Dedication
This fifth edition of the Oxford Textbook of Palliative Nursing is dedicated to Nessa Coyle PhD, RN, co-editor of each of the previous four editions of this textbook. While Nessa is not an editor for this book, her career contributions are evident in every chapter and her wisdom is well reflected in her chapter in this edition, “Advocacy in Palliative Nursing.”
A textbook such as this is only possible once a field has evolved to the point of having both scholarly work and clinical experience to share. Nessa has been a pioneer in both of these worlds, a true clinician scholar who has lived the work of palliative nursing at the bedside while also contributing some of the most insightful scholarship that defines palliative nursing.
This year (2018) marks Nessa’s 60th year as a nurse. Her pioneering work in cancer pain management helped advance not only the pharmacologic approaches to care, but also the palliative care
rendered by the nurses at the bedside to ease the profound suffering of people living and dying in pain. Nessa was one of the first nurses to teach us about the existential aspects of palliative nursing and our role in supporting patients and families through grief, spiritual distress, and a search for meaning during serious illness. Her qualitative research provided insight for generations of nurses and other professionals as she shared the worlds of the real experts— patients—and the lessons they teach us about this field we know as palliative care.
We dedicate this 5th edition to Nessa. Every section and every chapter within it are a testament to her influence on nursing. Through her gentle yet profoundly strong voice, we have been guided to deliver the care described in these pages.
Betty Ferrell
Judy Paice
Preface xiii
Acknowledgments xv
Contributors xvii
SECTION I
General Principles
1. Introduction to Palliative Care 3
Betty Rolling Ferrell
2. National Consensus Project for Quality Palliative Care: Assuring Quality Palliative Care through Clinical Practice Guidelines 5
Constance M. Dahlin
3. Hospital-Based Palliative Care 13
Patricia Maani-Fogelman
4. Principles of Patient and Family Assessment 32
John D. Chovan
5. Communication in Palliative Care: An Essential Competency for Nurses 55
Constance M. Dahlin and Elaine Wittenberg
6. Advance Care Planning 79
Shigeko Izumi
SECTION II
Symptom Assessment and Management
7. Interdisciplinary Palliative Care Teams: Specialists in Delivering Palliative Care 89
Polly Mazanec, Rebekah Reimer, Jessica Bullington, Patrick J. Coyne, Herman Harris , II, Mary Catherine Dubois , Catherine Rogers , and Jennifer Aron
8. Pain Assessment 98
Regina M. Fink , Rose A. Gates , and Kate D. Jeffers
9. Pain Management 116
Judith A. Paice
10. Fatigue 132
Edith O’Neil-Page, Grace E. Dean, and Paula R. Anderson
11. Anorexia and Cachexia 140
Elizabeth E. Schack and Dorothy Wholihan
12. Nausea and Vomiting 149
David Collett and Kimberly Chow
13. Dysphagia, Hiccups, and Other Oral Symptoms 163
Rachel Klinedinst , Audrey Kurash Cohen, and Constance M. Dahlin
14. Bowel Management: Constipation, Obstruction, Diarrhea, and Ascites 186
Stefanie N. Mooney, Purvi Patel, and Sorin Buga
15. Medically Administered Nutrition and Hydration 206
Katy M. Lanz , Michelle S. Gabriel, and Jennifer A. Tschanz
16. Dyspnea, Cough, and Terminal Secretions 217
DorAnne Donesky
17. Bladder Management in Palliative Care 230
Naomi Farrington and Catherine Murphy
18. Lymphedema Management 238
Mei R. Fu, Bonnie B. Lasinski, Janet H. Van Cleave, and Charles P. Tilley
19. Palliative Wound, Ostomy, and Continence Care 251
Charles P. Tilley, Mei R. Fu, and Jana M. Lipson
20. Pruritus, Fever, and Sweats 285
Angel Smothers
21. Neurological Disorders 291
Margaret A. Schwartz
22. Anxiety and Depression 309
Jaroslava Salman, Emma Wolfe, and Sunita K. Patel
23. Delirium, Confusion, and Agitation 319
Wendy Goldberg, Greg Mahr, Amy M. Williams, and Michael Ryan
24. Insomnia 330
Karla Schroeder
25. Sexuality and Intimacy in Serious Illness and at the End of Life 337
