BI-MONTHLY UPDATE News, Views & Do’s -
♥ Meet our Representatives ♥ Newsletter ♥ Kids for CRY ♥♥♥♥♥♥♥ Julie’s Interview ♥ Jokes Corner ♥ Puzzles ♥ Jan`s Report ♥ Steve`s Report ♥ Marathon tales ♥ Our Fundraisers ♥ Raising Awareness ♥ Bulletin Board
CARDIAC RISK in the YOUNG Issue No. 28 Spring 2001 CRY SUBSCRIPTION AND / OR DONATION FORM Name............................................................................................... Address............................................................................................ Please use .....................................................................Post Code................... the enclosed FREE Telephone ........................................................ Date...................... POST envelope
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MEET OUR REPRESENTATIVES IN FLINTSHIRE, WREXHAM & CHESTER - IT`S DOREEN HARLEY My husband and I received a telephone call from our son-in-law on Saturday, 10 January 1998 at approximately 8.15 a.m. to say that our daughter, Lisa Jane Browne, a nurse, aged 27 years, was being taken to hospital. When I asked what was the matter with our daughter, my son-in-law told me that he could not wake her up. She was being taken to hospital by ambulance. My son-in-law had received a phone call at 7.15 a.m. from the hospital ward where our daughter worked, to ask if Lisa had overslept. My son-in-law went back upstairs to wake our daughter, but he could not rouse her, feel a pulse and could not find any signs of our daughter breathing. An ambulance was called shortly afterwards, and the paramedics tried to resuscitate our daughter with CPR and defibrillation at her home, but to no avail. She was taken to hospital on oxygen, where further attempts were made to resuscitate her. We were told when we arrived at the A & E department of the hospital, at approximately 8.45 a.m., that our daughter was dead. The A & E Registrar told us that a post mortem would be carried out on the Monday morning, but at the time of our daughter’s death, it was believed by the hospital doctor that she had either suffered a heart attack, a brain haemorrhage or had a deep vein thrombosis. Following the post mortem examination on Monday, 12 January 1998, we received a telephone call from the Coroner’s Office, who told us that the Pathologist could find no obvious cause of death, and in his opinion our daughter should still be alive. Various specimens were sent away for toxicology and histology examination.
Lisa & Doreen
At the Inquest hearing on Wednesday, 26 August 1998 the Coroner heard evidence from the Pathologist, and we were told that an extensive post mortem had been carried out at the Coroner’s request as no cause of death could be established. The Pathologist said that “there was a slight possibility that Lisa could have had an electrical rhythm fault with her heart, which could not be detected after someone had died”. He said “that Lisa’s death was not a unique case, in so far as there are approximately 4 cases of sudden adult death in the Cheshire area each year”. We were given an “open verdict” with the cause of death as “unascertainable”. Approximately six months prior to Lisa’s death, she had visited her GP with light headedness, chest pains and palpitations, and as a result of this she was diagnosed as being under stress and depressed, and was prescribed antidepressants. At a follow up visit a few weeks later Lisa still complained of the symptoms, and the GP said she was stressed. The antidepressants she was prescribed are on the list of banned drugs for anyone suffering from Long QT Syndrome. Had Lisa been offered an ECG tracing it is quite possible that Long QT Syndrome may have been detected and if treated with beta-blockers she could still be alive today. Lisa had been exceptionally tired for the last three years of her life, but no medical person would take her seriously or offer any investigations as to the cause of this tiredness. However, a date had been fixed for three days after her death for an appointment with her GP yet again, when Lisa was going to ask for various investigations to be carried out. In March 1999, after reading articles provided by Cardiac Risk in the Young, on Sudden Adult Death, we contacted Professor McKenna at St George’s Hospital in London to see if my husband, myself and surving daughter could be screened for possible Long QT Syndrome. In December 1999, my husband and myself finally went to St George’s Hospital in London for screening tests, when it was discovered that my husband also has Long QT Syndrome, unknowingly to ourselves. My husband has never suffered any symptoms of the disease. He was put on beta-blockers, which unfortunately reduced his heartbeat to 36 beats per minute. The beta-blockers were stopped immediately, and my husband is now under the care of the Electrophysiologist at Broadgreen Hospital in Liverpool. Should my husband develop symptoms in the future, he will be put back on the beta-blockers, and have a pacemaker fitted. The treatment for Long QT Syndrome is beta-blockers taken daily for life. We were told that it is almost certain that Lisa died of Long QT Syndrome. Her death appears to have happened when she switched her alarm clock off at 6 a.m. in the morning. Sudden noises occurring whilst the person is asleep can cause sudden death. Long QT Syndrome is hereditary. If teenagers in their early teens were offered screening for heart problems, may be there would be a lot less of these Sudden Adult Deaths. I am now the County Contact for Flintshire and Wrexham and with current duties for Chester, for CRY. I hope to raise awareness of the aims of CRY, i.e. to try and get a national screening programme, and to support bereaved families who have been affected by the loss of a family member due to SADS.
