OurLegacyToday Spring2016
Legacy Community Health Services Board of Directors Beth Bruce Chairperson
Amanda Goodie Vice-Chairperson
Lauren Soliz Secretary
Glenn Bauguss Treasurer
Glenna Pierpont
At-Large / Executive Committee
Sehba Ali Beryl Basham Tony Bravo George Burch Dr. Abigail Caudle Victor Cordova, Jr. Cyndy Garza Roberts Bryan Hlavinka Alex Jessett Bethsheba Johnson Alton LaDay
Legacy Community Health Endowment Board of Directors Claire Cormier Thielke Chairperson
Tripp Carter
Vice-Chairperson
James A. Reeder, Jr. Secretary
Mike Holloman Treasurer Michael Alexander Joshua L. Espinedo Melanie Gray,
Board Member Emeritus
Bryan Hlavinka Melissa Mithoff,
Board Member Emeritus
Monsour Taghdisi,
Board Member Emeritus
Brent N. Whiteley
Legacy Partners with Rice University to Document the Personal Stories of Houston’s AIDS Epidemic The first person in Houston was diagnosed with what is now known as AIDS in 1981, shortly after the Montrose Clinic was incorporated as a non-profit to assist the gay community. In the 35 years since that grim milestone, that clinic has become Legacy Community Health, and the old fear of AIDS being an automatic death sentence is, for many, a distant memory. Preserving those memories is now the goal of a new initiative documenting the history of those tumultuous years in Houston and Southeast Texas. The Oral History (OH) project is bringing together first-person accounts of people directly affected by the HIV/AIDS epidemic: the survivors, their friends and families, the medical professionals and volunteers on the front lines, and the activists who fought the government for funding, research, and acceptance. “Anybody who was part of the AIDS epidemic in the late 80s and 90s knew not to count on the government,” says Tori Williams, one of those early activists and co-founder of the OH project. ”We changed the bed linens in the public hospitals, we fed patients, and even made sure people wouldn’t die in their homes alone. We have to capture that time to remember, to honor those people who went before us and learn from it. This crucial period, and the epic struggle endured by those with AIDS, should not be lost to time.” Sarah Canby Jackson of the Harris County Archives had already been documenting the history of the county’s Ryan White Planning Council, which manages the federal funds earmarked for primary care services for underserved people with HIV. Both she and Tori recognized the opportunity to capture a broader history beyond a simple retelling of events. This important effort could become a everlasting part of the HIV/AIDS academia. “It wouldn’t do any good to have a project like this floating around, without any reputable support,” says Sarah. “It needs context; it needs a permanent home.” Lee Pecht, the Director of Special Collections at Rice University’s Woodson Research Center, added this missing cornerstone to the OH project by facilitating an agreement to house the collection there. “I’ve had many
Carmon Brian Keever displaying some of the memorabilia collected during his years of HIV and LGBT activism
friends who died from AIDS-related complications. The project is perfect for Rice.” With the addition of Legacy Community Health and the Montrose Center as founding partners, the OH project now has three volunteer interviewers collecting oral histories. The first person interviewed was Legacy employee and long-time LGBT activist Carmon Brian Keever. “In the early 80s there was still a cowboy mentality. You didn’t hold your boyfriend’s hand in public,” says Brian. “You’d even park your car several blocks away from the gay bars so the police didn’t know where you were going. People need to know how dangerous it was for gay people to simply live their lives just 30 years ago.” Brian became a familiar face in the gay community, working as a bartender and entertainer, and writing for This Week in Texas magazine. And then came the diagnosis in 1986. He had AIDS. Doctors told him he’d be dead by 1988. Brian wanted to make the time he had left count. Bri He protested when Louie Welch, campaigning against former Houston Mayor Kathy Whitmire, was overheard on an open TV microphone joking that one way to control AIDS was to “shoot the queers.” He marched in Washington and was arrested on the steps of the Supreme Court. He was a patient at the nation’s first AIDS hospital in Houston and participated in six HIV medication research trials. “We all had little pill boxes with beepers and every four hours the beeper would go off to remind
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Lee Pecht, Sarah Canby Jackson, and Tori Williams in the collections storage area at Rice University’s Woodson Research Center