Heather Shaw and Joshua Fronk
26. Urgent Syndromes at the End of Life 344
Quinten Robertson and Kelli Gershon
27. Sedation for Refractory Symptoms 356
Chandana Banerjee and Bonnie Freeman
28. Complementary and Integrative Therapies in Palliative Care 361
Mary-Anne Meyer and Melinda Ring
29. Withdrawal of Invasive Mechanical Ventilation 371
Margaret K. Campbell
SECTION III
Psychosocial and Spiritual Support
30. The Meaning of Hope in the Dying 379
Valerie T. Cotter and Anessa M. Foxwell
31. Bereavement 390
Inge B. Corless and Janice Bell Meisenhelder
32. Supporting Families and Family Caregivers in Palliative Care 405
Kelli I. Stajduhar and J. Nicholas Dionne-Odom
33. Planning for the Actual Death 420
Patricia Berry and Julie Griffie
34. Spiritual Screening, History, and Assessment 432
Elizabeth Johnston Taylor
35. Spiritual Care Intervention 447
William Rosa
36. Meaning in Illness 456
Tami Borneman and Katherine Brown-Saltzman
SECTION IV
Special Patient Populations
37. Cultural Considerations in Palliative Care 469
Carrie Cormack, Polly Mazanec, and Joan T. Panke
38. Older Adult Patients in the Community 483
Carol O. Long
39. Poor, Homeless and Underserved Populations 490
Caroline Olney, Sarah Stroe, and Anne Hughes
40. Palliative Care for Patients with Mental Illness 503
John D. Chovan and Betty D. Morgan
41. Palliative Care for People Living with HIV 513
Jacquelyn Slomka
42. Caring for the Patient with Substance Use Disorder at the End of Life 521
Peggy Compton, Yu-Ping Chang, and Salimah Meghani
43. Cancer Survivorship 530
Anne Reb and Denice Economou
44. Veterans 539
Deborah Grassman
45. Organ Donation 545
Lissi Hansen and Lauren F. Dunn
46. Pulmonary Palliative Care 552
Patricia A. Maani-Fogelman and Ruby A. Weller
47. Palliative Care in Heart Failure 559
J. Nicholas Dionne-Odom, Rachel Wells, and Keith M. Swetz
SECTION V
End-of-Life Care across Settings
48. Improving the Quality of Care across All Settings 573
Marilyn Bookbinder, Romina Arceo, and James T. McDaniel
49. Long-Term Care: Focus on Nursing Homes 606
Joan Carpenter and Mary Ersek
50. Palliative Care in the Community 615
Nancy Robertson and Barbara Sutton
51. The Intensive Care Unit 624
Jennifer K. McAdam and Céline Gélinas
52. Palliative Care Nursing in the Outpatient Setting 639
Pamela Stitzlein Davies and Kathleen Broglio
53. Palliative Care in the Emergency Department 652
Rebecca Wright and Benjamin Roberts
54. The Role of Nursing in Caring for Patients Receiving Palliative Surgery or Chemotherapy 660
Virginia Sun, Tami Tittelfitz, and Marjorie J. Hein
55. Rural Palliative Care 670
Richard A. Taylor, J. Nicholas Dionne-Odom, Erin R. Currie, Macy Stockdill, and Marie A. Bakitas
56. The Role of PT, OT, and Other Therapies in Palliative Care for Seriously Ill Patients 682
Dennis Lin, Megan Borjan, Seanell D. San Andres, and Christina Kelly
57. Value-Based Care 690
Finly Zachariah and William Dale
SECTION VI
Pediatric Palliative Care
58. Symptom Management in Pediatric Palliative Care 699
Joan “Jody” Chrastek and Camara van Breemen
59. Pediatric Hospice and Palliative Care 708
Vanessa Battista and Gwenn LaRagione
60. Pediatric Goals of Care: Leading through Uncertainty 727
Christina McDaniel and Jordan M. Desai
61. End-of-Life Decision-Making in Pediatric Oncology 736
Deborah A. Lafond and Katherine Patterson Kelly
62. Palliative Care in the Perinatal Setting: Neonatal Intensive Care Unit, Labor and Delivery Unit 749
Cheryl Ann Thaxton, Diana Jacobson, Heather Murphy, and Tracey Whitley
63. Grief and Bereavement in Perinatal and Pediatric Palliative Care 758
Rana Limbo, Kathie Kobler, and Betty Davies
64. Pediatric Pain: Knowing the Child Before You 773
Juliana H. O’Brien and Maggie C. Root
65. Supporting Adolescents with a Parent in Hospice 783
Denice Sheehan, Pamela Stephenson, M. Murray
Mayo, Diane Snyder Cowan, and Dana Hansen
66. Use of Social Media as a Communication Tool for People with Serious Illness and Their Families 791