NEWSLETTER Spring 2001 CRY started the year with the news that dreams are made of - that the highest profile athlete in the land, Sir Steve Redgrave CBE, has agreed to be our Patron. When he was 16 Sir Steve witnessed the sudden cardiac death of his best friend and crewmate Robert Hayley. They were watching TV at his home after a training session when Robert stood up, asked permission to have an apple, and dropped dead. The memory has haunted him ever since and has led to him dedicating each of his Olympic Gold medals to Robert. Especial thanks to Robbie and Kate Fox who contacted me with this information and who wrote to Sir Steve to tell him about CRY. One of my goals for 2001 is to have a major push forward focusing on raising awareness of CRY. To endorse this we had our biggest event ever - 118 CRY runners in the London Marathon on Sunday April 22, including 16 in giant red CRY hearts. As we had hoped they caused a great stir!! Our 3 firemen, magnificent in their scarlet CRY hearts, and running in memory of Sarah Louise Williamson, were interviewed just before the start gun went off. There were 3 more "hits" during the event, a spot in the highlights and National News. Matt Wilson, our CRY funded Research Student was the first CRY runner to finish, and the first Marathon full costume runner across the line with an incredible time in his huge CRY heart of 3.16. Congratulations to all our 100 runners and especially those intrepid participants in CRY hearts, who participated with such enthusiasm. Well done also to Steve Cox for taking over the organisation of the costume design, negotiations with our runners, and the CRY reception for all at The Britannia Hotel on Marathon Saturday which was well supported and very worthwhile. It was sobering to learn that in the year when CRY had its biggest profile (in the top 5% of charities entered), a 34 year old fitness instructor died of a cardiac arrest shortly after crossing the finishing line. Many moons ago I was advised that what CRY really needed to do was recruit a "lobbyist" organisation to target M.Ps about our remit. However the cost, even then, was in excess of ÂŁ30,000 and therefore untenable. However in February we were approached to be a coalition partner (at no cost to CRY!) with the Medical Technology Group working to raise the profile of how medical technology saves lives (see Update and Web). This was launched in the House of Commons and Lord Hunt (Parliamentary Under Secretary of State for Health) described it as "a celebration of innovations in science and medicine" and that the aims of the group were consistent with what the Government was seeking to achieve within the NHS. Lord Hunt was among 30 MPs., Ministers and Peers who supported the event aimed at raising awareness of the positive impact of technology on people's lives
NEWSLETTER Spring 2001 and pressing for health-care policies that facilitate patient access. The Group wants to ensure that funding is available for all patients who would benefit from new technology which it believes is "saving and improving lives." Stephen Allan accompanied me, making a stunning contribution to the evening with his willingness to “show� all interested parties his ICD. CRY's particular interest is in the development and application of the ICD (Internal Cardiac Defibrillator) which is a device for rapid detection and treatment of life threatening changes in heart beating patterns and sudden cardiac arrest and is increasingly being used to treat individuals found to have a potentially life threatening cardiac abnormality. In the UK we have an ICD implant rate of 17 per million - compared to 185 per million in the USA and 67 per million in Germany. There are also significant regional variations in the use of ICDs with patients in the London area twice as likely to receive implants as those in the North. The objective is to put pressure on M.P.s to alter this imbalance. In spite of having been introduced to Lord Hunt, and making the opportunity to "present our case," and in spite of having the support of Earl Freddie Howe who wrote to the Minister on our behalf, CRY was again unsuccessful in our Section 64 Funding application. There is more detail of this in the Update. Suffice it to say that it was hugely disappointing, having met all the right people, at just the right time and suggests CRY certainly is not a charity that meets with the approval of bureaucrats in high places. As well as our TV coverage in the London Marathon, the Allan family were interviewed on GMTV talking about the tragic death of their son Richard and the saving of their son Stephen’s life by the implantation of an ICD. CRY also has had exposure on Harlech with Paulette Smith being interviewed as she went to inform her M.P. at the Welsh Assembly about CRY's goals, and with Alison Doyle's very moving account of the impact of the death of her husband Colin on Carlton. In concluding I would like to apologise for us again having to make this Update a late bumper issue. Our plans to get up to date by February were thrown to the winds by Rose's sudden death which had a severe practical and psychological toll on all of us in this office, and in particular of course on her son Tony who is CRY's Office Manager. Rose knew everything about everything that made our office work and life without her predictably difficult. In future, in order to give us a bit more leeway we will be producing seasonal Updates - Spring, Summer, Autumn and Winter - with all the instant news going on our Website which will be updated weekly. If you have events, articles, ideas or research information please send them to Steve for the Website so that we can keep you all in touch with what is going on. Sometimes I feel things are happening so fast we almost do not have time to circulate the news!
JULIE`S INTERVIEW WITH
SIR STEVEN REDGRAVE CBE CRY`s New Patron Julie
Sir Steven we are so excited that you are CRY's Patron. Please could you tell us how you first heard about CRY?
Sir Steven
Alison wrote to me, and also the Fox family about the sudden death of their daughter. I then spoke to CRY's Chairman Greg Whyte to find out more about what CRY was doing.
Julie
Why did you decide to support us?
Sir Steven
I am very interested in what CRY is doing. My best friend and crewmate Robert Hayley dropped dead in the sitting room of my home when we had been watching TV. He was 17 and I was 16. He was a very fit fellow. You never forget something like that. How can such things happen? There was not a lot of information available then. We just had to accept it. CRY really seems to be raising awareness of how much this is going on. If something can be done, it must be done.
Julie
One of my best friends died too. His Mum has run in the London Marathon for the last 3 years. She says it is an amazing event. Was it what you expected?
Sir Steven
The London Marathon was incredible. I couldn't believe it. Thousands and thousands and thousands of people cheering us on for over 26 miles, and nearly 5 hours! It was like an on-going Olympic roar. A memorable event to be a part of. CRY really seems to be raising awareness of how much this is going on. If something can be done, it must be done.
Julie
How did you feel afterwards?
Sir Steven
Sore! I was seriously under-prepared. As I had been so busy it had been hard to maintain my training schedule. However all the interviews and autograph stops gave me a chance to get my breath back! Ann and I were just really pleased we were able to complete it and that it was such a success for everyone.
Theme - Rowing / Boats
Photo-Call wHAT HAVE THE CRY HEARTS BEEN UP TO? ....... ... ...... ........!
Answers on Jan`s Page!
A FANTASTIC 581.34 HAS BEEN RAISED IN MEMORY OF LEON ASHLEY MANNERS & IAN BOWEN The TeenyBoppers and the Grange town carol singers came together to put on a brilliant evenings entertainment. Organiser Paul Tuffs did a wonderful job of charming the audience for a full three and a half hours. A little Bingo got things under way. The show started with 5 songs and dances. Pie & Peas were served. More bingo and a Raffle draw. Then back to the show with another 5 great numbers. With special thanks to the Cast of Jodie Welsh, Andrew Elcoate, Paul Watson, Rachael Watson, Natalie Strang, Leanne Scott, Robert Scott, John Warrior, A m y Tuffs, Katie Welsh, Hayley Welsh, Zoe Douglas, Lisa Martin & Chantelle Monaghan.
IN MEMORY OF LEWIS MARSH Lewis (on right) taken with his friend Nick on a trip to Monte Carlo
2 Schools have been extremely busy raising awareness and funds for The Lewis Marsh Memorial Fund - Sandhurst School has raised a brilliant ÂŁ657.00, and Crowthorne Church of England Primary School has raised a fantastic ÂŁ1,200.00. An Oak tree was planted at Ranelagh School in memory of Lewis at a spot where he used to meet his year 9 friends at lunch time
Last December a tremendous donation of ÂŁ1,200 (see Update Raising Awareness) was presented to Jo Cross from the Junior Section Northumberland Caravan Club who adopted CRY as their charity for 2000. A huge thank you to all those on the Junior Committee of the Northumberland Club and all those who participated in this massive contribution to CRY.
WORDSEARCH
can you find these words?
