Ne plasia ISSUE 01/2013
PP9164/ 08/ 2012 (030729)
M aj lis Ka nse r Na si ona l • Na ti ona l Ca nce r Counci l
Enric
stubhbing your or n F
.A.T page
20
s old, Farul, 4 year der, Umar Fariq AKNA Foun M of n so Grand Rafiq cy of Farul ga Le – rid Dato’ Fa
Life Goes On
Visit News & Happenings
TEAM
HOPE Feature Story
WORLD CANCER DAY 2013
COVER STORY
MAKNA Founder’s Run –
A Dream, A Reality, A Legacy Neoplasia Issue01-2013.indd 1
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Ne plasia Issue 1/2013
Feature Story • World Cancer Day 2013
From the President’s Desk
Health Focus 4
News & Happenings • Columbia Asia Cupcake Mania help fund breast cancer patients • October - the amazing month! • Team Hope Letter • Relay for life
5 6 8 11
Statistic
12
Fundraising
• Direct Debit Donor Programme
30
13
Cover Story
• Immunotheraphy – A New Hope?
32
International Division
33
• LuDic • A Visit from Singapore • Makna International Expansions
Services • Majlis Menandatangani Memorandum Persefahaman
36
Life Goes On
38
• Home Visit
Calendar of Event
40
Research
41
MAKNA Founder’s Run – A Dream, A Reality, A Legacy
15
Volunteerism
20
Did you know
43
21
Just Light Humour
44
24
Special Announcement
47
Volunteerism Johor – Jom Bersukarela Volunteerism Selangor – Do Something-touch somebody Volunteerism Perak – Lending A Hand In The Community Volunteerism Perlis – Kekuatan Datang Dengan Sokongan
• Cooling down with Hydrogel patch
26 28
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E
P U E N IAL LI
EDITOR
y rinted b oleh / P k n Bhd ta d e S ic D a 2, abaru r iw J o it n d IEL Fas a lting E asan M ercetak u P w s a n K o , C g/ lan P/8 erundin No.2 Ja gi, ik h Editor P c n l Ehsan a aru Ban w ina Pa andar B gor Daru ll B n tu la a e z S z A r Bangi, rdinato 43650, 8 s / Coo a r la e 925 668 y Pen nah el | 03 8 n T a r p 88 6 p to 1 A a a din 8925 Vemann nt Coor ax | 03 ta F is s s A s/ nyelara ign Pen.Pe ta / Des dn Bhd an urces S Rekacip o s 0, e R Ravivarm l Amir e PJS 5/3 reativ ama r, Jalan MCK C o tan, lo la F Najmi K e d S Jaya 1-2, 2n jendran g 1 a n li it R n i ta U e in nP Kam aganga dvisors Pusat D A / Jaya, t g a n ih ffin Petali ri Penas 0 A 5 1 d 6 ri 4 a l Ehsan ohd F d gor Daru Dato’ M ri n a la F e d S h 80 a Mo 7781 82 s Farahid Tel | 03 tributor , 270 n n 8 o ra 1 C d 8 / 03 77 i Rajen bang | in m x u m a y a F n K Pe nah, a Appan a Gie, Vemann yu aff, Mam lk A d h a, Roha o ik, Imeld h Hasan M c n a w GE ir ina Pa SSA amal Am K Azzatull E i jm a M ad & N NT Muham er be RTA O slett dical P n M new a I s e s a is H m to h l o h jibu ay t ring is Foto / P , Md Ra no w d as offe in here ik v n A I ir t b e a n r ided K e e t v a n d o id y r Anin hed b cons e. The co and is p Never s li b u P . , h/ advic in nature ose only elay in kan ole AKNA) Diterbit ional (M eral tion purp ice or d s n a e you N r g e ans r, rma l adv thing Majlis K nd Floo r info medica of some u o f ro G , d & 05 . gar use disre g it beca ead here BG03A r assy, in b e k m v A e a e n h s Mega ng, n Ampa r 225 Jala u p m uala Lu 50450 K 78 1 9 2 216 Tel | 03 03 2162 92 .my Fax | 03 akna.org m @ a n k ma .my Email | akna.org www.m | e it s b We
www.makna.org.my
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PRESIDENT’S DESK
Dear friends and supporters, the fight continues I am above all, a man on a mission. I have worn many hats; from a loving son, a lawyer, a husband, a father, a reluctant politician, a social entrepreneur and the list goes on. Nevertheless I am always driven by this same desire to see wrongs righted, to help the under-served and to balance the scales of injustice as much as I can. MAKNA came to light to help those stricken with a deadly disease that not only take a life but ruin families as well. MAKNA now leads a large collective and powerful force in the fight against cancer. We however live in an ever changing world. As a social entrepreneur, I am not limiting MAKNA and myself to just the traditional forms of fund raising. The constant theme in my life is to make a difference. I have to keep myself on my toes and the people around me constantly motivated as the number of people who need our help grows each year. We have to keep innovating, keep fighting and keep proving ourselves. Being the first or the leader is no longer enough. I started MAKNA then with a goal and a vision to never let the human spirit down. We in MAKNA are ordinary people doing extraordinary things. We need to do the near impossible to keep on giving back to the people who sorely need help and I start this year with once again thanking you, our donors and partners for your generosity. You keep us strong and you allow us to be innovative in our mission. Thank you for your belief in our mission. Farid
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NEWS & HAPPENINGS
In October, Breast Cancer Awareness Month, private healthcare company Columbia Asia raised RM10,000 for MAKNA. The eight participating Columbia Asia Hospitals are Puchong, Seremban, Taiping, Miri, Bintulu, Nusajaya, Bukit Rimau and Setapak. Each put in a conscientious effort to raise awareness of breast cancer and stress the importance of early screenings. Two Pink Ribbon cupcakes and a Pink Ribbon keychain were sold together at RM10 a set to members of the public. Apart from this, each participating Columbia Asia hospital gave more value to their BCA campaign by adding on extra activities/programmes. Columbia Asia Hospital-Puchong offered free mammograms every Saturday in the month of October. Other activities at other hospitals include women’s health and wellness workshops as well as talks on breast cancer. Throughout the breast cancer awareness campaign, Columbia Asia hospitals worked hand in hand with LPPKN to increase awareness on self-breast examinations and to arrange referrals, following results of mammograms. MAKNA also set up booths on hospital premises to generate more awareness on breast cancer through fact sheets and visual displays. The beauty company for women, Avon, was involved in this campaign too. Taking care of one’s appearance can instil a sense of confidence and empowerment, especially for breast cancer patients and survivors. CEO of Columbia Asia (Southeast Asia), Mr. Kelvin Tan presented a cheque of RM10,000 to MAKNA General Manager, Pn. Farahida Mohd Farid at a cheque presentation ceremony held at Columbia Asia Hospital-Setapak on 8th November. At the event, accomplished singer and breast cancer survivor, Pn. Salamiah Hassan shared her personal experience and entertained guests with a song titled “Wanita”.
Pn. Farahida Mohd Farid, General Manager MAKNA, Pn. Salamiah Hassan, SINGER, Representative from AVON, www.makna.org.my and Mr. Kelvin Tan, CEO of Columbia Asia (Southeast Asia)
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NEWS & HAPPENINGS
OCTOBER – the amazing month! In October, countries around the globe celebrated Breast Cancer Awareness Month. To increase the awareness of the diseases, our staff and working partners went pink for Breast Cancer. The goal was to educate ourselves about many issues related to breast cancer.
MAKNA HQ
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APPCO GROUP ASIA
IKM - PPUKM
ZALORA
www.makna.org.my www.makna.org.my
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NEWS & HAPPENINGS
TEAM Inspiring HOPE Possibilities
If you had 6 months to live, if your very being will cease to exist in 180 days, how would you like to be remembered?
But, what if we were given a definite expiration date? (To be as direct as possible)
What are the memories you would like to hold with you before you bid farewell to the people closest to you?
Every one of us at Team Hope had to deal with Cancer. We were not on the receiving end of the disease, but we were all victims nonetheless. Some have lost family members to cancer and some saw the people closest to them triumph in their battle against cancer. The unifying and common denomination remains the same - We were all victims of cancer. As such, we decided to organize an event to acknowledge cancer patients and survivors alike, of their battle against the disease. The objective of the event was to inspire patients to fight the good fight and live a purposeful life. To realise the possibilities in life once they decide to live passionately. The event was themed “Inspiring Possibilities�.
Often times we are caught in the drift of life, the very breeze that ascertains the way we live. The choices we make reflect the way we are taught to portray ourselves. The idea of living out of the rigid box we call life, is more often than not, unheard of rather unaccepted or even sometimes rebellious.
What will our choices be then?