Dana Hansen, Amy Petrinec, and Nidal Harb
67. Access to Pediatric Hospice and Palliative Care 800
Lisa C. Lindley and Jessica Keim-Malpass
SECTION VII
Special Issues for the Nurse in End-of-Life Care
68. The Advanced Practice Registered Nurse 809
Clareen Wiencek and Alexander Wolf
69. Self-Care 817
Kathy G. Kravits
70. Ethical Considerations in Palliative Care 824
Maryjo Prince-Paul and Barbara J. Daly
71. Palliative Care and Requests for Assistance in Dying 837
Carey T. Ramirez, Kathleen Fundalinski, Judy Knudson, and John Himberger
72. Nursing Education 844
Pam Malloy and Andra Davis
73. Nursing Research 855
Terrah Foster Akard, Karen Hyden, and Mary Jo Gilmer
74. Advocacy in Palliative Nursing: A Conceptual Model 861
Nessa Coyle and Timothy W. Kirk
75. Global Palliative Care 868
Virginia LeBaron and Annette Galassi
76. The Ethos of Palliative Nursing 877
Mark Lazenby and Michael Anthony Moore
Index 881
Contributors
Terrah Foster Akard, PhD, RN, CPNP, FAAN
Associate Professor of Nursing and Medicine Vanderbilt University School of Nursing Nashville, Tennessee
Paula R. Anderson, RN, MN, OCN Oncology Nurse Consultant Lawrence, Kansas
Romina Arceo, NP-BC, RN, MS Nurse Practitioner Department of Anesthesiology, Pain Management Mount Sinai, Beth Israel Medical Center New York, New York
Jennifer Aron, DO Former Fellow
Medical University of South Carolina Charleston, South Carolina
Marie A. Bakitas, DNSc, CRNP, NP-C, AOCN, ACHPN, FAAN
Professor and Marie L. O’Koren Endowed Chair
The University of Alabama at Birmingham School of Nursing Birmingham, Alabama
Chandana Banerjee, MD City of Hope National Research Center Duarte, California
Vanessa Battista, RN, MS, PCPNP-BC Pediatric Nurse Practitioner
The Children's Hospital of Philadelphia Pediatric Palliative Advanced Care Team (PACT) Philadelphia, Pennsylvania
Patricia Berry, PhD, RN, ACHPN, FPCN, FAAN Professor
Oregon Health and Science University School of Nursing Portland, Oregon
Marilyn Bookbinder, RN, PhD, FPCN Director of Quality and Performance Improvement
MJHS Institute for Innovation in Palliative Care
Assistant Professor, Department of Family and Social Medicine Albert Einstein College of Medicine New York, New York
Megan Borjan, PT, DPT Department of Rehabilitation City of Hope National Medical Center Duarte, California
Tami Borneman, RN MSN, CNS, FPCN City of Hope Duarte, California
Camara van Breemen, MN, CHPCN Nurse Practitioner (F) Canuck Place Children’s Hospice Vancouver, Canada
Kathleen Broglio, DNP, ANP-BC, ACHPN, CPE, FPCN Nurse Practitioner, Section Palliative Medicine Assistant Professor of Medicine Dartmouth Hitchcock Medical Center Lebanon, New Hampshire
Katherine Brown-Saltzman, MA, RN University of California, Los Angeles Los Angeles, California
Sorin Buga, MD
Associate Clinical Professor of Medicine Division of Supportive Medicine City of Hope Medical Center Duarte, California
Jessica Bullington, BSN, RN, CHPN Palliative Care Program Specialist Medical University of South Carolina Charleston, South Carolina
Margaret L. Campbell, PhD, RN, FPCN Wayne State University, College of Nursing Detroit, Michigan
Joan Carpenter, PhD, CRNP, ACHPN Post-doctoral Nurse Research Fellow Corporal Michael J. Crescenz Veterans Affairs Medical Center Philadelphia, Pennsylvania
Yu-Ping Chang, PhD, RN, FGSA Associate Professor School of Nursing State University of New York at Buffalo Buffalo, New York
John D. Chovan, PhD, DNP, RN, CNP, CNS, PMHNP- BC, PMHCNS-BC/Adult, ACHPN Department of Nursing
Otterbein University Mount Carmel Hospice & Palliative Care Services Westerville, Ohio
Kimberly Chow, MSN, ANP-BC, ACHPN Clinical Program Manager and Nurse Practitioner Coordinator Supportive Care Service
Memorial Sloan Kettering Cancer Center New York, New York
Joan “Jody” Chrastek, RN, CHPN, DNP, FPCN Pediatric Advanced Complex Care Team Coordinator Fairview Home Care and Hospice Minneapolis, Minnesota
Janet H. Van Cleave, PhD, RN, AOCNP Assistant Professor New York University Rory Meyers College of Nursing New York, New York