JAN SMITH CRY`S ADMINISTRATOR REPORTS FROM CARDIOLOGICAL SCIENCES ST GEORGE`S HOSPITAL MEDICAL SCHOOL Hello from St George's This is our first Update for 2001 and the New Year has brought in some big changes for CRY. ______________________________________
Firstly, both the Western Isles Health Board and Education Board provided absolute and final clearance for our Pilot Study to test the effectiveness of the ECG machine in detecting hidden heart conditions in young people. This is, to our knowledge, the first study of its kind in the UK. Linking into the study will be a psychological evaluation reviewing the overall effect of ECG testing on individuals taking part. We are delighted to be working with Alex and Frasier Fotheringham on this project. We believe that the research material drawn from the Pilot Study will provide a solid platform of evidence which will formally open discussions on ECG Testing as a Government issue. From this Pilot Study we aim to develop up a blue print which will enable CRY to approach other Health Authorities. This is a very exciting time and I would like to thank Alex and Frasier for their incredible hard work and continued commitment to this particular project and to CRY as a whole, during a very tough year. We shortly begin work on the operations plan and funding bids. _______________________________________________________________________
Onto the Sports Cardiology Unit - we are now waiting on a response to our proposal to a second official body. We have been offered a marvellous opportunity to place our bid, and I hope to have good news for you for the next Update. _______________________________________________________________________
The long promised Guidelines for those volunteers interested in applying for CRY community projects are now available. Inevitably, as CRY has grown, so too have our procedures for managing CRY events. Our screening programme has been successful, but in order for us to continue with this line of work, the CRY Mobile Team will take a more directive role in how events are managed. These written guidelines have been devised to give families a better idea of what's involved when agreeing to commit to a CRY project. The Guidelines do take some time to read, but understanding what's involved prior to making a commitment to a project is absolutely essential. Please contact me directly to request our Guidelines.
Onto medical equipment and one of our ECG machines, originally funded by the Shuttlewood Clarke Foundation has been re-housed. This machine, donated in memory of Paul Scotton has been moved from Anstey Surgery in Leicester to Hugglescote Surgery. Thanks go to John Bick, who collected, cleaned and repaired the ECG prior to placing it with its new "caretakers". John also supplied a training session which was attended by a range of medical staff, so he was the all round star of the day! It transpired that Anstey Surgery already had an ECG machine in place, of which we were unaware, and so the CRY ECG was not put to best use. We are very pleased to know that it is now housed in an environment where it will be used for the benefit of patients on a daily basis. Tracy Scotton will be contacting Dr Newman at the Hugglecote Surgery shortly, to arrange for local publicity. Dorset County Hospital’s Paediatric Department has been presented with an ECG machine by the Moss family in memory of Laura Moss. Alan and Gloria have had some amazing local support, which has helped them to reach their fundraising target. The machine has been placed into the Paediatric Unit, where is will be used in the treatment and management of young inmates during their stay at Hospital. The Unit was both touched and delighted that they had been given an opportunity to receive such a valuable piece of equipment, particularly as Gloria is linked to the Hospital through her work. To date, CRY has placed 26 ECG machines. These have either been donated or paid for by the hard work and dedication of our families and supporters who want to raise levels of awareness within local communities. _______________________________________________________________________
We are now in the process of putting together our summer programme of ECG Testing and Screening events. To date, we have Irene Wickers and Granville Staff booked in for Testing on 30th June and 1st July and Jo and Charlie Cross for August 18th and 19th. This will be a special event for Jo and Charlie as Charlie is due to retire in September. Sally Reid has just held an ECG testing session (on 31st March and 1st April), so we will have results available shortly. Two further Lawn Tennis Screenings will be booked in between now and the end of July too. These will be based in Leeds and Bolton. We have already held an LTA screening earlier this year in Hertfordshire, with two to follow in Loughborough on 24th April and Cambridge on 16th May. _______________________________________________________________________
Finally, we have been offered an incredible ECG Testing opportunity with Millfield School in Somerset. Millfield is a private school famous for its standards of academic and sporting excellence with approximately 1200 children. Of these there are at least 200 pupils who are involved in serious competitive sports, operating at County level and above. We have been invited to visit the school in early May to ECG Test school leavers as a priority, working our way through post pubertal young people whose parents have agreed to the testing. This is a marvellous opportunity and we look forward to reporting back progress on the event. If you would like CRY to hold either an ECG Testing Session or Mobile Screening Weekend contact me to discuss arrangements. That's it for now - speak to you soon. Answers to 5 Gold Medal Test - 1. Los Angeles
2. Seoul
3. Barcelona
4. Atlanta
5. Sydney
REPORT FROM STEVE COX CRY`S MARATHON CO-ORDINATOR The London Marathon 2001
Steve, Paul & Anujska (costume designer)
This year many of our runners were staying at the Britannia International Hotel. They kindly offered us a reception room, at a hugely reduced rate. After much debate, and negotiating over the price of coffee and tea, we decide it was an opportunity not to be missed. Thank you to all who came to the hotel on Saturday. Everyone greatly appreciated the opportunity to meet with other CRY runners, CRY staff and our supporters. It was nice to put a face behind all those runners I had been talking with over past months, and the courageous efforts of our CRY hearts who gave great strength to some of the other participants who were trying to remember why they wanted to run in the first place. Receiving my wake up call, it was a relief to finally be facing the day itself and confronting those many Marathon Nights of 'panicked dreams' - running around St. James Park, desperately trying to find just one of our runners who had survived the torrential rain that had soaked the foam, dissolved the glue and disintegrated the costume - not to mention those nightmares when I had at the last minute to replace an injured costume runner. Watching TV just before the starting gun, after spending half an hour pinpointing red splodges in the crowd of thousands, the TV screen was suddenly filled with huge red hearts, with Mark Orchard, Head Fireman, being interviewed for CRY. The gun went off and the race began. It is hard to predict the potential problems for an event of this size, with the inevitable pitfalls. However, somehow with tremendous team support we managed to pull it off - even the weather was kind, saving the rain until the last costume had been taken to the CRY van (which I had managed to park very conspicuously on the Marathon route!) Special thanks to the Britannia Hotel for the incredible deal you gave us. Also to the CRY team - Pat our volunteer Family Co-ordinator; Jan our Administrator and her partner Dave; Tony our Office Manager; and my sister Lorraine and my partner Lada who were there to help make the day run smoothly and were amongst the last people to leave the park on Sunday night. Also to all those formidable supporters of our runners throughout the race.