With the objective in place, we set out to realise this dream and purpose we unanimously believed in. We sought help from MAKNA and well-wishers whom, without their participation, this event would have never come to fruition. There were trials and daunting tribulations. Nevertheless, we persevered as this was for very special people. That statement became our mantra in the days that followed. On the 16th of February 2013, at the break of dawn, the first hot air balloon was launched, with the rising sun as a backdrop, the image painted was stupendous. Droves of people were walking in, registering at the counter, excited at the prospect of the day of fun that awaits them. 8
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crowd. Laughter filled the air. Joy was abundant in every living being at the event. Members of Team Hope were all smiles, their eyes brimmed with tears. Then it happened.; At the very pinnacle of the Twin Peaks Booth, a monstrosity that is 12 feet in height and 8 feet in width, stood a one-legged man, raising his hand in triumph, obviously happy with his achievement. Some of us looked at each other and internalized the experience. From a distance, the sounds of helicopter propellers against the still sky filled the air. Hearts leaped, little screams of joy heard, it truly was a beautiful sight. Participants were seen zipping from one booth to another, riding hot air balloons, helicopters, horizontal bungee runs, bucking bulls. Bands could be heard belting out tunes over the PA system. Celebrities such as JJ from Red FM, Prem from Fly.fm and Michelle and Reem from Astro’s Football Overload were happily mingling with the www.makna.org.my www.makna.org.my
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NEWS & HAPPENINGS We believed the purpose of the event was to inspire the patients to live life to the fullest. We wanted to be the source of inspiration to the patients. But as the day drew to a close, under the scorching Putrajaya sun, a new realisation dawned upon the lot of us; We were inspired. The patients have instilled new belief in us. That regardless of what society or life throws at you, if your intention is clear and your belief is solid, anything is possible. A 12 year old girl wrote on the message board, a note that will forever be etched in our hearts. “Be Happy”. One of our members asked her the meaning behind this message, she merely uttered these words: “If I choose to be happy, I won’t feel the pain”. The wisdom behind those words were beyond her years. Often times, we choose to feel angry or sad when instead, life holds a series
of different, positive choices for us that are readily available should we choose to look at life differently. They say, to change a man’s world, all you need to do is change his eyes. Inspiring Possibilities changed our world, simply because it changed our point of view. Team Hope would like to thank MAKNA, Trident Events, ActiveBugs, Asiaworks and Prema Yin, Peter Ong, Dina Nadzir, Elvira Arul, Junji Delfino, JJ Red FM, Prem Fly.fm, Michelle and Reem from Astro’s Football Overload, Dato’ Soh Chin Aun, all well-wishers and volunteers of the event. The biggest thank you, however, goes to the cancer patients and survivors who participated on that day. You have forever changed the lives of these 11 people. May God bless you always.
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Relay for Life MAKNA staff & volunteers turned up in full spirit to commemorate the Relay For Life Malaysia at the Stadium UKM, Bangi on 13 October 2012.
Cancer organisations bring together passionate volunteers, promote their missionbased activities, and mobilize community members to take action in the fight against cancer.
Teams of people camped out at Stadium UKM and took turns walking and/or running around the stadium track at all times during the event. Because cancer never sleeps, the relay is always an overnight event.
Relay is a moving celebration of cancer survivorship. The event begins with a Survivors Lap in which cancer survivors take a victory lap around the track. A candlelight ceremony is held later in the evening to honor cancer survivors and remember those who we’ve lost to this disease.
Relay For Life is the main volunteerdriven cancer fundraising event of the American Cancer Society. Originating in the United States, the Relay For Life event has spread to 21 countries, an international movement to end cancer.
Relay For Life Malaysia is organised by the National Cancer Society Malaysia (NCSM).
www.makna.org.my
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STATISTIC PPUKM
Report for Month End 31 December 2012 Tengku Ampuan Afzan Oncology Ward/ Wad Onkologi Tengku Ampuan Afzan Number of Patients Admitted at Oncology Ward/ Bilangan Kemasukan Pesakit di Wad Onkologi
Bone Marrow Transplant Ward/ Wad Pemindahan Sum-Sum Tulang
2012 Month
Number of Patients Admitted at BMT Ward/ Bilangan Kemasukan Pesakit di Wad BMT
Number of Patient Days at Oncology Ward/ Bilangan Pesakit di dalam Wad Onkologi
2012
Male
Female
Total
January
43
50
93
February
43
49
92
March
46
48
April
37
May
2012 Male
Female
Total
January
0
5
5
579
February
4
3
7
February
675
March
1
5
6
72
March
732
April
5
2
7
51
99
April
668
May
3
3
6
49
27
76
May
598
June
6
1
7
July
56
38
94
June
498
July
4
4
8
August
43
37
80
July
460
August
5
2
7
September
48
59
107
August
368
September
4
6
10
October
48
38
86
September
438
October
6
7
13
November
35
40
75
October
546
November
7
8
15
December
46
43
89
November
449
December
2
0
2
Total
542
515
1057
December
480
Total
47
46
93
January
53
61
114
January
7
4
11
February
46
41
87
February
4
2
6
Total Casess (Patient Days)
January
94
35
48
June
Month
Total
2013
Month
6491
2013
2013 January
581
February
512
Radiotherapy Services Centre/ Pusat Perkhidmatan Radioterapi Number of Patients/Cases at Radiotherapy Services Centre/ Bilangan Pesakit/Kes di Pusat Perkhidmatan Radioterapi
Number of Transplant Patients/ Bilangan Pesakit Pemindahan Sum-Sum Tulang
Number of Patient Days at BMT Ward/ Bilangan Pesakit di dalam Wad BMT
2012
2012
2012 No of New Patients
No of Treated Patients
No of Treated Cases
January
46
57
870
January
0
January
59
February
38
46
836
February
2
February
79
March
45
52
1029
March
2
March
91
April
38
43
875
April
2
April
77
May
55
58
785
May
1
May
111
June
39
42
975
June
1
June
89
July
51
54
829
July
1
July
83
August
42
48
784
August
0
August
51
September
48
51
712
September
1
September
114
October
63
64
928
October
3
October
159
November
52
57
985
November
2
November
159
December
38
44
1029
December
0
December
69
Total
555
616
10637
Total
15
Total
1141
January
50
56
924
January
2
January
108
February
42
50
732
February
4
February
126
Month
Total Casess (Patient Days)
Month
2013
Total Casess (Patient Days)
Month
2013
2013
12
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ard/ MT
MT Ward/ ad BMT
FUNDRAISING
DIRECT DEBIT DONOR PROGRAMME My Pledge Against Cancer Meet our fundraising people “Hi! I am Isabella. You may have seen me at many
events. My work allows me to meet people everyday, gives me opportunity to speak and befriend many people. Some have time to speak with me, some are in a rush, but it’s alright. My job is tiring, but I love it. It helps to help others.
”
“Dear friends, I am Shahrin Mustapha, thank you for your
donation. It would not be easy for MAKNA to continue with its services without you. Just like clicking the share button on FB, please share with your friends about our work and ask them to join in our plight.
”
“Hello! I am fundraiser Faizal. I know what it is like to have
gone through cancer. Today I have regained my health and became a fundraiser after volunteering my services to MAKNA. You have helped me with funds during my treatment, now it is my turn to help others and I am often blown away with the generosity of people.
”
www.makna.org.my
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FUNDRAISING
Meet our fundraising people “Hi I am Roshaniza. I have been a DDDP fundraiser since
December 2012, before that I was a customer service executive. I love the job, it is very fulfilling and I came across many interesting and wonderful people. I have learnt so much about fundraising over the last months and I feel I have grown so much as a person because of this job.
”
“My name is Lai Poh Chin (Rosalind) and I am a fundraiser.
My work is truly amazing! I can be speaking to hundreds of people and end up with no interested donors. It can be a tiring day not being able to get a donor on board, but looking back, I am consoled; I had an opportunity to share about our work with each and every one I spoke with.
”
“I am Usha, I used to shy away when I meet people. With
a good backing from MAKNA, I am able to carry my duty with confidence. It is a happy day for me when I am able to get a willing donor pledging for monthly donation. I actually see the joy of a cancer patient, because he/she is blessed with an angel.
”
“Hi! I am your fundraiser Sharifah, it is truly a wonderful
experience when people ask me what do I do. When I explain that I am fundraising for MAKNA, it is amazing to see when some straight away get their name down in making regular donation. It makes me feel proud of my job, the kindness and generosity makes me realise how fulfilling my job is.
”
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COVER STORY
MAKNA Founder’s Run –
A Dream, A Reality, A Legacy
by Kamini Rajendran
On the beautiful breezy morning that was 31st March 2013, the space that makes up Padang Merbuk, Kuala Lumpur was filled to its brim and buzzing with activity as participants of the inaugural MAKNA Founders Run were all enthusiastically gathered. Dressed in their best sports attires, accessorized with striking white and purple running vest and of course fuelled by profound anticipation, participants of all walks of life were gathered as early as 6 a.m. in what would be a great celebration of health, fitness and active lifestyles. With as many as 7 categories catered to the estimated 3,200 participants, it was quite the sight to see some participants standing at a mere 3 feet tall surrounded by determined veterans. Instructor from Celebrity Fitness headed the warm up session. Participants were busy preparing their muscles and connective tissues for the challenge that lies ahead and before they knew it, the time for the race had arrived. At 7.00 a.m. sharp the participants of the 12km race were flagged off by Dato’ Mohd Farid www.makna.org.my www.makna.org.my
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COVER STORY Ariffin, Platinum Sponsor TNH Group, cancer survivors and celebrities, Amber Chia, Thanuja Ananthan, Wilson Tan and Shaharuddin Hashim followed closely by the 7km race which began 10 minutes later. Anxious little ones, who by then could no longer hold in their excitement, were flagged off for their 3km fun run at 7.20 a.m. By 8.30 a.m. the supportive crowd could be heard cheering on the participants to the finishing line. Some running, some jogging and some just walking, one by one, they crossed the finish line with a smile on their faces and a sense of accomplishment. The very reason for MAKNA’s existence, is due to the impact cancer has had on Dato’ Farid’s family. At age 17, his only son Farul Rafiq, was diagnosed with Leukaemia and his best shot at recovery was to undergo bone marrow transplant in the UK. Being in the right place at the right time, as the Deputy Minister of Health, Dato’ Farid exhausted all his resources to ensure his son received the best treatment possible. It was while he was undergoing treatment that Dato’ Farid and his family made a promise to God that upon their return to Malaysia, they will set up a cancer organisation and ensure every poor and underprivileged cancer patient, gains access to treatment. With that pledge, MAKNA was founded. Farul made a full recovery from cancer but unfortunately succumbed to lung fibrosis in August 2011.