Audrey Kurash Cohen, MS, CCC-SLP Clinical Practice Specialist, Speech-Language Pathologist Department of Speech, Language and Swallowing Disorders Massachusetts General Hospital Boston, Massachusetts
David Collett, MSN, AGACNP-BC Nurse Practitioner Fellow Supportive Care Service
Memorial Sloan Kettering Cancer Center New York, New York
Peggy Compton, RN, PhD, FAAN Associate Professor Department of Family and Community Health University of Pennsylvania School of Nursing Philadelphia, Pennsylvania
Inge B. Corless, PhD, RN, FNAP, FAAN Professor MGH Institute of Health Professions Boston, Massachusetts
Carrie Cormack, DNP, APRN, CPNP Assistant Professor, College of Nursing
The Medical University of South Carolina Charleston, South Carolina
Valerie T. Cotter, DrNP, AGPCNP-BC, FAANP, FAAN Assistant Professor
Johns Hopkins School of Nursing Baltimore, Maryland
Diane Snyder Cowan, MA, MT-BC, CHPCA Hospice of the Western Reserve Cleveland, Ohio
Nessa Coyle, PhD, APRN, FAAN Consultant, Clinical Ethics Memorial Sloan Kettering Cancer Center New York, New York
Patrick J. Coyne, MSN, ACHPN, ACNS-BC, FAAN, FPCN Director of Palliative Care Medical University of South Carolina Charleston, South Carolina
Erin R. Currie, PhD, RN Assistant Professor Family, Community, and Health Systems Department The University of Alabama at Birmingham School of Nursing Birmingham, Alabama
Constance M. Dahlin, MSN, ANP-BC, ACHPN, FPCN, FAAN Director of Professional Practice Hospice and Palliative Nurses Association Director, Palliative Care APRN Externship Pittsburgh, Pennsylvania
Palliative Nurse Practitioner North Shore Medical Center Salem, Massachusetts
William Dale, MD, PhD Clinical Professor Arthur M. Coppola Family Chair Department of Supportive Care Medicine Deputy Director, Social Science, Center for Cancer & Aging City of Hope National Medical Center Duarte, California
Barbara J. Daly, PhD, RN, FAAN Gertrude Perkins Oliva Professor in Oncology Nursing Clinical Ethics Director University Hospitals of Cleveland Case Medical Center Cleveland, Ohio
Betty Davies, RN, PhD, CT, FAAN Professor and Senior Scholar School of Nursing University of Victoria Victoria, Canada
Pamela Stitzlein Davies, MS, ARNP, ACHPN, RN-BC Adult/Geriatric Nurse Practitioner Teaching Associate, Department of Neurology, University of Washington Affiliate Instructor, School of Nursing, University of Washington Adjunct Faculty, School of Health Sciences, Seattle Pacific University Seattle, Washington
Andra Davis, RN, MN, PhD Assistant Professor Washington State University College of Nursing Vancouver, Washington
Grace E. Dean, PhD, RN Nurse Scientist, Roswell Park Cancer Institute Associate Professor, School of Nursing SUNY University at Buffalo Buffalo, New York
Jordan M. Desai, MS, LISW-CP Director of Support Services Palladium Hospice and Palliative Care Columbia, South Carolina
J. Nicholas Dionne-Odom, PhD, RN, ACHPN Postdoctoral Fellow School of Nursing University of Alabama at Birmingham (UAB) Birmingham, Alabama
DorAnne Donesky, PhD, ANP-BC, ACHPN Department of Physiological Nursing University of California, San Francisco San Francisco, California
Mary Catherine Dubois, MSW, MHA, LISW-CP, CCM Palliative Care Social Worker Medical University of South Carolina Charleston, South Carolina
Lauren F. Dunn, BSN, RN, CPTC Pacific NW Transplant Bank Portland, Oregon
Denice Economou, RN, MN, CHPN Nursing Research and Education City of Hope Duarte, California
Mary Ersek, PhD, RN, FPCN Senior Scientist, National Veteran Experience Center (formerly, the PROMISE Center)
Corporal Michael J. Crescenz Veterans Affairs Medical Center Professor of Palliative Care University of Pennsylvania School of Nursing Philadelphia, Pennsylvania
Naomi Farrington, RN, BA (Hons), MA, PhD, PGDip Chemotherapy Staff Nurse and HEE NIHR Clinical Lecturer University Hospital Southampton NHSFT and University of Southampton Southampton, United Kingdom