CRY’S WEB SITE
Although personal contact is so important in communication, the Internet is a place where news can be exchanged with many different audiences, and more specifically can help the small organisations communicate in a way that was previously only possible for the larger government funded groups. For many reasons, people are often unable to call the office to ask for much needed advice. Individuals from around the world have access to medical literature that is teaching them about these potentially sinister conditions. Back in September of last year it was an exciting day when the CRY website had a couple of visitors! Over the following months, as the site has developed, that figure has risen considerably, to a high of 110 visitors on the day before the London Marathon. This is without being registered with many of the major search engines, which I hope to now organise. The news section has been developed to keep articles on CRY updated so that readers can, in some cases, see them within a few days of us receiving them, or even going to press. This is dependent on having permission from the papers’ News Desk so it is not always possible to have every article. However Editors are usually supportive. The upcoming events section of fundraising on the web site is to help all our supporters keep in touch with what is going on and when. This will help everyone know where events are being held well in advance. Many events are annual, such as the London Marathon, and it is an excellent way of keeping people in touch with how they are developing. Often our volunteers have said that if only they knew something was being held they would have liked to turn up on the day and given their support. After fundraising the past events section is for those supporters who would like to put together a write up of how the day(s) went. If these can be emailed it will help us considerably and if you can also send or e-mail us some of your favourite pictures that would be fantastic. Over the past months we have been making every effort to have as much detail on the web site as is possible. I aim to keep this updated on a weekly basis. If you have any further ideas on how the site could develop I would be delighted to hear from you.
CRY AGAIN REFUSED FOR CRY AGAIN REFUSED FOR SECTION 64 GRANT FUNDING
Every year through the Section 64 grant scheme the government allocate £21 million for charities that they consider to be of strategic importance. Every year (5 so far) CRY has applied to be considered for a grant from this fund. Every year we have been unsuccessful in spite of the fact that:
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we have now donated 26 ECG machines to local communities which are placed in hospitals or doctors’ surgeries for general use - total value approximately £130,000 our echo machine placed in outpatients at St George's Hospital, Tooting (considered a centre of excellence for referrals for these conditions) has screened over 12,500 patients. The estimated value when purchased in 1994 was £120,000.
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we have funded and developed a counselling skills programme to train families who have suffered a tragedy and are developing a national network of trained volunteers who have themselves suffered the loss of a first degree relative, to help others through a similar loss. G.P.s, who often have very little information on these conditions that can kill apparently fit and healthy young people so swiftly, do not know how to help affected families and are relieved to be able to refer them on to a specialist organisation.
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we have a pro-active screening programme that works with volunteer fundraising and expert medical support to take ECG testing and our mobile screening team (ECG and Echo) into communities that do not have access to such a facility. This can be in response to a young sudden cardiac death, when there is disbelief and considerable distress in the community and where we aim to educate and reassure by screening, those that request it. by raising awareness and sending out free medical information on request we save lives. Usually there are symptoms. Often these are dismissed or ignored. We aim to inform people by helping them understand the symptoms and support them until they have been listened to.
When the "rejection" letter comes each time telling us we are unsuccessful with our application there is never any explanation of why, or what we should be focusing on to attract government support. Consequently it is difficult to understand exactly what constitutes an application of "strategic importance" so that we can progress future proposals.
SECTION 64 GRANT FUNDING So far we have: raised over 1 million pounds in 5 years entirely through our own and volunteers efforts donated medical equipment to the NHS worth approximately £250,000 contributed to medical research through our pro-active screening programme which gives experts the opportunity to evaluate fit and healthy hearts. By comparing these with young hearts that are affected it has enabled experts to be more accurate in their diagnosis and understanding of the progressions of disease. yet - we have never been given any acknowledgement or encouragement at a governmental level Accurate statistics are not available but We know that at least 4 apparently fit and healthy young people a week are dying suddenly from undetected cardiac abnormalities. We know that further research due to be published this summer is going to show that this is a conservative estimate. We know that young sudden deaths are incorrectly attributed to other causes such as asthma, epilepsy, pneumonia, accident.
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Before CRY started official statistics were 1 death a week. Within 3 years we found it was 4 deaths a week. It is now believed it could be 8 deaths a week. We are told that our screening programme is not "cost effective". Statistically the impact of all cardiac deaths are treated equally and that of an apparently fit and healthy young person is given the same significance as that of a geriatric. But cardiac problems in the young are treatable and worth the NHS investing in. Our young people have the whole of their lives ahead of them. Some will also have dependant young families that will have to be supported in the event of their death. Evaluated clinically it should be highlighted that those that are not diagnosed and die, will be deprived of the opportunity to put into effect the investment that has been made in their education by the government as their income earning (and tax paying) years are ahead of them. Another consideration not evaluated is the support needed by the peer group and family after a young sudden cardiac death of an apparently fit and healthy individual. This cannot be exaggerated. The effect is catastrophic and something from which all those who have experienced it will possibly never fully recover. The sudden cardiac death of a young person results in the crucifixion of a family. CRY is trying to make people listen. WHEN WILL ANYONE HEAR WHAT WE ARE SAYING?
RUNNING AROUND LONDON IN A CRY HEART As we approached Blackheath at 7.00 a.m. last Sunday, the morning of my third London Marathon, I found myself wondering "Why?" Not only was I about to put myself through all that agony again, but this time I had agreed to do it in a large red heart. Friends had said I must be mad and now I was beginning to believe them! It had all seemed like a very good idea at the time (months ago) but now that the event was imminent and the heart was sitting in the back seat of the car grinning at me I felt an impending sense of what was to come! I had collect my heart from the CRY office a month before and had practised once in it, running 6 miles along the beach with my (very) brave running partner and my dog. It was our regular Monday run and I have to say that it was very interesting with many bemused looks, some choice comments and even one or two, who being unsure of what was going on or what to say, chose to pretend they had not seen me at all!!! I was pleasantly surprised at how well that run had gone and I felt confident, but that was then, and now I was contemplating 20 further miles to run. What had I done? What if I got too hot, what might rub and chafe, what if it rained? At the start I spotted a group of other CRY hearts and we got together for some photos and a comparison of vaseline areas (you had to be there really), before we made our way to the start. Once in the group at the start, the nerves seemed to evaporate and the emotions of the situation really took over. I will never cease to be moved by all the high emotion and drama of the event, and just talking to all the others around you is an experience that brings me close to tears. Suddenly the gun is heard, a cheer from all around as we begin our slow process towards the line. 11 minutes after the gun our feet cross the start line (still walking at this stage as the road is still blocked with the large numbers of competitors!) One of my main concerns had been how I was going to manage with the portaloos if needed, being such a wide load, and with arm restrictions. Well in the end I didn't need one so can't shed any light on the answer to that particular problem! So how was it? Well I can honestly say that the heart felt great and there were no restrictions to running at all. In fact by the end I was very attached to my heart and it had made me really feel part of the whole London Marathon experience. I had loads of people asking me what CRY was all about, and as I made my way round people kept calling my name and encouraging me with "come on the heart" or even once or twice "come on the tomato!!! " So how did I feel at the end? Well after 4 hours and 41 minutes, elated, tired, hungry and elated again. There is nothing like the feeling at the completion of a marathon and unless you've been there it is very hard to explain. The hearts were great and the feeling of being in with the spirit of the marathon with the other fancy dress runners made this one extra special for me, and it is certainly something I will never forget. Caroline Gard
CRY ATTENDS LAUNCH OF MEDICAL TECHNOLOGY GROUP CRY SUPPORTER STEPHEN ALLAN SHOWS HIS RECENTLY INSERTED ICD TO EARL HOWE AND MARK WENDRUFF AT THE RECENT HOUSE OF COMMONS LAUNCH OF THE MEDICAL TECHNOLOGY GROUP. EARL HOWE IS HOLDING AN ICD SIMILAR TO THE ONE STEPHEN HAS. MARK WENDRUFF RECEIVED HIS ICD 5 YEARS AGO. THE NEW PROTOTYPES ARE FITTED INTO THE LOWER CHEST MUSCLE. EARLIER MODELS WERE PLACED IN THE STOMACH.