NA son of MAK s old, Grand Farul, 4 year of Farul Rafiq cy ga Le – Umar Fariq to’ Farid Founder, Da
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Dato’ Mohd Farid Ariffin in his speech thanked the participants, sponsors and volunteers for rising up and joining hands in the fight against cancer. “Each one of you here has contributed in helping boost the morale of cancer patients and remind them that cancer is not a battle that has to be fought alone”. He also added that it humbled him to see so many people gain accessibility to treatment and have their lives changed, all entailing from the passing of his son. The prize giving ceremony took place soon after with Dato’ Mohd Farid Ariffin flanked by sponsors giving away prizes to winners amidst loud cheers by all those assembled. Most notable was the prize giving ceremony of the 3km fun run whereby the winners were chosen by the crowd themselves, to say the crowd was loud and boisterous certainly was an understatement.
The icing on the cake was the lucky draw that saw a participant walk away with 2 return air tickets to any ASEAN destination courtesy of Air Asia Foundation. MAKNA wishes to extend its deepest gratitude to sponsors for their incalculable support in making this day possible: Platinum sponsor TNH Group, Silver sponsor Li-Ning, Bronze Sponsor Sportivo together with ASICS, Milo, Gardenia, 100 Plus, Celebrity Fitness, Personal Fitness Coach (PFC), Pathlab, Healthy Beauty Mall, Restyle, Air Asia Foundation, Nestle Fitnesse, Station One Café, 3thirds Inc, Grabmedia, Pureology, Urban TEE, Shape Malaysia, Men’s Health, iN Publishers, Creative HomeX, ChampionChip, The Marathon Shop, Sekolah Sri Cempaka, TESCO, Jaspal, Salonpas, DBKL and coorganiser White-Shoe Sdn Bhd. With the success of the maiden run, anticipate the return of The MAKNA Founder’s Run to cover more miles and fund more smiles. www.makna.org.my www.makna.org.my
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COVER STORY
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www.makna.org.my
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Enric
VOLUNTEERISM
stubb
hing
your
or n
F.A.T It’s a common saying:
“You are what you think you are”.
Slim, petite, huge, short, tall, small or FAT, the most common words in describing who you are! You have the choice to be the shape you want be, as the above mentioned. Is the word FAT hindering you from looking GOOD and stop enjoying your life to the utmost? In MVM*, FAT is a success PAT’s tool of direction. Consist 3 positive Enriching Letters. Your INNER WISDOM OF: “Feeling, Action, Thoughts” i.e. from LIFE adversity comes WISDOM.
FEELING – Passion with Vision ACTION – Activity with burning desire THOUGHT – Take control
Find out how to BE HEARD at our FREE AND EASY semi-coaching sessions. Monica in HQ, and Arinyitah in Rumah Perantaraan MAKNA Johor are there for you to express your rights of being FAT – a LIFE wisdom and SELF drive holiday. MVM, best deal gateway of volunteerism. FAT test in MVM is the moment your desire to learn OPENS DOORS to touch people’s LIFE. Our quarterly Neoplasia is a reading list to inspire and unleash your enthusiasm. A highly contagious, engaging and extremely powerful force you can use to build relationships and form new frontiers. To be MAKNA’s family, you don’t need any qualification, just a ”Work of Heart” Fuel your success with passion and trust your intuition. Mama Gie Senior Volunteer Coordinator 29/11/2012
*MVM - MAKNA VOLUNTEER MANAGEMENT
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VOLUNTEERISM JOHOR
Jom Bersukarela Oleh: Volunteer Leader Batu Pahat, Johor & Wira Kanser Puan Latipah Saat
Sebagai Volunteer Leader MAKNA kawasan Batu Pahat Johor, saya bersama sukarelawan sentiasa terlibat dalam pelbagai aktiviti sukarelawan. Di sini saya ingin berkongsi secebis aktiviti yang Kak Latipah terlibat dan anjur bersama sukarelawan Batu Pahat Johor yang bermotifkan kesedaran kanser.
OKTOBER
Shopping Mall
Pelepasan
Charity Run
UTM Skud
ai
Sempena Bulan Oktober Kanser Payudara, pada 13 Oktober saya mewakili MAKNA mengikuti program Run for Charity Pesta Konvo UTM Skudai. Lebih kurang 200 peserta termasuk staf dan pelajar-pelajar UTM mengikuti larian sejauh 3.5km di dalam kawasan UTM. Saya juga bagi pihak MAKNA memberi sedikit informasi tentang kanser dan kesihatan sebelum pelepasan larian amal bermula. Lanjutan dari program ini pula pada tarikh 16 Oktober, Malam Prihatin & Forum berlangsung. Acara bermula 9.00 malam
Penulis
Neoplasia Issue01-2013.indd 21
bersam
a MyGc
Pameran MAKN A di Square One, Ba tu Pahat
dengan kata-kata aluan dari Dr. Ismail, UTM. Penerangan tentang kanser diberi oleh Dr. A Radzi, Doktor pakar, pengarah dan consultant dari syarikat Clinical Oncologist & Medical Clinic, Johor Bahru juga mewakili NCSM. Program dipenuhi dengan sessi soal jawab berkaitan kanser dan MAKNA oleh Cik Habiba Abdul Rahman, Outreach Programme Facilitator MAKNA. Sharing moment bersama saya dan dua lagi wira kanser Pn. Zuraida & Pn. Zaleha menarik minat penonton mendalami kesihatan mengenai kanser, kesedaran awal dan cara-cara memberi sokongan kepada pesakit kanser dan keluarga. Sempena Bulan Oktober Kanser Payudara, pada 28 Oktober, kami diundang untuk berbuka booth MAKNA dan terlibat dalam acara kesedaran kanser oleh Pantai Hospital Batu Pahat di Square One Shopping Mall. Saya bersama wira-wira kanser, sukarelawan dan MyGc (MAKNA Youth Gorgeous Club) hadiri majlis tersebut. Kumpulan MyGc terlibat dari ahli-ahli pemuzik remaja, para hadirin terhibur dengan persembahan sukarelawan remaja MAKNA Batu Pahat. www.makna.org.my www.makna.org.my
5/30/13 1:00 PM
VOLUNTEERISM JOHOR
NOVEMBER Saya menghadiri aktiviti lawatan ke Hospital Sultan Ismail, JB, unit rawatan Pesakit kanser dan reflaksi bersama Penasihat Akademik, Dr Noriza Mohd Jamal (Senior Lecturer, UTM Skudai) dan sukarelawan MAKNA Johor. Program ini telah dianjurkan oleh Kelab Perakaunan UTM, Fakulti Pengurusan dan Pembangunan Sumber Manusia UTM, Skudai, Tahun Satu. Pada 25 November 2012, seramai 46 pelajar telah mengikuti program bertujuan membuka minda mahasiswa tahun satu mengenai cabaran serta masalah yang dihadapi oleh masyarakat sekitar serta memberi input dan kesedaran serta penekanan mengenai cara mengawal tekanan serta emosi dalam kehidupan apabila menghadapi permasalahan berkaitan kesihatan. Kami melawat Wad Kanak-kanak 8C Hospital Sultan Ismail disusuli “sharing experience with MAKNA”. Sumbangan
ai pelajar UTM Skud Bersama pelajarn Ismail, JB di Hospital Sulta
sebanyak RM247 diserahkan kepada pihak MAKNA oleh pelajar yang mengikuti program tersebut. Aktiviti merangkumi mewarna, penyerahan buku-buku bacaan dan cenderahati untuk pesakit kanak-kanak. Saya sebagai wira kanser juga giat terlibat dalam usaha Home Visit (mengunjung rumah pesakit kanser). Dalam usaha ini, bekas pesakit kanser En. Ahmad Md Amin menjemput saya bagi tujuan ceramah tentang kanser dan kesedaran dirumah beliau di Air Hitam. Kehadiran terdiri dari adik beradik, saudara mara dan jiran beliau.
ga ngan keluar ngalaman de Md Amin ad Berkongsi pe m Ah . dan jiran En
Apa lagi, sekarang dah hujung November dan pada 16 Disember pula, kami sibuk dengan urusan Walk for Charity yang akan diadakan di Dataran Penggaram Batu Pahat. Saya dibantu oleh secretariat Pak Mokhtar Wasikon (bekas pesakit kanser), Zuraida Ahyat, Masliza Dugel, Norul Izzah Hj Khamsan, Shaznoor Shafilaz, suami saya En. Saharuddin Shawal dan Penyelaras Rumah Perantaraan MAKNA Johor (RPMJ) Puan Arinyitah Janam.