Regina M. Fink, PhD, APRN, CHPN, AOCN, FAAN Associate Professor College of Nursing and School of Medicine University of Colorado Anschutz Medical Campus Aurora, Colorado
Anessa M. Foxwell, MSN, CRNP, ACHPN Nurse Practitioner, Palliative Care Program Hospital of the University of Pennsylvania Philadelphia, Pennsylvania
Bonnie Freeman, DNP, ANP, CT, ACHPN City of Hope National Research Center Duarte, California
Joshua Fronk, DO Clinical Assistant Professor Department of Palliative Medicine Division of Primary Care and Population Health Stanford University Stanford, California
Mei R. Fu, PhD, RN, FAAN Associate Professor with Tenure New York University Rory Meyers College of Nursing New York, New York
Kathleen Fundalinski, FNP-C, ACHPN Palliative Medicine Service UCHealth North Loveland, Colorado
Michelle S. Gabriel, RN, MSN Director of Performance Improvement El Camino Hospital Mountain View, California
Annette Galassi, RN, MA, OCN Oncology Nurse Consultant Armand Global Consulting Rockville, Maryland
Rose A. Gates, PhD, ANP, AOCN Hematology Oncology Nurse Practitioner University of Colorado Health Memorial Hospital Colorado Springs, Colorado
Celine Gelinas, RN, PhD Associate Professor Ingram School of Nursing McGill University Montreal, Canada
Kelli Gershon, FNP-BC, ACHPN Symptom Management Consultants Humble, Texas
Mary Jo Gilmer, PhD, MBA, RN-BC, FAAN Professor of Nursing and Medicine (Pediatrics) Co-Director, Pediatric Palliative Care Research Team Vanderbilt University School of Nursing Monroe Carell Jr. Children's Hospital at Vanderbilt Nashville, Tennessee
Wendy Goldberg, MSN, APRN, BC Nurse Practitioner and Consultant Henry Ford Cancer Institute Division of Psychosomatic Medicine Department of Behavioral Health Henry Ford Health System Detroit, Michigan
Deborah Grassman, MSN, APRN Founder, Opus Peace Director of Opus Peace Institute for Soul Injury St. Petersburg, Florida
Julie Griffie, MSN, RN, AOCN Clinical Nurse Specialist, Palliative Care Medical College of Wisconsin Waukesha, Wisconsin
Dana Hansen, PhD, APRN, ACHPN Assistant Professor Kent State University College of Nursing Kent, Ohio
Lissi Hansen, PhD, RN Professor, Graduate Programs Oregon Health & Science University School of Nursing Portland, Oregon
Nidal Harb, PhDc, RN
Kent State University College of Nursing Kent, Ohio
Herman Harris, II, MDiv
Palliative Care Chaplain
Medical University of South Carolina Charleston, South Carolina
Marjorie J. Hein, DNP, FNPc, NP Department of Medicine/Gastroenterology Division City of Hope Duarte, California
John Himberger, MSN, FNP-BC, ACHPN Director, Palliative Care
University of Colorado Health Southern Region Colorado Springs, Colorado
Anne Hughes, PhD, FNP-BC, ACHPN, FPCN, FAAN Consultant, Palliative, End-of-Life and Long-Term Care Montara, California
Karen Hyden, APN-BC, MSN, MEd, ACHPN PhD Student, University of Colorado Denver, Colorado
Palliative Care Nurse Practitioner, Compassus Brentwood, Tennessee Instructor, Institute for Palliative Care
The California State University San Marcos, California
Shigeko Izumi, PhD, RN, FPCN Assistant Professor
Oregon Health & Science University School of Nursing Portland, Oregon
Diana Jacobson, PhD, RN, PPCNP-BC, PMHS, FAANP Clinical Associate Professor Pediatric Specialty Coordinator DNP Program
Healthy Choices Intervention Program Research Arizona State University College of Nursing and Health Innovation Pheonix, Arizona
Kate D. Jeffers, PharmD, MHA, BCOP Ambulatory Oncology Clinical Pharmacy Specialist PGY1 Pharmacy Residency Program Director University of Colorado Health Memorial Hospital Colorado Springs, CO
Jessica Keim-Malpass, PhD, RN Assistant Professor
University of Virginia School of Nursing Charlottesville, Virginia
Christina Kelly, MA, CCC-SLP Department of Rehabilitation City of Hope National Medical Center Duarte, California
Katherine Patterson Kelly, PhD, APRN, PCNS-BC, CPON
Division of Nursing Quality and Research Children’s National Health System Washington, District of Columbia
Timothy W. Kirk, PhD
Associate Professor of Philosophy