you to take your medicine,” he recalls. “I went through an entire black book of friends dying, often going to funerals weekly. I kept fighting so hard because nothing was getting done.” Back then, Brian never imagined he’d still be alive today, one of the long-time survivors who now has a story to tell. It’s not been an easy road, and the years of toxic HIV medications have taken a toll on his health. He worries about today’s generation ignoring the lessons of the past. “Young people hear about ‘Stonewall’ and they just think of a bar. They don’t know it’s important because riots there back in 1969 were the beginning of the LGBT rights movement, or they don’t care. All they know is Gay Pride Week is a time for parties, raves, and having fun,” he says. ”They don’t know about the history.” Brian’s story is one of seven already shared with the Oral History project. Lois J. Moore, the former head of the Harris County Hospital District is another, as are activists Shirley Lewis, Pete Rodriguez, and community leader Frank Staggs. Even today, there is still one interviewee
who requested anonymity. Despite the progress made in the past 30 years, an HIV diagnosis or association with AIDS is stigmatized. “There are issues usually not involved with other oral history projects,” says Sarah. “Interviewees can hold back interviews and/or audiotapes for a specific amount of time, for a predetermined number of years or upon death for example. These are policies and procedures to deal with these issues we think are important.” The team plans to document 100 interviews in the next three years. Future plans include uploading interviews to the Center’s website and adding relevant papers, clippings, and memorabilia. Legacy has already committed to sharing some of its literature and educational mementos of the period. The Oral History project will be open to the public later this year, but Lights of Legacy members will have an opportunity to tour the Woodson Center during a preview reception. The project team is also accepting recommendations for interviews at http://tiny.cc/oh_referral.
HIV and AIDS Today: The Fight Isn’t Over In February, Houston Mayor Sylvester Turner was front and center during the annual AIDS Walk Houston, leading hundreds of people on a meaningful walk along Allen Parkway. This year’s event was a far cry from the loud, sometimes aggressive protests and activism that marked the height of the AIDS epidemic. “Back in 1991 when Magic Johnson announced he was HIV positive, we saw and met the demand for dozens of middle school public health presentations each month,” says Amy Leonard, Legacy’s Vice President of Public Health. “We do about one per month now, and that’s simply not enough. Part of the reason for this is that people aren’t diagnosed or dying from AIDS at the rate they used to. However, this doesn’t mean the need for education has gone down. We now face a new struggle: how do we impress upon educators and students that they need to learn all they can about this disease even if their risk is lower than it was 30 years ago?” HIV is now managed as a chronic disease, with people living longer than before. The addition of PrEP (preexposure prophylaxis) drug treatment has greatly reduced the risk of transmission to people without HIV. And while the annual number of new HIV diagnoses in the U.S. has hovered around 50,000 over the past five years, the growing number of new diagnoses among minority communities indicates an alarming trend. The Centers for Disease Control reports that a staggering one in every two African-American gay men will be diagnosed with HIV in their lifetime. Among Hispanic gay men, it’s one in four. For Caucasian gay men, it’s one in eleven. The group most at risk: young African-American men between 13 and 24. “We can’t be apathetic about it,” says Leonard. “These are target populations who may not have health literacy, insurance, or the resources necessary to access and pay for care. They need to know about getting tested and what’s available to lower their risk.” Legacy has always been at the forefront of HIV research and treatment. Last year we launched a campaign for PrEP awareness . We’ve seen a surge in people coming in for PrEP – not only gay men wanting to protect themselves against HIV, but women in a relationship with an HIV positive man, hoping to safely become pregnant. “We’d like to see more African-American gay men learn about PreP and where to access treatment, because they’re at higher risk. More than twice as many of our Caucasian and Hispanic clients are on PrEP as African-American,” says Leonard. A Spanish-language marketing effort for PrEP is in the works, as is one focusing on African-Americans. Legacy’s mSociety advocacy group is on the ground with one-to-one community intervention, bringing treatment and prevention options to those who most need it. “Back then, AIDS dramatically impacted the social and emotional lives of so many, that people understood it was a problem.” Leonard says. “It scares me to think that we could fall into such a state of apathy with our younger generation—those who didn’t experience the early days of the epidemic firsthand—that I worry it would take people dying again for all of us to stand up and pay attention.”