DISEMBER Aktiviti jalan ini dinamakan “Walk For Charity & Hore-Hore after SPM”. Hore-Hore after SPM sebab, bolehlah sukarelawan remaja dapat bersukaneka dan rasa stressfree selepas peperiksaan SPM. Mahu tidak budak SPM rasa stress mengulangkaji pelajaran, saya penuh stress mencari sponsor untuk menjayakan acara ini. Mujurlah, secretariat sangat komited. Pada 15 Disember 2012 program berkisar
kepada Lepak Santai berhibur bersama Live Band The Greatest G60’s. Pada masa yang sama di adakan kutipan derma ikhlas oleh pengunjung yang bersantai di Dataran Penggaram dan BP Walk. Booth Sukarelawan MAKNA juga dibuka bagi memberi penerangan tentang kanser. Pada 16 Disember 2012 seawal jam 7.15 pagi program Walk For Charity dimulakan dengan pendaftaran, senam seni/aerobic
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bersama Kelab Cergas BP Care, SHA Fitness dan Kelab Jelita Parit Raja. Di ikuti pelepasan oleh Senior Manager MAKNA Mr. Vemanna untuk memulakan Walk For Charity, trek adalah sepanjang Dataran Penggaram mengelilingi Tasik Y sejauh lebih kurang 6km. Acara diteruskan dengan band performance dari MyGc, cabutan bertuah di selangseli dengan sharing moment dan penganugerahan Blue Vest kepada bakal Volunteer Leader yang dikenal pasti adalah ‘next line of leaders‘ yang akan mengembangkan network sukarelawan. Sempena Hari Sukarelawan Sedunia yang jatuh pada 4 Disember lalu, Blue Vest dianugerahkan di acara ini oleh Mr. Vemanna turut dikendalikan oleh Mama Gie, Penyelaras Kanan Sukarelawan. Majlis perasmian penutup program pula oleh Dato’ Noraini Binti Hj Ahmad, Ahli Parlimen Parit Sulong. Lebih-kurang 200 orang menyertai program Walk For Charity, antaranya adalah Miss Monica, Miss Lim, Miss Ng dan Cik Aishah dari Ibu Pejabat MAKNA, KL, Kelab Kecergasan BP Care, Kelab Jelita Parit Raja Batu Pahat dan SHA Fitness, Skudai Johor Bahru, Pelajar tahun 1 Fakulti Perakaunan Universiti Teknologi Malaysia, Skudai Johor Bahru, Pelajar Kelab Khidmat Masyarakat Universiti Tun Hussein Onn Malaysia, Parit Raja, Batu Pahat, wira-wira kanser dan kaum keluarga dikalangan pesakit kanser daerah Batu Pahat, orang-orang awam dan persendirian yang menyokong program ini.
Wal
di Persek k for Charity
itaran Datara
n Penggara
m
Penulis berkon
gsi pengalam
an
Ribuan terima kasih kepada para sponsor iaitu; Evergreen Fibreboard, Pt Raja, BP, AW Electronic, Maple Tricot, Tongkang Pecah, BP, Adabi Batu Pahat, 1Malaysia Printing, Kelab Cergas BP Care, Kedai Runcit Chop Teck Hong, Ain Evergreen Mini Market, UTHM Caterer (Milda Catering, Gumama Catering, Mak Mah Catering, Tasik Biru Catering, Sharina Berkat Catering & ERZ Lasha Catering), Pejabat Daerah Batu Pahat, Majlis Perbandaran Batu Pahat & JKR Daerah Batu Pahat, Ibu Pejabat Polis Daerah Batu Pahat (Traffic), Jabatan Tenaga Kerja Batu Pahat, Pejabat Kesihatan Daerah Batu Pahat & Sukarelawan MAKNA Batu Pahat. Akhir kata, terima kasih MAKNA atas kepercayaan MAKNA dan memberi saya peluang untuk berkhidmat dengan menyumbangkan tenaga kesukarelawan dan berjasa untuk kebaikan komuniti. Selamat Menyambut Tahun Baru 2013!
Sukarelawan
menerima
anugerah Bl
ue Vest
Kami berjaya kutip derma sebanyak RM2,391 www.makna.org.my www.makna.org.my
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VOLUNTEERISM SELANGOR
Do Something, touch somebody by Vemanna Appannah, Senior Manager, MAKNA
Mr. PC Jacob Mathews, 69 is someone you may have known for a long time, and this gentleman who hails from Banting, needs no introduction. He is known for his social services long before some of us were even born. Today, the fire in him is still going strong. Being a cancer survivor himself, he has dedicated his retirement time to continuously indulge in social work apart from spending time with his daughter, sons, daughter’s in-law, son in-law, grandchildren and his beloved wife, Mrs. Sally. Volunteerism is his second nature per se, and that is the very reason he is deemed our “Excellence” volunteer. On 30 December 2012, he and his committee organised the 12km Morib Run open to all Malaysians. The 8 category, 12km run attracted over 2,000 runners; some seasoned runners and some, amateurs who ran for the joy of it. At every opportunity, Mr. Jacob spreads the importance of cancer awareness and during the Morib Run, A MAKNA booth was
Mr. PC Jaco
b Mathews
set up to do just that. Children were curious and some were shocked to see cancer related items and photos on display. The curiosity got them engaged with the topic of cancer and that lead to many questions being asked to which Mama Gie (Fadzilah Wan, Senior Volunteer Coordinator) answered to all their inquisitive curiosity. There are many lives that Mr. Jacob has touched, and one in particular is 16 years old Darvin Raaj whom Mr. Jacob had nurtured out of cancer. Mr. Jacob was his mentor, he stood beside Darvin’s family at their most trying times; Darvin was being treated for cancer, his mother, treated for kidney failure, his father had lost his job and both parents had to care for 2 other school going children. To make matters worse, just one week before Darvin’s UPSR examination, his mother passed away. This proved to be of no hindrance to Darvin who is determined to become a doctor. He scored 7A’s in the UPSR examination despite all the trials and tribulations he went through during the examination. His achievements’ did not stop there, in last year’s PMR, he scored 8A’s.
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VOLUNTEERISM SELANGOR Another great help that had seen a mixture of happiness & sorrow is Puan Hasni Ngah who passed away peacefully in August 2010 leaving behind 4 children under the care of their grandmother. While battling breast cancer, Mr. Jacob along with his wife, Mrs. Daisy were Puan Hasni’s pillar of strength and hope in ensuring her children are well taken care off after her departure. They coaxed Hasni to continue with her treatment which she had once denied. All these help comfort her at the end stages of battling cancer. One thing that remains fresh in the mind of Mr. Jacob is Hasni’s funeral. Mr. Jacob and his team were a little delayed and would have missed bidding their last farewell when the hearse had left to the burial grounds. But mysteriously the hearse stalled and that required her remains to be transferred to another van. In the process of transferring, Mr. Jacob and team were able to meet the remains halfway and were able to pay their last respects. There is no explanation of why and what had happened, but the irony is the hearse that stalled unknowingly started with a click of the ignition after the van left with Hasni’s remains. The villagers then commented “Mr. Jacob, Hasni waited for you”. God works is different ways. Now, the children continue living with their grandmother and receive assistance from SOCSO for their education which Mr. Jacob had once promised Hasni.
In 2003 Mr. Jacob touched the life of a 39 year old father with 5 school going children. Mr. Ananthan Munusamy’s treatment for Colon Cancer was too much for him to bear. Mr. Jacob was able to refer him from a private hospital to a government hospital. This was a great relief to Mr. Ananthan and his family. Now, after 10 years, Mr. Ananthan is – happy to see his 2 daughters married and the others continuing with their studies. “Mr. Jacob whom I have known for many years is the kind of – person one will come across only once in their lifetime – a blessing.”, expressed Mr. Ananthan and his wife Vanaja. “MAKNA had been an inspiration to me. MAKNA has allowed me to share my knowledge and experience with others and give care to cancer patients and their families - in which I find comfort in doing so”, said Mr. Jacob. There are countless people out there who are in dire need of help. Reach out and extend your hands to them, you never know how a simple gesture may completely change a person life. Like Mr. Jacob, there is so much that we can do – touch the lives of the needy.
Darvin Raaj
Neoplasia Issue01-2013.indd 25
(first from le
ft) with his fa
ther
www.makna.org.my
5/30/13 1:00 PM
VOLUNTEERISM PERAK
Lending A Hand In The Community by Azlina Abdullah, Volunteer Leader Perak & Breast Cancer Survivor
Cancer Support Group A
In August, we lost 2 of our dear friends to cancer; Tan Jee Yen (43 years old) & Teh Ai Chew (52 years old). They were both battling Breast Cancer. Jee Yen’s cancer had spread to her bone and lungs. Both of them were strong fighters, we shared our ups & downs together with other members of the Taiping Cancer Support Group. We are made up of survivors, members of their families & the medical team of Hospital Taiping. Taiping Hospital generously hosts our Support Group every 2nd Tuesday of the month. The Cancer Support Group organises daily Chi Kung sessions at Lake Gardens lead by volunteer survivor, Ms. Lim Sow Eng (Breast Cancer) after which we enjoy “yum cha” over breakfast at Kedai Kopi Prima, Jalan Kota Taiping. Weekly, we move to the beat and rhythm while indulging in ChaCha sessions lead by Mr. Tang Bak Hiang (multiple cancer survivor i.e. colon, lung and stomach). We
Home visi
t, Penang Sigmoid C olon Cancer@liv er mestasi s
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meet at Ms. Lim Sow Eng’s house monthly when counselling is required and always remind ourselves to have some fun too. As and when a new case is detected, especially when it is a depressed new comer, we dash ourselves there for moral support. We work closely with the Taiping Palliative Care Group (headed by Dr Ong and assisted by S/N Veronica Liew) and take patients for hospital appointments should it be required. When Tan Jee Yen & Teh Ai Chew passed away, their respective families received RM5,000 and RM1,000 for funeral expenses respectively. Being exposed to some beneficial insurance policy which gives a reasonable sum for a minimum of RM30 a year, we collectively decided to subscribe to it. Tan Jee Yen was a single mother and has an only son who is currently taking his SPM and lives with his maternal grandmother who has exhausted her savings during Jee Yen’s last days. Tan Jee Yen’s mother was so relieved with the assistance received which will benefit her grandson’s studies. Teh Ai Chew has a family of 3 children with the oldest being a son who is now in University, 2nd a daughter doing her STPM and the youngest girl is in form 1. Her husband works in a sundry shop at Padang Rengas. Till then, Azlina.
