Rare Diseases February 2025 | www.futureofpersonalhealth.com
“Understanding a rare disease, even without a cure or treatment, is incredibly important.”
An independent supplement by Mediaplanet to USA Today
The introduction of new therapies gives hope to the millions of Americans living with rare disorders.
Dr. Tomi Pastinen, Director, Genomic Medicine Center, Children’s Mercy Kansas City
Drs. Lindsay Burrage and Jerry Vockley, American College of Medical Genetics and Genomics
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GERRY LANGAN
The patient advocate and influencer shares what everyday life looks like as a mom with a rare lung disease Read more on Page 04