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Wesley Thomas Peter Thompson, M.D. James Daniel Thompson Jennifer Thompson Becca Cason Thrash and John Thrash, M.D. Lizzette Tienda Veronica Tirado Sarah Tobola Today’s Respiratory, LLC David Todd Tony’s Corner Pocket Tootsies Laura Torgerson Nicola Fuentes Toubia John Sidney Trahan Charles N. Tranchant Tara and Shane Treleaven Phoebe and Bobby Tudor Tod Tully Debra A. Tummins Martha F. Turner and A. Glenn Bauguss, Jr. Karen Turner-Smith Lynne Tyer and Doug Simmons Susan Tyree United Airlines United Healthcare United Way of Galveston United Way of Greater Houston United Way of Greater Philadelphia & SNJ United Way of Metropolitan Chicago United Way of Metropolitan Dallas Carole and Gary Utrecht Elizabeth Vail Karyl Misrack Van Tassel Hallie Vanderhider Mark Vanderleest Natalie N. Vanek, M.D. Jeffrey VanZuyt Veronica Vasquez Jason Vaughn Jaime Vergara, D.D.S. Vinson & Elkins LLP Jason Vo Jennifer Vogel The Walkers Janet and Tom Walker Frederic C. Warner, Jr. Richard Watson and Robert Harwood Tracey Watt and Michael Barbato Brenda and David Weathers Lou Weaver Mary and Temple Webber, III Sherry Weesner Kelli and John Weinzierl Michael Weiser Gregory Whitton Whole Foods Market Doris Williams and Jeff Ross Sheridan and John Eddie Williams Joanne and Welcome Wilson Dena and Christopher Winkler Kelly and Chris Woelfel Cyvia and Melvyn Wolff Larry Wood William G. Woodford Carol Wyatt-Woodell and Sallie Wyatt-Woodell Diana Wynne and Robert L. Wynne, D.D.S. Fairlee Yelton Jessica and Christopher Young Jeffrey Young Tom Young William Mark Young Your Total Foot Care Specialist Zayver Jewels Brittany Zucker
Memorials &Tributes Sharon Adams Thomas M. Aimar, III Gayle Alstot Michelle Barrera Iliana Barrera Sophia Barrera and Ian Barrera Elise Monae Bazan Jim Benton-Henningson and Jeff Benton-Henningsen Chree Boydstun Scott Bradley Susan Brohkin, Tonya Countryman, David Garver, and Thomas Taylor Timothy Brookover Beth Bruce Donnesha Bryant Shirley and Robert Bucks, Susan and Tom Bucks, Pam and Mike Ferraro Mike Burton Katy Caldwell Robert Campbell, M.D. Caylee Isadora Canonico
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Joe C. Carrabba Gayl Cole Martha Alice Cooke Renita Cooksey Eduardo Cordova Richard Corkern Debbie Costello Alan Cranfill and Jerry Williams Kaitlyn and Kaicee Crowley Katie Daggett Dalton DeHart Bill Dodson Jeevan Dwarakanath Cathy Easter and Lori Swann Harold Farb Lisa Foronda Jan and Roger Gilbert Robert E. Gray Phil Guevarra John Harvel Eric J. Haufrecht, M.D., C. Richard Stasney, M.D., Victor Fainstein, M.D.