The Volunteer Cancer Support Group’s meeting schedule IPOH, PERAK
Hospital Raja Perempuan Bainon, every 1st Monday of the month @ Day Care Hospital Ipoh.
TAIPING, PERAK Hospital Taiping, every 2nd Tuesday of the month @ C1 Hospital Taiping
KULIM, KEDAH Hospital Kulim, every 2nd Monday of the month @ Klinik Pakar 2 Hospital Kulim High Tech
SG PETANI, KEDAH
Hospital Sultan Abdul Halim, every 1st Sunday of the month @ Klinik Pakar Bedah
PENANG
Hospital Loh Guan Lye, every 1st Thursday of the month Note: The Taiping Cancer Support Group operates since 2008 under the supervision of Azlina. For assistance at Northern Region Azlina can be contacted at 013-524 2060. You Can Lend A Hand In The Community Too.
Tan Jee Ye
n’s mothe r, Madam Chang Sie RM5,000 cheque & w Eng rece RM1,000 iving funeral ex penses.
Neoplasia Issue01-2013.indd 27
ing RM5,000 husband receiv es. Teh Ai Chew’s funeral expens 00 1,0 RM & cheque
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VOLUNTEERISM PERLIS
Kekuatan Datang Dengan
Sokongan
Oleh Pn. Norizan Yahya, Volunteer Leader Perlis & Wira Kanser
14 hb September 2012 merupakan tarikh yang dinanti-nantikan oleh 39 orang wira kanser dan sukarelawan yang menyertai Program lawatan Tautan Kasih Sukarelawan Negeri Perlis ke Kelantan dan Terengganu. Tujuan program ini adalah untuk menghargai penat lelah sukarelawan dalam kerja-kerja mengumpul dana dan membantu pesakit-pesakit, di samping menjalin hubungan silatulrahim di antara pesakit dan sukarelawan bagi Negeri Perlis, Kelantan dan Terengganu. Program ini juga dilihat dapat mendedahkan kepada pesakit dan sukarelawan bahawa masih ada insan
yang perihatin terhadap mereka dan sentiasa menghulurkan tangan untuk membantu dan menyokong setiap aktiviti-aktiviti yang di rancang. Pesakit di kalangan kanak-kanaklah yang begitu teruja apabila di bawa menaiki cruise menyusuri sungai untuk melihat keindahan dan replika masjid-masjid di sana. Sinar kegembiraan jelas terbayang di wajah-wajah kecil yang selama ini murung menjalani berbagai rawatan bagi melawan kanser yang di hidapi. Ketabahan mereka langsung tidak menunjukan kesakitan yang mereka tanggung secara fizikal.
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Program selama 3 hari 2 malam ini, banyak memberi manfaat kepada mereka yang begitu bahagia, apabila dapat bersama-sama teman senasib dan dapat berkongsi pengalaman dan meluahkan perasaan sesama mereka sebagai satu keluarga. Secara tidak langsung dapat meringankan keperitan yang pernah mereka lalui sebelum ini. Program sebegini tidak mungkin menjadi kenyataan tanpa sokongan dari MAKNA. Sekalung penghargaan dan terima kasih yang tidak terhingga dari semua pesakit dan sukarelawan Negeri Perlis buat MAKNA yang telah meluluskan aktiviti ini dibawah pengawasan saya Pn. Norizan Yahya bersama sukarelawan Perlis.
Sebagai seorang sukarelawan MAKNA, saya sungguh bangga atas kepercayaan yang diamanahkan oleh MAKNA kepada saya. Terima kasih juga kepada kumpulan Support Group Perlis atas sumbangan tenaga kesukarelawan anda dan sentiasa bersama saya menjayakan programprogram kesedaran kanser di kawasan Utara Malaysia, Perlis.
Saya menjemput orang ramai sudi datang dan melibatkan diri dalam aktivitiaktiviti sukarelawan yang banyak memberi manfaat ketulusan dan kemurnian membuat kerja amal. Pada bulan Mei 2012 saya mendapat peluang untuk mengaturkan Program Saringan Kanser Dan Mammografi MAKNA peringkat Negeri Pelis. DYMM Tuanku Raja Perempuan Perlis, Tuanku Tengku Fauziah Binti Almarhum Tengku Abdul Rashid telah berkenan untuk mencemar duli serta merasmikan Program Saringan tersebut di perkarangan Dewan Residensi, Kangar, Perlis. www.makna.org.my www.makna.org.my
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FEATURE STORY
WORLD
CANCER DAY 2013 We, at MAKNA take the helm of eradicating cancer myths on a daily basis and to continuously raise awareness of cancer and how to prevent, detect or treat the disease, beyond the annual observance of the World Cancer Day on 4th February every year. This year’s topic of interest revolved around debunking the four most common myths of cancer namely:
1. Cancer is just a health issue Truth: Contrary to the common belief, it is not just a health issue, because it has wide spectrum of social, economic, development, and human right implications. This probably holds true more so for developing countries.
2. Cancer is a disease of the wealthy, elderly and of developed countries Truth: Cancer is almost a global epidemic, occurs in all age groups and people of all economic strata without discrimination.
3. Cancer is a death sentence Truth: That cancer is a death sentence, no longer holds true. Many cancers are curable even if they spread to distant parts of the body from their site of origin and most cancers are also curable if detected early.
4. Cancer is our fate Truth: Causes and risk factors of many cancers are now known. About 35% of cancers are related to smoking, alcohol and unregulated life style. Therefore, emphasis should be put on prevention of cancer by avoiding risk factors and regular screenings. As mentioned, cancer is a huge burden not only on individual health but it also carries with is far reaching family, social, national and global implications. More attention should be put on prevention of cancer. The first step in the area of prevention can be achieved largely by adopting four simple measures - Cessation of smoking or consuming tobacco in any form, a healthy diet and regular exercise, reducing or completely avoiding intake of alcohol and protection against infections causing cancer. In simple words to sum it all up “Take care of yourself” 30
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CANCER DID YOU KNOW?
A survey was conducted in the month of February in conjuction with World Cancer Day 2013, which focused on 4 myths. It was a collective effort to improve general knowledge and dismiss misconceptions about the disease. Almost 500 people participated in and the around Klang Valley area.
YES 36.4%
NO 63.6%
NO 65.1%
YES 34.9%
CANCER IS JUST A HEALTH ISSUE
CANCER IS A DEATH SENTENCE
(Kanser melibatkan masalah kesihatan sahaja)
(Kanser umpama dijatuhkan hukuman mati)
More than 300 people have said NO to this Myth
311 people have said NO to this Myth
NO
NO
Cancer is not just a health issue. It has wide-reaching social, economic, development, and human rights implications.
YES 11.9%
NO 75.1%
NO 88.1%
CANCER IS A DISEASE OF THE WEALTHY, ELDERLY AND DEVELOPED COUNTRIES (Kanser adalah penyakit bagi golongan kaya, tua dan penduduk negara maju)
421 has shown their disagreement towards this statement. The highest number compared to other Myths, WHY?
NO
Many cancers that were once considered a death sentence can now be cured and for many more people, their cancer can be treated effectively. YES 24.9%
CANCER IS MY FATE (Kanser adalah satu takdir untuk saya)
Only 119 people have agreed to this Myth. WHY?
NO
With the right strategies, a third of the most common cancers can be prevented.
Cancer is a global epidemic. It affects all ages and socio-economic groups, with developing countries bearing a disproportionate burden. www.makna.org.my www.makna.org.my
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HEALTH NEWS
Immunotherapy - A New Hope? However, such tumour-specific antigens have been hard to find, and so many of the immune agents now in use do target healthy cells as well. Results in the last couple of years have excited cancer specialists. But the timing could hardly be worse.
Most of us know someone who has had to cope with a diagnosis of cancer, with the treatment, and then with the worry that it might return. In recent years, treatments have made real improvements, but often it is still a matter of prolonging life by just a few months. Now, at last, some scientists are daring to hope that one approach might lead us to our best hope of a cure. Traditionally cancers are treated with surgery, chemotherapy and radiotherapy In the last two years, attention has turned to a form of cancer treatment called immunotherapy. This aims to turn the power of our own immune systems against tumours. Until recently, immunotherapy has been a poor relation to more traditional approaches, such as chemotherapy and radiotherapy. Most cancer patients are treated with some combination of surgery, radiation, and chemotherapy. Radiation and chemotherapy have the disadvantage of destroying healthy as well as malignant cells and thus can cause severe side-effects. What is needed are more precisely-targeted therapies. One long-held dream is that the specificity of immune mechanisms could be harnessed against tumour cells. Ideally, these agents would be targeted to molecules expressed on the cancer cells but not on healthy cells.