City University of New York, York College
Ethics Consultant
MJHS Hospice and Palliative Care
New York, New York
Rachel Klinedinst, MSN, AGACNP-BC, CRNP, ACHPN Co-Director, Nurse Practitioner
Inpatient Palliative Care Program
Hospital of the University of Pennsylvania Philadelphia, Pennsylvania
Judy Knudson, MPAS, PA-C, BSN
Instructor Physician Assistant Medicine
University of Colorado Denver, Colorado
Kathie Kobler, PhD, APRN, PCNS-BC, CHPPN, FPCN
APN Coordinator, Center for Fetal Care
Perinatal Palliative Care
Advocate Children’s Hospital Park Ridge, Illinois
Kathy G. Kravits, MA, RN, HNB-BC, LPC, NCC, LMHC, ATR-BC
Senior Research Specialist
Division of Nursing Research and Education
City of Hope Comprehensive Cancer Center
City of Hope Duarte, California
Deborah A. Lafond, DNP, PPCNP-BC, CPON, CHPPN
PANDA Palliative Care Team
Children’s National Health System Washington, District of Columbia
Katy M. Lanz, DNP, RN, AGPCNP-BC, ACHPN, FPCN
Chief Clinical Officer
Aspire Healthcare Pittsburgh, Pennsylvania
Gwenn LaRagione, RN, BSN, CCM, CHPPN
Nurse Coordinator
Pediatric Advanced Care Team
The Children’s Hospital of Philadelphia Philadelphia, Pennsylvania
Bonnie B. Lasinski, MA, PT, CI-CS, CLT-LANA Clinical Director
Boris-Lasinski School, a Casley-Smith US Affiliate Pawleys Island, South Carolina
Mark Lazenby, PhD, APRN, FAAN
Associate Professor of Nursing
Yale University School of Nursing
Associate Professor of Religion and Health
Yale University Divinity School
New Haven, Connecticut
Virginia LeBaron, PhD, APRN, ACHPN, FAANP Assistant Professor University of Virginia School of Nursing Charlottesville, Virginia
Rana Limbo, PhD, RN, CPLC, FAAN
Senior Consultant and Associate Director
Resolve Through Sharing®
Gundersen Health System
La Crosse, Wisconsin
Dennis Lin, OTD, OTR/L Department of Rehabilitation City of Hope National Medical Center Duarte, California
Lisa C. Lindley, PhD, RN Assistant Professor College of Nursing University of Tennessee, Knoxville Knoxville, Tennessee
Jana M. Lipson, MS, AGPCNP-BC, ACHPN Palliative Care Nurse Practitioner Mount Sinai Hospital New York, New York
Carol O. Long, PhD, RN, FPCN, FAAN Principal, Capstone Healthcare Founder, Palliative Care Essentials Transcultural Nursing Scholar, Transcultural Nursing Society Adjunct Faculty, Arizona State University College of Nursing and Health Innovation Pheonix, Arizona
Patricia Maani-Fogelman, DNP Division of Pulmonary, Critical Care, and Sleep Medicine Geisinger Health System Danville, Pennsylvania
Greg Mahr, MD Senior Staff Psychiatrist Division Head, Psychosomatic Medicine Department of Behavioral Health Henry Ford Health System Assistant Professor, Wayne State University Detroit, Michigan
Pam Malloy, MN, RN, FPCN, FAAN Director and Co-Investigator of the ELNEC Project Special Advisor on Global Initiatives American Association of Colleges of Nursing (AACN) Washington, District of Columbia
M. Murray Mayo, PhD, APRN, ACHPN Ursuline College, The Breen School of Nursing Pepper Pike, Ohio
Polly Mazanec, PhD, ACNP-BC, AOCN, ACHPN, FPCN Research Associate Professor Case Western Reserve University FPB School of Nursing Cleveland, Ohio
Jennifer L. McAdam, RN, PhD Associate Professor School of Nursing
Samuel Merritt University Oakland, California
Christina McDaniel, RN, MSN, CHPPN Clinical Instructor MUSC College of Nursing Charleston, South Carolina
James T. McDaniel, DNP, MSN, RN-BC, CHPN Executive Director, Hospice and Palliative Care MJHS Hospice and Palliative Care New York, New York
Salimah Meghani, PhD, MBE, RN, FAAN Associate Professor Department of Biobehavioral Health Sciences University of Pennsylvania School of Nursing Philadelphia, Pennsylvania
Janice Bell Meisenhelder, DNSc, RN Professor Department of Nursing Emmanuel College Boston, Massachusetts
Mary-Anne Meyer APN/CNP Advance Practice Nurse, Integrative Primary Care Osher Center for Integrative Medicine Northwestern Medicine Master of Science in Nursing Rush University Chicago, Illinois