Cardiac Risk in the Young is part of a coalition group working to raise the profile of how medical technology saves lives. At the recent launch of The Medical Technology Group in the House of Commons Lord Hunt (Parliamentary Under-Secretary of State for Health) described it as "a celebration of innovations in science and medicine." He was among 30 MPs, Ministers and Peers who supported the event aimed at raising awareness of the positive impact of technology on people's lives and pressing for health-care policies that facilitate patient access. The Group wants to ensure that funding is available for all patients who would benefit from new technology which it believes is "saving and improving lives." The ICD (Internal Cardiac Defibrillator) is a device for rapid detection and treatment of life threatening changes in heart beating patterns (ventricular arrhythmia) and sudden cardiac arrest. It is implanted in the lower chest muscle, with one or more leads passed through into the heart. Should the device detect an arrhythmia, it sends electrical impulses into the heart to correct and restore normal rhythm. ICD implantation in the UK needs to triple before it can compare to the average rate in Europe. It is now considered to be the most effective response to those young people considered to be at risk of suffering a sudden cardiac arrest, who will have been diagnosed with a potentially life threatening cardiac condition. Stephen Allan's brother Richard died suddenly aged 16, last September from Sudden Death Syndrome. Stephen was immediately screened and given an ICD.
LAUGH OR CRY? Well, I have been asked to write a short summary of my problems and what happened to me with my condition. Well firstly I must apologise for the light hearted-ness that I treat the subject matter. For those that have lost loved ones it is not so easy. For me I have been lucky and I have lived through something that takes so many lives. I have the privilege to be asinine about it, and that's the way I like to stay. At 15 I had become to feel more stressed and worn out than all my other school companions. During sports I was dragged into team games and athletics. I was grudgingly put on the Netball team and ran the 1500 metres each sports day. Shot Putt was okay; I was able to do that without feeling ill. No one ever asked me why I felt sluggish, or unable to do anything, so I grew to feel it was my fault. That I was fat and unhealthy. I wasn't either. I was just unlucky. Gradually the pressure of exam revision and teenage life escalated to a summit, my exams. I was fifteen when my symptoms first appeared in the middle of Maths GCSE, the exam I dreaded the most. My head started spinning and I was allowed to leave the room. Considering I had never passed out before, or fainted it surprised me that I knew that this was what I felt like I was about to do. A year later during a History lesson I woke up on the floor. This was the beginning of a long process of useless tests . The hospital could not find anything wrong with me, so I was sent home. They seemed to think I may be epileptic. I was sent to another hosptial for a neurological test. I was strapped to a table with lights and other things attached to my head. 'Fit, Nadine, Fit' the nurse said as she flashed the strobe light into my eyes. It just made them ache. I felt like a freak. I tried to explain how I felt when I passed out, which was happening every month now, and if I didn't go all the way out I kinda floated, my brain shutting off from the world. It was hard to explain, but I did try. I was then treated for epilepsy for 2 years. On medication the attacks still occurred. I kinda learnt how to control them. If I felt a head rush coming on (a sudden rush of blood straight to my head making it feel like a hot popcorn kernel) I'd buckle my legs and land on my bum. Unfortunately it didn't always work like that. One time when I was at work I was handing over a computer game to a young boy and passed out, cracking my jaw on the record cabinet behind me. Another time it was a little more serious. It was a Sunday and my colleague Phil and I were laughing and joking as we served customers their Sunday papers. Then the world was black again. I fell into a bucket we had been using to clean the shelves. My employer feeling I was less important than the price of 'The Sun', walked over me. Phil ran to the shop where my mother worked, when she arrived, my 'boss' was standing on my numb hand serving customers. I went to the hospital again. Nothing happened and I was sent home. That night went on for 10 days. I fell unconscious 14 times, but it could've been more, when you're unconscious you can't count can you. I remember my poor mum sleeping in the bed next to me. She was so exhausted she didn't see all my syncope, but I remember waking up with my face squashed against the radiator when I fell off the bed. We called a local doctor. By the time he arrived I had begun to be sick. I took the opportunity to do a 'why is it always diced carrots?' joke. He laughed, which made me happy. I wanted to go out on a joke. I did kinda think I was dying at this point, but hell if I was gonna let anyone know, particularly my Mum
by NADINE FARNON and Dad. I was sent to hospital again. This time they finally believed it was not epilepsy. I can't remember too much of it. It was a good 10 days before I was fully conscious. I had tubes everywhere, central lines, taps, venfloms, monitors on my heart etc., etc. The attacks of syncope were getting longer. I was moved from A & E to ITU, the Doctors became worried. The syncope was becoming dangerously long now, between 3 and 4 minutes; they began to defibrillate. The first pads jolted me back into consciousness; the next one was literally a shock, as I was already awake. Each time I began to come round I was faced with a row of doctors and nurses that were as worried as I. I came out of the syncope to face a person with the charged up pads, ready to shock me. They hit me like an angry horses hind legs 'Pow'. I passed out again. When I woke, I felt the after effects. Unbelievable, I had laid there staring into their faces yet no one had heard me. I looked dead, but I was awake. When I came round I was faced with a chest black and layered as jet. From amber to ebony the bruised skin shone transparently. I felt like I had done something wrong. They kept asking my Mum and Dad whether it was drugs and stuff. It was very frustrating. I spent the next week or so in the Coronary Care Unit. No one knew what was happening, or what was wrong with me, only that my heart was now enlarged from all the defibbing. The doctor came to the conclusion it was a virus, like a cold or something that had attacked the electro-chemical impulses in my heart. I was ordered to take 2 years rest. No A Levels nothing. My friends did theirs and went off to University. I couldn't go out anymore so only two or three stayed in touch. Over the years I had several tests, angiograms, physical, 24 hour and 48-hour tapes, ones you use down the telephone. Still the results were unclear. I kept going to the clinics. The doctor was a nice guy so me and my Mum always looked forward to seeing him. The tablets I was on made me feel ill sometimes, particularly in hot weather as they made my eyes and skin very sensitive to sunlight, and I was always getting burnt. 4 or 5 years after the first stay at the hospital the doctor felt that the problem should have gone away by now, so my medication was stopped. For about a week I didn't feel too bad. Then one day I passed out a couple of times. Later that night I was lying in bed, and I started to feel dizzy again. I then passed out. When I woke I knew I had to get Mum and Dad. I crawled on my hands and knees into their room; I was too weak to get up. I went back to hospital again. Nightimes were the worst as it was so lonely. One doctor helped me one night by calming my nerves and holding my hand. Finally after about 2 weeks everything settled down, and I was put back on some anti-arrhythmia tablets. One of the Nurses joked 'shall we book a bed for another five years?' Oh I wish she hadn't said that! It was now over 9 years since I had first become ill, and I was still going to the clinics. One day I saw a Dr P Boreham, 'Oh yeah' I thought not another new one. But the guy was great and really interested in my illness. He asked whether I'd mind if he had a closer look at my notes. I then got a phone call telling me he thought I had Long Q-T. Just like that after this long. I was sent to have a MRI scan . Bit like going into space, or being in a coffin - depends what CD they put on for you I guess. Weeks later the doctor confirmed it was Long Q T. I then saw the story run by GMTV, and contacted CRY Nowdays I'm feeling a lot better and my heart rate even slips into normal sinus rhythm now and then. I even had a print out given to me to prove it. Maybe I should frame it? Nadine C F Farnon age 27.