Positive results have begun to come in just as the world’s financial systems started to wobble, and the usual sources of money have become less easy to find. Venture capitalists, charities and governments not only have less money to spend, but they are less prepared to spend it on “risky” bets - including unproven cancer therapies. The problem is, not only is it increasingly hard to find money to pay for such research, but also to find the money and the partners to make sure it gets out in to small and large scale trials in patients, and beyond into the commercial world as treatments. Britain’s largest cancer charity has found it so hard to secure money and partners that it has set up its own cancer investment fund. In Malaysia, MAKNA is lucky to have the support of so many kind-hearted donors but it is not going to rest on its laurels but continuously seek new growth areas to support new studies and battlefronts in the war against cancer. One of the major problems facing cancer treatment today is that patients develop resistance to even the best in cancer drugs. They need a new weapon, and many scientists believe that harnessing the power of our immune systems is their best hope. Source: 1. Cancer immunotherapy: moving beyond current vaccines: Steven A Rosenberg, James C Yang, and Nicholas P Restifo 2. www.nytimes.com/2012/12/17/opinion/new-cancertreatments.html
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INTERNATIONAL DIVISION
Ain Society:
A Visit from Singapore
On the 26th of February, MAKNA welcomed to its office Ain Society; an NGO based in Singapore and works in the field of volunteering and focuses its services to support the disadvantaged. Ain Society was founded in the year 2000 in the northern part of Singapore by 12 veteran activists. The Society hopes that individuals can continue to contribute to the community and provide value-added services to the Malay residents in the northern part of Singapore. It hopes to also fulfill the service gaps, as many of the social services agencies that cater to the Malay community were often in the eastern region of Singapore.
Present during the meeting were the CEO of Ain Society Haji Md Yusof Ismail, Director of Projects Ms. Saemah Ali, and Executive Officer Ms. Noorsyafiaton Sharun. The meeting started by covering an orientation of both NGOs core services and thereafter transcendent to an exchange of ideas that would possibly be beneficial to both counterparts and their respective communities. Recently MAKNA has appointed a new Branch Manager to be in charge of our projects and activities in Singapore, the collaboration with Ain Society has been propelled to be of utmost importance, and future meetings would define the exact agenda of the partnership.
From left to right: Habiba Abdul Rahman, Matheus Barrachi, Dato’ Mohd Farid Ariffin, Haji Md Yusof Ismail, Saemah Ali, Noorsyafiaton Sharon.
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MAKNA
INTERNATIONAL EXPANSIONS
Cancer incidence is rapidly rising and the disease is becoming the number one killer in Southeast Asia. Although this trend can be observed in other regions around the world, the situation here is worsened by economic conditions and a lack of proper welfare structure to cater to the needs of an evergrowing population of individuals affected by the disease. Together with ordinary Malaysians from all walks of life, MAKNA
hopes to inspire extraordinary change and give people affected by cancer renewed hope in life. In order to tackle cancer’s reality, we are taking this battle to the entire region of Southeast Asia. With your kind donation, MAKNA will embark on new initiatives to raise awareness and help patients outside the borders of Malaysia while continuing our numerous ongoing initiatives.
www.makna.org.my www.makna.org.my
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SERVICES
Majlis Menandatangani Memorandum Persefahaman Antara Yayasan FELDA dan MAKNA
Alhamdulillah, dengan izin-Nya Majlis Kanser Nasional (MAKNA) telah pun genap mencapai usia 19 tahun semenjak penubuhannya. Sepanjang 19 tahun penglibatan MAKNA dalam usaha memerangi kanser, pelbagai kaedah, strategi dan perancangan telah diusahakan di dalam memberi kesedaran kepada masyarakat tentang penyakit kanser, di samping pelbagai aktiviti pengumpulan dana bagi membantu pesakit kanser yang miskin dan tidak berkemampuan. Sejak tahun 1994 hingga kini, MAKNA telah membelanjakan hampir RM197 juta dalam usaha memerangi penyakit kanser dan juga membantu pesakit-pesakit kanser yang miskin di Malaysia. Hampir 300,000 kes-kes kanser telah dirujuk dan mendapat manfaat sepenuhnya dari MAKNA. Kes-kes
tersebut dirujuk daripada 88 hospital-hospital kerajaan diseluruh Malaysia. Adalah menjadi hasrat MAKNA untuk bergandingan dengan badan kerajaan di dalam memberi kesedaran tentang bahayanya penyakit kanser dan seterusnya dapat meminimakan kadar penyakit kanser di kalangan kaum wanita yang semakin hari semakin tinggi jumlahnya. Sehubungan dengan itu MAKNA telah mengadakan satu program yang memberi perkhidmatan kepada seluruh rakyat Malaysia yang berisiko tinggi terutamanya wanita di kawasan luar bandar. Program Saringan Bergerak Kanser Payudara MAKNA merupakan satu program yang menggabungkan elemen kempen saringan kanser untuk kaum wanita yang berusia 40 tahun ke atas melalui kaedah
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mamografi dan juga kempen kesedaran kanser payudara. Kempen ini dijalankan dengan menggunakan treler yang dilengkapi dengan mesin mamogram bersama tenaga kerja professional. Program seumpama ini merupakan satu-satunya program yang terdapat di Malaysia. Terima kasih di ucapkan kepada penaja utama kami iaitu MNRB Holdings Berhad dan Yayasan Tenaga Nasional yang telah menyumbangkan sebanyak RM1.6 juta bagi merealisasikan program ini. Setelah mendapat kelulusan sepenuhnya daripada Kementerian Kesihatan Malaysia, program ini telah mula beroperasi sepenuhnya pada tahun 2011. Setakat ini 24 lokasi telah dijelajahi di Semenanjung Malaysia termasuklah Selangor, Melaka, Negeri Sembilan, Johor, Terengganu, Kelantan, Perak, Kedah, Pahang, Perlis dan Kuala Lumpur. Sebanyak 2,166 peserta wanita telah melakukan ujian mammogram manakala 2,947 peserta lagi telah menjalani pemeriksaan klinikal. Setiap program ujian saringan yang dirancang akan dilaksanakan sepanjang 3 hingga 4 hari di setiap lokasi. Ujian saringan kanser payudara ini diberikan secara percuma kepada wanita yang mempunyai pendapatan isirumah kurang daripada RM3,500.00 sebulan. Keutamaan bagi menjalani ujian kanser payudara ini akan diberikan kepada golongan yang berisiko tinggi dan mempunyai sejarah keluarga yang menghidap kanser. Bagi wanita yang mempunyai pendapatan isirumah yang lebih daripada RM3,500.00 sebulan, bayaran sebanyak RM150 akan dikenakan. Manakala golongan wanita
yang berusia di bawah umur 40 tahun, ujian pemeriksaan klinikal akan diberikan oleh jururawat terlatih MAKNA. Golongan lelaki juga tidak ketinggalan, boleh juga menjalani pemeriksaan klinikal tersebut. Jutaan terima kasih di atas sumbangan pihak Yayasan FELDA untuk menaja 24 program di lokasi-lokasi terpilih FELDA bagi tahun 2013. Program Saringan Bergerak Kanser Payudara ini akan dimulai di Ibu Pejabat FELDA, Jalan Semarak diikuti di Pendang, Kedah dan seterusnya akan menjelajah keserata kawasan FELDA di Semenanjung Malaysia. Sehubungan dengan itu MAKNA ingin merakamkan setinggi-tinggi penghargaan kepada Yayasan FELDA dan semua pihak yang terlibat terutamanya ahli jawatankuasa yang telah bertungkus lumus bagi menjayakan Majlis Memorandum Persefahaman (MOU), diantara YAYASAN FELDA dan MAKNA. Semoga dengan termeterainya kerjasama ini, seluruh warga FELDA akan mendapat manfaat sewajarnya disamping dapat meningkatkan lagi kesedaran tentang bahaya penyakit kanser kepada seluruh rakyat Malaysia secara amnya.
