, 3:00 pm Mary, 503.579.2792
CARE PARTNER GROUPS All Area Care Partner Zoom 4th Wed, 1:00 pm PRO, 800.426.6806
Dementia and PD - Zoom Care Partner Group 1st Thurs, 1:00 pm PRO, 800.426.6806
Ashland - Zoom Care Partner Group 1st & 3rd Fri, 9:30 am Ann, 415.279.8754
Early Stage Women’s Zoom Care Partner Group 1st Tues, 11:00 am Martha, 503.830.7246
Astoria - In Person Care Partner Group 4th Tue, 1:00 pm Donna, 503.738.5295 Bend, Newly Diagnosed - In Person Care Partner Group 2nd Thur, 1:00 pm Caryn, 206.799.1531
MSA/PSP - Zoom Care Partner Group 3rd Fri, 12:00 pm PRO, 800.426.6806
Eugene/Springfield - Zoom Portland - Zoom Care Partner Group Care Partner Group 4th Tue, 1:30 pm 1st Tue, 7:00 pm Carla, 541.515.6604 Jennifer, 503.318.5283
Vancouver, WA - In Person Care Partner Group 1st Mon, 1:00 pm Jan, 360.433.6400 Vancouver, WA - Zoom Care Partner Group 2nd Fri, 1:00 pm Diana, 360.892.1985
“I WASN’T SURE I WAS THE KIND OF PERSON WHO NEEDED A SUPPORT GROUP – I’VE ALWAYS HANDLED THINGS ON MY OWN. BUT FROM THE FIRST TIME I WALKED IN THE DOOR, I FOUND A NEW SENSE OF PEACE AND ACCEPTANCE. I LOOK FORWARD TO MONTHLY MEETINGS AND NOW REALIZE THAT MY PARTICIPATION IS AS MUCH ABOUT WHAT I AM ABLE TO GIVE AS IT IS ABOUT WHAT I TAKE.” ~MIKE
MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG
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This newsletter is published four times a year. Articles published in this newsletter are solely for your information and should not be relied on as medical advice.
PERSPECTIVES Advocating for Yourself Pg 1 Calendar of Events
pg 2
Greg Chaille
pg 5
PD Study
pg 7
Orthostatic BP
pg 8
A Generous Legacy
pg 9
Group Meetings
pg 10
Parkinson’s Resources of Oregon 8880 SW Nimbus Ave Ste B Beaverton, OR 97008 Return Service requested
Non-Profit Org. U.S. Postage PAID Permit No. 145 Beaverton, OR
November is for Caregivers pg 12
CONTACT US info@parkinsonsresources.org
If you would rather not receive this publication, please contact us at 800.426.6806 or info@parkinsonsresources.org
toll-free: (800) 426-6806
November is National Caregivers Month SHARE YOUR STORY WITH OUR COMMUNITY
This November we’ll be sharing stories and experiences from family caregivers in our community. To submit an essay, poem or composition of your experience as a caregiver, or how caregiving impacts you, please connect with Holly. info@parkinsonsResources.org
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MORE INFO! (800) 426-6806 - WWW.PARKINSONSRESOURCES.ORG
9/17/23 3:43 PM