SUMMER 2024
Metabolic Matters YOUR QUARTERLY MSUK MAGAZINE
Contains our Galactosialidosis Feature What is Galactosialidosis? Clara’s Story Meet the ISMRD
An exploration of life, death, and bereavement through community experiences Don’t miss our monthly updates, ways to help, and our 2024 Annual Community Conference Sign Up
Reflections on Grief, Page 9-10 In Memory of a Loved one: Vinnie’s Ball, Page 13-14 Navigating life with a life-limiting condition: a celebration of life, Page 15-16
Your journey: Discussing Death