www.makna.org.my
Neoplasia Issue01-2013.indd 37
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LIFE GOES ON
Visit OLEH: NOORLIAMERA BT JOHAR, PELAJAR PRAKTIKAL (NOVEMBER 2011-MAC 2012)
Pada tanggal 22 Februari 2012, pertama kali saya sebagai seorang pelajar praktikal melawat seorang pesakit kanser bersamasama dua orang Home Visit Team dan seorang dari International Division. Sebagai orang baru, tidak ada apa yang saya dapat jangkakan pada kali pertama melawat pesakit kanser. Pesakit bernama Asiah Binti Hussain, berumur 48 tahun merupakan seorang suri rumah sepenuh masa. Tinggal di kawasan Semenyih, Selangor dan pencarian agak menyukarkan kerana kami gagal menghubungi pesakit kerana beliau sudah menukar nombor telefon. Alhamdulillah, kami berjaya mencari rumah pesakit berdasarkan alamat yang diberikan. Beliau disahkan menghidap barah payudara pada tahun 2009 oleh doktor yang memeriksa beliau. Pertama kali bertemu, beliau menghadiahkan senyuman kepada kami dan kami tidak menyangka beliau adalah pesakit kanser yang kami cari kerana dari riak wajah beliau tidak menunjukkan bahawa beliau menderita penyakit yang paling digeruni oleh kaum hawa pada masa kini. Tinggal di rumah flat yang serba sederhana, sudah cukup bagi beliau serta anak-beranak. Membuka cerita bagaimana beliau di sahkan menghidap barah payudara (kiri), beliau menceritakan titik-titik perubahan pada diri beliau. Puan Asiah terasa ada benjolan kecil yang timbul pada payudara sebelah kiri dan di bahagian ketiak semasa
beliau sedang mandi. Hal ini menyebabkan Puan Asiah berasa tidak selesa dan telah berjumpa dengan doktor untuk pemeriksaan yang lebih lanjut. Melalui pemeriksaan yang dijalankan, doktor mengesahkan bahawa beliau menghidap barah payudara. Bagai terhenti masa berputar, Puan Asiah menerima segala takdir dengan hati yang redha. Beliau menerima rawatan sebagai pesakit kanser di Hospital Kajang, Selangor. Melalui pembedahan, beliau telah membuang benjolan yang berada di sebelah kiri payudaranya. Puan Asiah juga menjalani rawatan radioterapi sebanyak 21 kali dan juga kemoterapi. Ujian datang bertandang lagi apabila suami yang diharap dapat memberikan sokongan kepada keluarga menghancurkan harapan Puan Asiah sekeluarga. Suami beliau mengahwini perempuan lain dalam masa dirinya memerlukan seseorang untuk menjaga dan memberi harapan kepada Puan Asiah dan anak-anak. Dengan berbekalkan semangat yang ada pada anak-anak, Puan Asiah meneruskan kehidupan demi tiga orang anak yang disayangi. Mengambil upah sebagai pengasuh dengan menjaga anak jiran, Puan Asiah menyara diri serta anak-anak yang masih bersekolah. Melalui pendapatan sebanyak RM500 sebulan, beliau menampung perbelanjaan sekolah anak-anak sedangkan suami beliau tidak mengambil tahu tentang mereka. Melalui
inisiatif
yang
diambil
oleh
38
Neoplasia Issue01-2013.indd 38
5/30/13 1:01 PM
LIFE GOES ON pihak hospital, Puan Asiah telah memohon sumbangan kepada MAKNA melalui Jabatan Kerja Sosial Perubatan. Dengan bantuan serba sedikit dari MAKNA, Puan Asiah dapat menampung perbelanjaan keluarga. Puan Asiah merasakan ada sinar dari bantuan yang diberikan kepada mereka sekeluarga. Melalui pengalaman ini juga, saya menasihati orang ramai di luar sana agar menghargai anugerah kesihatan yang bernilai ini. Kita tidak dapat menjangka apa yang akan berlaku akan datang. Mungkinkah kita pesakit kanser yang seterusnya atau ahli keluarga kita. Selain itu, kita perlulah menghargai orang yang berada di sekeliling
kita. Janganlah kita mensia-siakan kehidupan mereka yang memerlukan kita pada saat mereka memerlukan sokongan yang padu dari kita untuk melawan penyakit yang berbahaya seperti kanser ini. Pengalaman ini membuatkan saya bersyukur kerana diberi peluang untuk samasama merasai, melihat dan mendengar segala rintihan pesakit kanser seperti Puan Asiah. Bekerja bersama MAKNA telah memberi saya seribu satu pengalaman yang mungkin tidak dapat dirasai oleh orang lain. Tiada pengalaman yang menarik selain dari belajar dari pengalaman sendiri dan orang lain.
LAPORAN PESAKIT Kami melakukan lawatan ke rumah pesakit yang bernama K. Manimaran A/L V. Karuppiah pada 23 Jun 2012 pada jam 11.55 a.m. Kami di sambut mesra oleh isteri pesakit dan mempelawa kami ke rumah beliau. Sewaktu kami tiba di rumah pesakit, beliau baru pulang dari kedai berdekatan dengan rumahnya. Pesakit berusia 46 tahun, berbangsa india. Beliau di diagnoskan kanser usus. Keadaan pesakit stabil dan sihat ketika lawatan kami ke rumah. Pesakit telah menjalani pembedahan pada Januari 2011. Pesakit juga telah melengkapkan chemotherapy (mayo’s regime) dengan 6 kitaran di HKL pada tahun lepas dibawah pemerhatian Dr.Zabedah. Pesakit meneruskan rawatan susulan di Hospital Serdang dan akan melakukan CT scan pada 18.9.2012. Beliau tinggal bersama isteri, ibu, dan ayah beliau. Beliau tidak bekerja, hanya mengharapkan pendapatan daripada isteri beliau
NAMA: K .MANIMA RAN A/L UMUR: 46 V.KARUP TAHUN PIAH DIAGNO SED: KAN SE R USUS ALAMAT: NO19 JA LAN SB IN OFF JALA DA N BALAK ONG 4330 H 1/5 TAMAN SG . BE 0 SERI KEM BANGAN SI SELANGO R
yang hanya mengambil upah mengasuh anak saudaranya manakala ayah beliau mengalami lumpuh dan tidak sihat sepenuhnya. Perbelanjaan seisi rumah sebanyak RM800-RM1000 sebulan. Beliau tidak menerima sebarang bantuan daripada mana-mana badan kebajikan yang lain. Pesakit hanya menerima bantuan daripada MAKNA sebanyak RM150 sebulan bermula dari Januari 2012 sehingga sekarang. Laporan Disediakan Oleh: 1) SN Rahmah Binti Ali, 2) SN Salamah Binti Sulong, 3) SN Winnie A/P Francis www.makna.org.my www.makna.org.my
Neoplasia Issue01-2013.indd 39
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CALENDAR OF EVENT 2013 PROGRAMMES SCHEDULE AS OF MAY - UPCOMING EVENTS
MAY No
EVENT
DATE
LOCATION
STATUS
158
Mobile Screening & Exhibition
2 - 3
Felda Kemahang 2, Kelantan
159
MPAC
2 - 3
THE WELD
C
160
MPAC
3
SJK © KELPIN
C
161
MPAC
6
SJK (C) KAMPUNG BARU MAMBAU
C
162
MPAC
6 - 10
TROPICANA MEDICAL CENTRE
T
163
MPAC
6 - 11
NILAI MEDICAL CENTRE (NCI)
C
164
Homevisit
7 - 18
165
Cancer Awareness Exhibition & Events (V)
166
MPAC
HOSPITAL PORT DICKSON
C
167
Cancer Awareness Exhibition & Events (V)
9
Kota Samarahan Sarawak
C
168
Cancer Awareness Exhibition & Events (V)
10
Kampung Melugu Skim, Sri Aman Sarawak
C
169
Cancer Awareness Exhibition & Events (V)
11
Debak Kuching Sarawak
C
170
MAKNA Introductory Programme & Activities
11
MAKNA HQ, Jalan Ampang, Kuala Lumpur
C
171
Cancer Awareness Exhibition & Events (V)
11
Park Avenue Sungai Petani Kedah
C
172
Cancer Awareness Exhibition & Events (V)
12
Kampung Engkilili Kuching Sarawak
C
173
MPAC
174
Cancer Awareness Exhibition & Events (V)
175 176
8 8 - 10
13 - 17
C
Johor
C
Kampung Paai Kota Samarahan Sarawak
C
HOSPITAL SELAYANG
C
13
Sri Aman Sarawak
C
Volunteer Meet & Events
13
Pertubuhan Johore I Care Batu Pahat Johor
C
Cancer Awareness Exhibition & Events (V)
14
Kampung Lalang Betong Sarawak
C
177
Hospital Support Group Meet & Events
15
Hospital Sarikei Sarawak
C
178
Cancer Awareness Exhibition & Events (V)
15
Balai Polis Sarikei Sarawak
C
179
Volunteer Meet & Events
15
Pejabat Majlis Agama Batu Pahat Johor
C
180
Cancer Awareness Exhibition & Events (V)
16
Bintangor Sarawak
C
181
Hospital Support Group Meet & Events
17
Hospital Sibu Sarawak
C
182
Volunteer Support Group Meeting
17
MARDI Cameron Highlands Pahang
C
183
Homevisit Caoching & Events
18
Sibu Sarawak
T
184
Cancer Awareness Exhibition & Events (V)
18
Kompleks Penghulu Sg. Balang Muar Johor
C
185
Cancer Awareness Exhibition & Events (V)
19
Kampung Titis Hilir Mukah & Rh. Andrew Mukah Sarawak
C
186
Cancer Awareness Exhibition & Events (V)
20
Taman Seri Telian Mukah & King Wood Mukah
C
187
Cancer Awareness Exhibition & Events(V)
21
Bunu Skrang Sri Aman Sarawak
C
188
MPAC
21 - 24
HOSPITAL TUNGKU AMPUAN RAHIMAH
C
189
MPAC
21 - 25
PANTAI CHERAS
C
190
Cancer Awareness Exhibition & Events(V)
22
Kampung Hulu Sri Aman Sarawak &
KRT Jiran Wanita Sri Aman
C
191
Cancer Awareness Exhibition & Events(V)
23
Rumah Bau Jambar Kuching Sarawak
C
192
Cancer Awareness Exhibition & Events(V)
24
Universiti Malaysia Sarawak Kota Samarahan Sarawak
C
193
Cancer Awareness Exhibition & Events(V)
25
Kampung Tengah Sri Aman Sarawak
C
194
Cancer Awareness Exhibition & Events(V)
26
Kampung Hilir Serian Sarawak
C
195
Cancer Awareness Exhibition & Events(V)
27 - 31
196
Volunteer Meet & Hospital Support Group
28
Universiti Malaysia Sarawak, Kota Samarahan Sarawak
C
Hospital Sultan Ismail Johor
C
JUNE No
EVENT
DATE
LOCATION
STATUS
197
Exhibition & MPAC
6
Kementerian Belia Dan Sukan, Putrajaya
C
198
Exhibition & MPAC
7
Kolej Setiawangsa, Setiawangsa, Kuala Lumpur
C
JULY No 199
EVENT
DATE
Exhibition & Talk
LOCATION Leno (Mindy)
STATUS T
SEPTEMBER No 200
40
EVENT
DATE
Klimb for Kancer 2013 - Mount Kinabalu NOTE: C - Confirmed Programs T - Tentative Programs CSG- Cancer Support Group
Neoplasia Issue01-2013.indd 40
21-24
LOCATION Kota Kinabalu, Sabah
Cop - Community OutReach Program MPAC - My Pledge Against Cancer CA - Cancer Awareness V - Volunteer Program
STATUS C
VSG - Volunteer Support Group RA - Recreational Activities MDAS - Malaysian Dietician Association Scientific
5/30/13 1:01 PM
S
RESEARCH
Cooling down with Hydrogel patch
of the H2O Cooler Patch. When apply, the non-gauze side becomes warm when the hydrogen molecules produce resonance reaction, resulting in heats being drawn out from the inside body. While the gel turned cool due to resonance reaction caused by independent oxygen molecules being released into the body. The patch is bio active, and contains large amount of oxygen most needed by the body metabolism. These oxygen molecules also help to improve blood circulation, supplementing water to the body and speedily expel toxins from the body.