A FANTASTIC ÂŁ1262.63 HAS BEEN RAISED IN MEMORY OF THERESE FIELD
On 9th September 2000 I organised a song and dance show in aid of CRY. It was titled "Unforgettable" and was in memory of my sister Therese who died suddenly on 9th April 1997. The show raised ÂŁ1262.63 and consisted of jazz, tap and ballet routines as well as some vocal numbers. There was a cast of 60 ranging in ages from 4 to 37. I must thank them all for their tremendous work and support they gave to me and the show. The show was performed at the Theatre Royal, Margate and they were so impressed that they have given us a date for next year. I will do another show on that date and hopefully raise even more money for CRY. Tara Field
OVER £3,500.00 HAS BEEN RAISED IN MEMORY OF ANDREW BLOW Andrew, a second year Business student at Hull University, died on 10th of May 1998 of Dilated Cardiomyopathy. He died playing football for his Hall of Residence team. The last time his parents John and Linda saw him was on the week of his birthday. The Knights of St Columba donated £200 towards the Andrew Blow Memorial Fund which was raised through a Supper Dance attended by friends and family of the local church group.
THE SNOWDON CLIMB John participated in a hike up Snowden which Linda helped organise in memory of their son Andrew who died while playing football for his University Hall of Residence football team on May 10th 1998. The climb was blessed with good weather and so successful that John hopes to do it again. John and Linda were overwhelmed by everyone's kindness. Especial thanks to the Dry family and friends, David Titchfield, Dave and Sylvia Francis, John Highton and Mike and Andrew Glover for their fantastic support.The Co-operative Insurance Society that John is employed by donated sponsorship of £1,000 when John told them that 5 members of staff had participated. This money came from a Community Award Scheme run by the company. Over £3,000 was raised from the hike to go towards a mobile screening in Andrew's memory. A donation of £200 was made by The University of Hull Business School which Andrew attended. John and Linda raised £150 from the proceeds of a Christmas Raffle they held. Andrew's grandmother ran a Bingo event and raised £206.A family Car Boot sale raised £100.
A WONDERFUL £6247.01 HAS BEEN RAISED IN MEMORY OF STEWART HOWARD Ever since Jane Howard got involved with CRY, Tesco has consistently supported her fundraising efforts for her son Stuart`s Memorial Fund. In the early months of 1999 their staff held a Car Boot Sale at Tesco’s, Thetford on Easter Sunday raising £884. D Burley also organised a quiz night and raised £130. In the months building up to Christmas, a hugely successful sponsored slim by the Tesco Tubby Team produced a fantastic £709. They all went on a sponsored diet for two months before Christmas and lost 20 stone and 3lbs between them. In December 1999 they sponsored a fabulous Fashion Show, producing a magnificent £2225.61. A special thank you to Scott Garrod who we hear worked his socks off on the show and without whom the event would not have proved so successful. Several donations and fundraising events held in the run up to Christmas and just after produced a super £846.90. for Stewart’s Memorial Fund This included selling of badges, Sponsored Slim, selling Star Wars posters, a Disco arranged by the CRY Committee together with donations to make up the total. In April 2000, Mrs Pip Jepson raised £133 by playing the organ in Thetford’s Tesco. A further £191.50 was raised to add to the total of their Tesco sponsored slim including the proceeds of selling their Fashion Show videos. In April of this year £525 was raised by Jason Aylott through sponsors from workers at Tesco Kilverstone store for the Great North Race in memory of Stewart. Nine employees from the store raced to cover as many miles as possible in just 24hrs. In February of this year a Sponsored Walk, Car Boot Sale , Halloween Disco and last but not least Bread sold for Ducks by the Riverside Kiosk at Thetford raised a fantastic £629 for Stewart’s Memorial Fund.
THE CROSS FAMILY AND THEIR SUPPORTERS HAVE NOW This year Jo and Charlie Cross will be having their 3rd mobile screening in August. Jo always does a fantastic job raising awareness of CRY in the media at these events and we have received terrific TV and newspaper coverage as a result of all her hard work. David seen right at a party in Singapore in 1996 The CRY Team at one of Jo’s screening’s (exc.Sanjay) John & Gill Waudby, Jo, Harry, with Caroline & Richard Kumar
Colin and Mary Wilkinson, of 'Colin's Hairdressers' Brunswick, Newcastle upon Tyne, instigated a fundraising event, raising a total of £155 with the support of customers for David’s Memorial Fund.
The Sunderland Health and Racquet Club raised £419.10 with two hugely successful fundraising events in memory of David. The Guisborough Amateur Swimming Club and The Tyne Triathlon Club have also given the family considerable support. After seeing a notice in the Ponteland Lesiure Centre regarding one of Jo’s screening weekends, Maureen White raised £183.50 towards screening in the North East. Jo’s brother in law raised over £600 running in David’s memory at the Great Great North Run. This inspired Adrian Woodhead who had a great time competing and raising nearly £200. After losing his wife Sarah from ARVC Adrian became close friends with Jo and Charlie and often visits them at their home in Ponteland.