Stefanie N. Mooney, MD Assistant Clinical Professor of Medicine Division of Supportive Medicine City of Hope Medical Center Duarte, California
Michael Anthony Moore, BA, RN Yale University School of Nursing New Haven, Connecticut
Betty D. Morgan, PhD, PMHCNS-BC Department of Nursing (retired) University of Massachusetts, Lowell Lowell, Masschusetts
Catherine Murphy, RN, BSc (Hons), MSc, PhD, PGDip Senior Research Fellow University of Southampton Southampton, United Kingdom
Heather Murphy, MSN, RN, NP-C Palliative Care Coordinator – Neonatal Intensive Care Unit Children’s Hospital of the King’s Daughters Norfolk, Virginia
Juliana H, O’Brien, MSN, FNP-BC Division of Palliative and Supportive Care Nemours/Alfred I. DuPont Hospital for Children Wilmington, Delaware
Edith O’Neil-Page, RN, MSN, AOCNS Huntington, Vermont
Caroline Olney, BS, RN, MSN, NP, ACHPN Palliative Care Nurse Practitioner
University of California, San Francisco Supportive and Palliative Care Service Zuckerberg San Francisco General Hospital and Trauma Center San Francisco, California
Joan T. Panke, MA, BSN, ACHPN
Palliative Care Specialist/Palliative Care NP Washington, District of Columbia
Purvi Patel, MD, MBA
Assistant Clinical Professor of Medicine Division of Supportive Medicine City of Hope Medical Center Duarte, California
Sunita K. Patel, PhD
Associate Professor Department of Supportive Care Medicine City of Hope Duarte, California
Amy Petrinec, PhD, RN Assistant Professor
Kent State University College of Nursing Kent, Ohio
Maryjo Prince-Paul, PhD, RN, FPCN
Associate Professor Frances Payne Bolton School of Nursing Cleveland, Ohio
Carey T. Ramirez, ANP-C, ACHPN Palliative Medicine Service
UCHealth North Loveland, Colorado
Anne Reb, NP, PhD
Assistant Professor Nursing Research & Education City of Hope Medical Center Duarte, California
Rebekah Reimer, BSN, RN, CCRN Palliative Care Nurse
Providence Little Company of Mary, Torrance Torrance, California
Melinda Ring, MD, FACP, ABOIM Director, Osher Center for Integrative Medicine Northwestern Medicine
Drs. Pat and Carl Greer Distinguished Physician in Integrative Medicine
Clinical Associate Professor of Medicine and Medical Social Sciences
Northwestern University Feinberg School of Medicine Chicago, Illinois
Benjamin Roberts, MSN, RN
Registered Nurse
Johns Hopkins Hospital Baltimore, Maryland
Nancy Robertson, MSN, ANP-BC, ACHPN Palliative Care Nurse Practitioner
University of Colorado Masters of Palliative Care Faculty Anschutz Medical Campus Aurora, Colorado
Quinten Robertson, DNP, FNP-BC Healthcare at its Best Staffing (HCIBS), LLC Houston, Texas
Catherine Rogers, MSW Palliative Care Social Worker Medical University of South Carolina Charleston, South Carolina
Maggie C. Root, MSN, RN, CPNP-AC, CHPPN Integrated Pediatric Pain & Palliative Care UCSF Benioff Children’s Hospital San Francisco, California
William Rosa, MS, RN, LMT, AHN-BC, AGPCNP-BC, CCRN-CMC
Robert Wood Johnson Future of Nursing Scholar University of Pennsylvania School of Nursing Philadelphia, Pennsylvania
Michael Ryan, PsyD Senior Staff Psychologist Clinical Director, Supportive Oncology Services Henry Ford Cancer Institute Henry Ford Health System Detroit, Michigan
Jaroslava Salman, MD, FAPM Assistant Professor of Psychiatry Department of Supportive Care Medicine City of Hope Duarte, California
Seanell D. San Andres, CTRS Department of Rehabilitation City of Hope National Medical Center Duarte, California
Elizabeth E. Schack, GNP-BC, CNS, ACHPN Senior Palliative Care Nurse Practitioner Division of Geriatrics and Palliative Medicine New York Presbyterian Hospital/Weill Cornell Medical Center New York, New York
Karla Schroeder, DNP, RN, MHA, ANP-BC, NE-BC Director of Palliative Care and Geriatrics Stanford Medicine Stanford, California
Margaret A Schwartz, MSN, APRN, CNRN Northwestern Medicine Group Chicago, Illinois
Heather Shaw, RN, MS, GNP-BC Manager, Inpatient Palliative Medicine Stanford Health Care Stanford, California
Denice Sheehan, PhD, RN, FPCN Kent State University College of Nursing Kent, Ohio
