Rare Diseases Q1 2024 | A promotional supplement distributed on behalf of Mediaplanet, which takes sole responsibility for its content
www.healthnews.ie
“For many, living with a rare disease is a lonely and isolating journey. Diagnosis takes years and, sometimes, even decades.”
“Healthcare services for the rare disease patient population require a level of specialisation and expertise.”
Vicky McGrath, CEO, Rare Diseases Ireland
Inés Hernando, ERN & Healthcare Director, EURORDIS-Rare Diseases Europe
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Advances in science have enabled new life-changing treatments for people living with rare and ultra-rare diseases. Shane Doyle SVP Operations and Sustainability, Alexion, AstraZeneca Rare Disease Read more on page 5
Anna, living with a rare disease.
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