RAISED OVER £16,000.00 IN MEMORY OF DAVID
Jo and her supporters have had tremendous success with the sale of Christmas Cards raising over £3,000 for CRY, The proceeds from selling the Bolam Lake card, which was reproduced with the kind permission of Margaret Morrison, have been a fantastic fund raiser. This was supported by the Stables Coffee Shop at Bolam Lake, and the Ponteland Gift Shop who raised nearly £400. We still hold stock of the Bolam Lake card in the office which sell fo £5.00 for 10. Once again many thanks to Betty Crawford for all her support in selling CRY cards and gifts. Also to Connie Platten who has been making and selling needlepoint cards for CRY raising over £100 Jo and Charlie (and ‘Royal spade) with Lucy from Northumberland County Council, planting the first of 26 Oak trees around Bolam Lake in memory of David Last July Carol Wood of Kingston Park, Newcastle accomplished the well-known Great North Walk. Carol raised £200 through sponsorship which she kindly donated to David’s Memorial Fund. Susan Ewart of Northumberland also took part in this 10-mile trek supporting David’s Memorial Fund.
OUR FUNDRAISERS IN MEMORY OF PHILIP ABRAHAM Mary Abraham (Philip`s Mum) has sent in a wonderful £500 donated in memory of Philip through a local parent, Mr Rob Burnett, who has been so supportive over the years since she lost her dearly loved son. What a wonderful gesture of support that must have meant so much to Philip`s family. IN MEMORY OF DARREN CHASE Leanna, James & Darren
CRY are extremely grateful for the cheques received from Darren`s Mum Shirley Damon for £670 raised by friends and family in memory of her beloved son. The sum of £200 was kindly donated in memory of Darren by his cousin Barbara and a further £15 was the contents of a penny jar that Darren used to put in his loose change. Thank you Shirley for sending this in to CRY.
IAN JOHNSON MEMORIAL FUND Jean Johnson received a lovely letter and a very generous £1000 donation to CRY for her husband Ian, who died in July 1999. This came from a kind gesture of Frank Collins who was a business associate and had dealt with Ian through his business for several years. They had a mutual respect and admiration for each other. Having both started with nothing and both built thriving businesses in the retail trade. A further £200 was a token of appreciation from Jean herself and to thank CRY for all our help.
DIANA STAFFORD HAS RAISED AN INCREDIBLE £30,896.96 IN MEMORY OF HER SON DAVID David, one month before he died
A special thank you to Diana Stafford for all the letters that she wrote on CRY’s behalf appealing for funds. This yielded a wonderful donation of £30,000 in January - which came just in the nick of time to see us over a very ‘tight’ patch. Diana was keen to support CRY after her son David died suddenly of a heart attack age 30 in 1988.
A BRILLIANT £2367.00 HAS BEEN RAISED IN MEMORY OF MIKE SCOTT When people think of Mike they think of lots of different things: his great and unrivalled skill as a basketball player; his good nature or his cheesy grin. When I think of Mike I think of all these things, but above all I think of the best friend I ever will have. Friendship does not seem strong enough to describe the bond me and Mike developed. He was more like a brother. Part of me lived in him and part of him still lives in me. None of my jokes were complete without him by my side, in fact there was’t much that was complete without him by my side. Whatever was happening in my life, however things were changing, one thing I knew would never change was Mike. In so many ways we were like chalk and cheese, I got drunk and made a fool of myself, I stayed sober and still make a fool of myself, whilst the whole time Mike was there, by my side, just grinning that great big cheesy grin that just made everything O.K. But it wasn’t all about having a laugh. If I had a problem he would sort it out and vice versa. We could talk about anyone or anything and know that it would go no further. So many people wanted to be like Mike - Lord knows why, I was always the good looking one! - But really, I can understand why; Mike could have been a role model for the world, everybody respected Mike, I don’t need to explain why. It is very difficult to turn feelings into words, but if I could, not one of those would be bad. I don’t know a word worthy enough of describing Mike, except....Mike. People say think of the good times.... They were all good times! Mike, you were and always be, the best friend I ever had. Your body may have gone but you are still so alive... Here, in my head.... And here, in my heart.... With my memories. I’ll miss you , Mike. Hadleigh Standen
Ben and Allan, with Mike’s Mum, Marje, who ran in last years Great North Run A thanks to all the sponsors that supported Marje and raised money for Mike’s Memorial Fund. Further sponsorship from The Great North Run and a Quiz Night produced another terrific £213 for Mike’s Memorial Fund. Sarah and David Bumby who celebrated their 25th Wedding Anniversary in August donated £100 in lieu of gifts from all their friends who came.
Tom Leng was tragically killed in a car accident at the age of 17. Tom was a great Mrs Mandy Silk kindly organised a fundrais- supporter of CRY, in Mike’s ing for CRY at Ryedale School Re-union memory, and his parents and raised the fantastic sum of £220. Thank asked for the Retiring you Ryedale and Lady Lumley’s schools for Collection of £666.55 to be your continued support donated to CRY.
SUZANNE MERRY RAISED ÂŁ3,757 I had never dreamt that I could ever run 26.2 miles. This was such a mammoth task. It was my first Marathon and I was the first and only Irish runner for CRY. The great event started at 8.30am, Brendan & Evelyn Merry (parents) David, Michael on a cold Bank Holiday Monday and Marie, Kenneth, Suzanne and Aunt Brigid Greene morning on 30th October 2000. This was the 21st Dublin City Marathon and 8,625 runners ran through the scenic suburbs of Ireland's capital city.In August I heard an advertisement on 98FMradio station that they were looking for participants to run in the Marathon in October. Immediately, I decided I was going to do the run and I wanted to do it for a personal charity, CRY. It is personal as my cousin, Peter Greene, died at 15 years of age, four years ago, of an undetected heart problem within hours of showing symptoms. I wanted to do this race in memory of Peter, and his cheery outlook on life. He was very much involved in sports and was the captain of the school rugby team. I knew that once I told Marie Greene, (his mum), that I would run the Marathon for CRY that I would definitely set my mind to the personal challenge and I was determined to complete it. As I had only decided to run the race last August I started to train extensively for two and a half-hours every day for the next 2 months. I joined an Athletic Club and ran with them regularly. Paddy Craddock trained me and gave me advice and continuous encouragement. Paddy is an experienced runner, this being his 37th marathon. I also joined 2 walking clubs, an aerobics class, swam, walked and ran every day. I did some research on the best food, the best stretch etc, and had to purchase the proper road running Marathon shoes, shorts and dri-fit running vest.With all the training, no alcohol, loads of advice from the professionals, long list of the low-fat/high energy foods to eat, I prepared myself for the Marathon day. I put a lot of hard work in to looking for sponsors. A big thanks to Marie & Michael Greene who prepared a support letter, which I sent to many people explaining about the charity and seeking sponsorship funds. I spoke to people about Sudden Death Syndrome and raised awareness of the cause. From that a huge amount of money was raised for a great cause, hopefully for a pilot project to bring a mobile screening unit to Ireland to detect early diagnosis of heart conditions in the young. I know all the hard work is worth it. I am touched by the kindness of all my sponsors.The week before the race a raffle was organised at work, my office manager donated the prizes, to raise extra funds for CRY. Due to the excellent prizes the response was fantastic. ÂŁ343.00 was raised, everybody was so generous. I received a huge amount of Good Luck letters, e-mails and telephone calls, which I really appreciated. With all the encouragement from my friends I trained even harder.I was so excited (my stomach was wibbly wobbly) and really looking forward to my run. Now it was time to prepare myself mentally for the day. I enjoyed a massage and relaxed as best I could. The day before I walked a few miles, ate no fruit and stocked up on isotonic drinks, sugar, pasta, vegetables and salmon the night before.At last the "Big Hype" was over and the day had finally arrived. I had to eat my breakfast 3 hours before running (5.30am!) and smother myself in Vaseline. My dad drove me into the city centre and I was a bag of nerves.I ran with Ruby, from Singapore. This was her 15th
IN MEMORY OF PETER GREENE Marathon. The starting line being The Four Courts on Arran Quay. The atmosphere was electric, and everybody anxious to start, there was a bit of fun when someone started the Mexican wave. Over half the runners were foreigners, mostly Americans and Canadians and were really in a holiday mood. The gun fired at 8.30am and it took us 7 minutes to cross the starting line. We had promised each other that we would start and finish together. We kept that promise and never lost sight of each other. I had trained with Ruby and throughout the race we had kept a steady pace, running at 5 miles an hour and thinking positive. We motivated each other.