The patient’s body cells normally die off substantially after undergoing chemotherapy and radiotherapy, which could lead to inflammation in many cases. Most patients would experience high fever and other uncomfortable symptoms as well. H2O Cooler Patch would be ideal as it could speedily release heat from inside the body, while the body would be hydrated and filled with rich oxygen. As such, patients would feel cooling, soothing, relaxing and calm after use. A good night’ sleep is just what they need at the end of the day. H2O Cooler Patch is a 3D net-liked bio gel patch made by 100% pure sago extracts, with 80% of its contents are water. After 12 years of relentless R&D and clinical tests, our research team has successfully separated the hydrogen and oxygen molecules by using high tech equipment and applying the molecular resonance effect technology. These independent (single) molecules are then locked tightly inside the net structure
The benefits of this wonder gel patch is not limited only to those affected by cancer hence is highly recommended in each household as it comes in handy with its fever-relieving properties. As a gesture of goodwill towards MAKNA’s, the manufacturing company ie Rumbia Bio-Tech Sdn. Bhd. wish to donate 5% from the gross sales of H2O Cooler Patch to help poor cancer patients in Malaysia. Prospective customers are encouraged to log on to http://www.esllon.com/H2OCooler-Patch-H2O%E5%87%89%E8%B4%B4/ q?pid=4&doit=order to enjoy a 10% discount available for a limited time only. MAKNA’s Member Discount Coupon ID for Esllon H2O Cooler Patch (30Pcs) Packing ID No. 13576966705593.
www.makna.org.my www.makna.org.my
Neoplasia Issue01-2013.indd 41
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MATCHSTICK PUZZLE
Overlapping or breaking of matchsticks or
“loose ends” are not allowed. Puzzle #1 : Move three matchsticks, and make the fish turn around and swim the other direction.
Puzzle
#2 : M ov only fo e two matc h ur ide ntical sticks to ma squar ke es.
three Move three : 3 # e Puzzl ks to make nd tic s h es (a c t ma squar ). l a c i t e iden ing els noth
matchstick puzzle : ANSWER
42
Neoplasia Issue01-2013.indd 42
Puzzle #1 Move the faint matches in this diagram Puzzle #2 Only two matchsticks were moved. Puzzle #3 Only three matchsticks were moved.
Puzzle #1
Puzzle #2
Puzzle #3
5/30/13 1:01 PM
.
DID YOU KNOW
You can play secret Agent or Set a
SCAVENGER HUNT GRID SECRET CODE This secret code is easy to set up, and its great practice to use coordinates. Each letter is represented by a row letter (A-E) and a column number (1-5). Two letters have to share a space i.e. I and J, since they would not be easily confused in a word. The grid codes take a little extra time to write, but are quick to solve.
Here is a sample.
C1.A5.D4.D3 B2.A5.D4 B4.A3.A5 A3.D2.A5.A1.C2! L
E
T
S
G
E
T
I
C
E
C
R
E
A
M!
Now, try this‌ C2.C4.D4.B3.A5.D2
B4
C1.C4.E1.A5
E4.C4.D5
Here is another code‌ D5.C3.A4.A5.D2
E4.C4.D5.D2
A2.A5.A4, A1
D2.A5.A4
A2.C4.E3
And now, get a pen and paper, and start your own secret code. This secret code is suitable and fun game for both children and adults. Stretch yourself out of computer games. Interesting game to get children acquainted and have fun during a birthday party or a get together.
or a good surprise!!!
Parents, if you are planning for a surprise gift or reward to your child, you may want to consider drawing out a secret code. This takes a little bit more planning and time, get your child engaged in a fun search. Have the last clue lead to a cool treat, a surprise gift or a special movie. Use different codes on each clue to keep your kids on their toes! Adults! Try this on your next annual dinner, get together, and company outdoor activity. It is suitable for indoors too!
www.makna.org.my www.makna.org.my
Neoplasia Issue01-2013.indd 43
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JUST LIGHT HUMOUR
ATTENTION EVERYONE!!
ce In an offi r...... t o f o rd e Toilet ou or below o fl e s u Please
fo Clo
In a laundromat: Automatic washing machines: please remove all your clothes when the light Goes out
Seen d uring a confere For any nce one wh o h a s childr and do en esn’t kn o w it, there a day c is a re o n the 1st floor
ce ty In an offi uld emp o h s f f ta wn b re a k s side do p u After tea d n ta ot and s b o a rd the teap raining D e th n o
Notice in a farme r’s field The farm er allow s walkers cross the to field for free, but the bull cha rges.
44
Neoplasia Issue01-2013.indd 44
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Notice in health food sho p windo w Closed d ue to illn ess
On a rep air shop door We can repair a nything. (Please knock h a rd on the door - th e bell do esn’t wo rk)
s: es
In a lond on departm ent store Bargain baseme nt upstairs
mpty down
Spotted in a safari park Elephan ts please stay in y our car
ce In an offi step took the o h w n o g it e pers ase brin le Would th p y a d ken ester ladder y will be ta s p te s r r furthe back O
Outside a secon dhand s We exch hop ange an y th in g washing - bicycle machine s, s , e tc bring yo . W h y not ur wife a long and get a wonder fu l bargain ?
www.makna.org.my
Neoplasia Issue01-2013.indd 45
5/30/13 1:02 PM
JUST LIGHT HUMOUR
Advertisement RATES to advertise in our Neoplasia
Full Page
1/2 Page Horizontal
1/3 Page Horizontal
Rate: RM 2,500 Size: 150 (w) x 210 (h) mm
Rate: RM 1,500 Size: 150 (w) x 105 (h) mm
Rate: RM 1,400 Size: 150 (w) x 70 (h) mm
Technical Requirements • JPG / AI / PDF Format • Ai / illustrator - Text must be outlined and saved together with high-res pictures with pictures embedded. • All format must be at least - 300 dpi pictures and / or embedded pictures in Ai • Films are not acceptable
For more information please contact:
Mr. Vemanna Appannah vem@makna.org.my or Mr. Najmi Kamal najmikamal@makna.org.my Tel: +603 2162 9178 Fax: +603 2162 9203
46
Neoplasia Issue01-2013.indd 46
5/30/13 1:02 PM
Special Announcement
ybhg dato’ fre ida mohd p i lus
mr. pc j acob mathews
as st honorary s ecretary makna
volunteer excellence makna
Dea r Y Bhg Dato’ Freida Mohd Pilus, Asst Honora ry Secreta ry MAKNA & Mr. PC Ja cob Mathews, Volu nteer Excellence MAKNA, As you have inspired others, you have added mea ning to life too… Congratulations on the Distinguish “Tokoh Gu ru” Awa rd! Y ou a re truly a mentor & a role model. Y ou a re a n inspirer. Best wishes, MAKNA President & Ma nage ment
www.makna.org.my
Neoplasia Issue01-2013.indd 47
5/30/13 1:02 PM
Thank You Sponsors Organizers
Online Registration Partner
Official Personal Fitness Coach
Official Airline
Official Leisure Cafe
Official Goodies Bag Sponsor
Platinum Sponsor
Official Race Partner
Official Prize Sponsor
Official Medical Device
Digital Advertisement Media
Silver Sponsor
Bronze Sponsor
Official Healthy Official Nutritious Official Isotonic Bread Chocolate Malt Drink Drink
Official Hair Salon
Official Health Care Centre
Official Magazine
Official Healthy Cereal
Co-Sponsor
Official Out-of-Home Media
Official Fitness Centre
Supported by
Participants, volunteers and everyone who made the inaugural MAKNA Founder’s run a success Neoplasia Issue01-2013.indd 48
5/30/13 1:02 PM