H-E-B, Soraya and Scott McClelland, Cyndy Garza-Roberts Cliff Helmcamp and Jerry Jeanmard Sara Herrera Stephen Charles Kalenda Jim Kovach Legacy’s Development Department Lucinda and Javier Loya Roland Maldonado, M.D. Lorrie Markarian Timmy Martinez, Helen Martinez, J.R. Martinez L. Joel Martinez Douglas Meredith McDugald Judi McNall Nina Medlock Jack Parker Jim Bob Paul Jim Reeder and Eric Nevil Gwen Ribb Lia Rodriguez, M.D. Zishan Samiuddin, M.D. James Sikorski
Emma Sinasac Sara Sinasac Joseph P. Smith Ian Smith Kathy and Jeff Smith Society for the Performing Arts Jewel Stokes Cameron Taghdisi Monsour Taghdisi Those battling HIV and addiction Hannah Todd Ulises and Hari Torres Phoebe Tudor Martha Turner Clive Watson Martha Whiting Vivian Wise Robert Wynne, D.D.S. Art Yelton
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New Pediatric Program Promotes a Healthy Lifestyle for the Whole Family Legacy Bissonnet Clinic is testing a 10-week program to treat childhood obesity brought on by unhealthy eating habits. The Healthy Lifestyles Clinic, based on recommendations from the American Academy of Pediatrics, uses a multidisciplinary approach to treat the many factors contributing to this issue. Forty percent of our young patients are considered obese (85% of their recommended body mass index). For example, an eight-year old child who should be around 50-60 pounds is instead between 80-100 pounds,” said Dr. Meghana Samant. “At that young age we’re seeing high cholesterol, and many have pre-diabetes. They can’t keep up with other kids while playing because they get short of breath.” Dr. Samant knew something needed to be done to prevent these childhood problems from developing into long-term adult health conditions. She partnered with Legacy’s Susan Brokhin, Yessika Lopez, and Paola Guerra to create a pilot program for a group of 12 patients between eight and 11-years old. Participants were selected based on the severity of their obesity and their motivation to make positive lifestyle changes. One participant, nine-year-old Helen Lopez, has pre-diabetes. “I don’t want this becoming a problem for her later in life,” said her mother Jocelyn. “Our family has a history of diabetes, so it’s better that she learns healthy habits now.” During the weekly meetings, parents learned about healthier, inexpensive eating choices and meal selections for the whole family. The children had group therapy that included games and videos to explore behaviors that may contribute to poor eating habits. The families all learned about the important role exercise plays in improving overall health. “I was really surprised about how much sugar was in my soda,” said
Jocelyn Lopez and her daughter Helen with some of the materials from the “Sugar Shock” class
Helen, holding up a bag containing 13 sugar cubes. “I’ll pay more attention to what I’m eating and drinking. Plus, I just got a dog, so I’m getting exercise when I take her for a walk!” The Healthy Lifestyles Clinic’s effectiveness is being measured during six months of post-program tracking to determine: 1. if the children decreased their rate of weight gain, 2. if they lost weight, and 3. if the follow-up lab test results were in a normal range. If successful, the program could be expanded to an ongoing initiative for all families who wish to participate.
James Lee and Rita Sirrieh
Link 2 Legacy Link 2 Legacy held a reception at our Montrose clinic to kick off our new young professionals’ initiative. Participants learned about Legacy, its mission, and how they could participate in driving healthy change.
Link 2 Legacy Advisory Committee members Baine Herrera, Jason Black, Lauren Soliz, Susan Brokhin, and Chloe Rushing Christopher Budzise and Caroline Montondon
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Legacy’s Little Readers During the first year of our Little Readers program, our providers gave away more than 7,000 books during well-child visits. The Barbara Bush Houston Literacy Foundation helped us furnish and stock reading corners in our pediatric clinics, and H-E-B established the Little Readers Endowed Fund.