Jacquelyn Slomka, PhD, RN Independent Scholar and Consultant Cleveland, Ohio
Angel Smothers, DNP, APRN, FNP-BC Certified Hospice and Palliative Care Nurse Certified Faith Community Nurse West Virginia University School of Nursing Clinical Assistant Professor Morgantown, West Virginia
Kelli I. Stajduhar, PhD, MSN, BSN, FCAHS
Professor and Associate Director, Research and Scholarship, School of Nursing
Research Affiliate, Institute on Aging and Lifelong Health University of Victoria Victoria, Canada
Pamela Stephenson, PhD, RN, OACNS
Kent State University College of Nursing Kent, Ohio
Macy Stockdill, BSN, RN PhD student
The University of Alabama at Birmingham School of Nursing Birmingham, Alabama
Sarah Stroe, BA, ASW, MSW
Palliative Care Social Worker
San Francisco Department of Public Health
Supportive and Palliative Care Service
Zuckerberg San Francisco General Hospital and Trauma Center
San Francisco, California
Virginia Sun, PhD, RN
Assistant Professor
Division of Nursing Research & Education
Department of Population Sciences City of Hope Duarte, California
Barbara Sutton, MSN, APN-BC, ACHPN
Palliative Care Nurse Practitioner
Amita Healthcare Elk Grove Village, Illinois
Keith M. Swetz, MD, MA, FACP, FAAHPM, HMDC
Section Chief/Medical Director, Palliative Care
Birmingham Veterans Affairs Medical Center University of Alabama, Birmingham Center for Palliative and Supportive Care
Associate Professor of Medicine University of Alabama, Birmingham School of Medicine Birmingham, Alabama
Elizabeth Johnston Taylor, PhD, RN Professor, School of Nursing Loma Linda University
Loma Linda, California
Richard A. Taylor, DNP, CRNP, APN-BC
Assistant Professor
Acute, Chronic and Continuing Care Department
The University of Alabama at Birmingham School of Nursing Birmingham, Alabama
Cheryl Ann Thaxton, MN, RN, CPNP-BC, FNP-BC, CHPPN
Adult and Pediatric Palliative Care Nurse Practitioner University of Texas Southwestern Medical Center Dallas, Texas
Charles P. Tilley, MS, ANP-BC, ACHPN, CWOCN
Assistant Director of Graduate Simulation
New York University Rory Meyers College of Nursing New York, New York
Tami Tittelfitz, DNP, NP-C Nurse Practitioner Division of Thoracic Surgery Department of Surgery City of Hope Duarte, California
Jennifer A. Tschanz, MSN, FNP, AOCNP Nurse Practitioner
Department of Hematology Oncology
Naval Medical Center San Diego, California
Ruby A. Weller, CRNP Division of Pulmonary, Critical Care, and Sleep Medicine Geisinger Medical Center Danville, Pennsylvania
Rachel Wells, MSN, RN, CNL Doctoral Candidate School of Nursing
University of Alabama at Birmingham (UAB) Birmingham, Alabama
Tracey Whitley, MSN, RNC-OB, C-EFM Clinical Practice Specialist Women and Children Services Women’s Health Clinical Education Winston-Salem, North Carolina
Dorothy Wholihan, DNP, AGPCNP-BC, ACHPN Director, Palliative Care Specialty Program New York University College of Nursing New York, New York
Clareen Wiencek, PhD, RN, ACHPN, ACNPC Associate Professor and Director of Advanced Practice University of Virginia School of Nursing Charlottesville, Virginia
Amy M. Williams, PhD, LP Senior Staff Psychologist Director, Psychology Practicum Program Department of Otolaryngology – Head & Neck Surgery Henry Ford Health System Clinical Assistant Professor Wayne State University School of Medicine Detroit, Michigan
Elaine Wittenberg, PhD Associate Professor Communication Studies California State University Los Angeles, California
Alexander Wolf, DNP, RN, ACNP, CNS Nurse Practitioner, Palliative Care Augusta Medical Group Fishersville, Virginia
Emma Wolfe, MPH, CHES Senior Health Education Specialist Patient, Family and Community Education Department of Supportive Care Medicine City of Hope Duarte, California
Rebecca Wright, PhD, BSc (Hons), RN
Assistant Professor
Johns Hopkins School of Nursing
Baltimore, Maryland
Finly Zachariah, MD, FAAFP Assistant Clinical Professor Department of Supportive Care Medicine
City of Hope National Medical Center
Duarte, California