One of the Little Readers Corners at Legacy Southwest
Legacy Lyons
Mapleridge Barbara Bush Houston Literacy Foundation President Julie Baker Finck (center) presented a $5,000 donation to Legacy Chief Medical Officer Dr. Ann Barnes (left) and Legacy CEO Katy Caldwell (right).
In celebration of Dr. Seuss’s birthday and Read Aloud Month, Legacy staff and volunteers read Seuss classics to our youngest patients. Head to http://bit.ly/Legacy_Seuss for a video of some of the festivities! Dr. Demitra Ramos-Patel at Legacy Mapleridge
Kids Health Day in Beaumont Legacy Beaumont partnered with the Beaumont Public Health Department, Free Zumba, H-E-B, and Gulfside Dental Beaumont for Kids Health Day at Lucas Pre-K.
Lucas Pre-K teacher Charla Bergeron, Legacy Champion of Wellness
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Urban Garden at Lyons Marcus Glenn, Farmer Joe Icet, Care Team Assistant Nohemi Samuel, Medical Assistant Tremendous Thompson, Health Educator Karen Palma, and Population Health Nurse Marlene Cohn
Legacy Lyons clinic staff partnered with the Last Organic Outpost to create the Fifth Ward Health Education and Health Literacy Community Garden. Farmer Joe Icet of the Last Organic Outpost helped prepare the grounds with fertile soil, and Marcus Glenn from the Prairie View A & M Agricultural Extension program spoke about the power of healthy food. The garden will be a hands-on learning lab for the Fifth Ward Community.
Link 2 Legacy members volunteered to spread new soil for the garden. Pictured are Andrew Sosa, Austin Jacobs, Samantha Davis, Natalie Tran, Baine Herrera, and Chloe Rushing
Pictured are Legacy CEO Katy Caldwell, Empress Angela Mercy, and Emperor Susan Hayes.
ERSICSS Legacy was honored to be chosen by ERSICSS as one of its beneficiaries for 2015. Dozens of events over the year raised more then $15,000 for our Body Positive Wellness Program, one dollar at a time.
Heart of Fashion Vivian Wise (R) presented Legacy’s Chief Development Officer Chree Boydstun with a $33,000 check from the Heart of Fashion event. The three night “party with a purpose” showcased some of the nation’s most talented designers and their newest collections.
Creating Change Legacy’s Public Affairs Specialist James Lee and Community Relations Manager Russell Etherton attended this year’s Creating Change Conference in Chicago. Their presentation, “Leading the Way to Progressive Health Care,” highlighted Legacy’s internal policy implementation, advocacy, and community outreach.
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Nonprofit Org. U.S. Postage PAID Houston, TX Permit No. 1886
P.O. Box 66308 Houston, TX 77266-6308
April 14 2016 Lights of Legacy Celebration at the home of Kari Findley & Ken Sill Celebrate the success of Lights and renew your commitment to 2016! Meet Legacy’s providers and leaders to learn how we’re working toward a healthier Houston. lights@legacycommunityhealth.org 832-200-7150
May 7 Derby Day, the official kickoff for Mint Julep
July 17 The 14th Annual Mint Julep Show at South Beach
Cheer on the horses of the Kentucky Derby as we kick off our annual Mint Julep show. Wear your most fashionable hat for an afternoon of friends, fun, and games.
High heels, big hair, and lots of bling! Mint Julep brings together some of Houston’s top LGBT entertainers for an afternoon of outrageous performances. Proceeds benefit Legacy’s HIV/AIDS prevention, treatment, and support programs.
Chloe Rushing, events@legacycommunityhealth.org (832) 730-4433
Chloe Rushing, events@legacycommunityhealth.org (832) 730-4433
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September 14 Legacy Luncheon at the Wortham Theater Save the date for our 14th annual luncheon benefitting the Legacy’s Little Readers program. We’re building the home libraries of our youngest patients with free books and “a prescription to read” at all well-child pediatric appointments. Chloe Rushing, events@legacycommunityhealth.org • (832) 730-4433
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