Suzanne the day before the race
Soon the nerves subsided and I got on with what I had worked so hard for. Unfortunately, it started to rain and it only cleared up for a while. The crowd of supporters that were throughout the race was amazing especially the Americans who were shouting "Good job", "Keep going", "Well done", "Need a rub". What kept us entertained were the cheerleaders and the other runners dressed in costume. I enjoyed crossing the 15th mile marker knowing that I had run more than half the race and that I was getting nearer and nearer to the finish. I had only trained up to 15 miles and I knew that I would be struggling beyond that on the day, I was right. I only had to walk a mile of the race, as my knees were very painful. Ruby and I kept each other going throughout the race, as we chewed Jelly Babies, Mars bars and drank isotonic drinks! At times I had a tear in my eye (not just with pain) as I thought of the reason why I was running. I also knew that CRY would be financially better off with all the money that I raised. All morning my supporters chased from one venue to another appearing at various points along the route. I could see the red CRY balloons in the distance and cheers "Come on Susie, keep going". My supporters kept in contact with each other by mobile phone reporting where I was and how I was doing. I was determined to complete the race. The last 4 miles were the worst ever, I was really struggling as I thought I would never see the finish line. I was absolutely delighted when I saw my supporters at the 22-mile marker and thrilled when I saw my cousin, Kenneth Greene, running beside me for the last 4 miles carrying the CRY balloons and my drink. He encouraged me to keep running when I thought I had no more energy left. Kenneth is Peter's brother so it was apt that he would finish it with me, it was also unplanned. As I headed into Smithfield, it began to rain again, the supporters were lining the finish area, and it was an exhilarating feeling. I successfully completed a 26.2 mile run and the adrenaline flowed. When I crossed the line with Kenneth, still carrying the red balloons, Coming to the finish line I was so overwhelmed that I had done it. with Kenneth (Peter’s brother) Peter's face flashed across my mind. I was so happy to finish especially when I saw my family waiting for me. It was wonderful, I felt proud. It was such an achievement for me, I would recommend it to anyone, once in a life time experience and one I will never forget. I owe a Big Thank You to my team of supporters. I thoroughly enjoyed the day. I will always cherish the commemorative plaque that I received after the race. Needless to say I really enjoyed a long hot soak in a bath, followed by a celebration party with my family and my massage the next day. My legs were quite sore up to the 4th day after the race. I can say that I once ran the same race as Irish Olympic Silver Medal winner Sonia O'Sullivan. A goal I achieved for the Millennium year. At 31 years of age my dream became a reality. MY TIME: 5 HOURS: 23 MINUTES: 5 SECONDS RECEIVED: £3,757 FOR CRY A BIG THANKS TO ALL SPONSORS
A FANTASTIC £2,792.00 HAS BEEN RAISED IN MEMORY OF LEON MANNERS Eight months after the loss of her son Leon Ashley aged just four, Julie Hatton with the strong kind support of her friends and family organised a Pub Night and Sponsored Walk which raised more than they had ever hoped for.
Leon Manners
Beacon Pub was the venue, the place of Julie's work and with thanks to Ian Parker, the landlord hosted a charity event in aid of CRY. By placing posters in the nursery where Leon attended and around the village the event attracted in excess of 250 people. A bit of a tight squeeze for all. Friends, shops and businesses gave generously to both the tombola and the raffle allowing some wonderful prizes for the winners. With so many prizes there was something to suit everyone. They included a walkman, free months gym membership, a Julie, Landlord Ian and Janet clock, bottles of spirit, vouchers, a magnifipreparing for the Charity night cent hand carved ‘horse & cart’ for the garden, gift sets not forgetting the cuddly toys. The night continued with a Horse Racing event which could be seen by all on a large screen. You had to simply place your money on the winning horse!! All those who didn't study the form were only too pleased to see their money going towards the Leon Ashley Manners Memorial Fund. And what better way to end a truly successful night than to call on all those Tom Jones and Madonna sound-alikes for a spot of Karaoke. The night was an amazing success and with thanks to the entire team who helped in putting the event together raised an amazing £2,792. Julie would like to express her gratitude and thanks to Landlord Ian Parker; Sanjay and Neeta Patel for their generous donathe lucky winner of the tion;Peter King for the autographed Horse and Cart Premier Division football shirt; John Hughes for his fantastic hand carved ‘horse and cart’, all the businesses that gave gifts for the raffles and a very big heartfelt thank you to all her friends for their support, love, patience and understanding. A very special thank you goes out from Julie to her partner, Abid, for his constant support and for giving Julie the strength and a reason to go on.
BULLETIN BOARD
As you know my Mum, Rose Hill, died on Valentine’s Day February 14th. Thank you so much to everyone who has called in or sent cards to the office in sympathy. To lose her from my life has been indescribable. She was a fantastic Mum, a terrific work colleague and an awesome friend. Many of you have had such devastating tragedies and yet have still been so supportive to me. I would just like to say that your support at this time has meant so much. With love from
CRY`S Powerpoint Presentation is now available in either CD ROM or FLOPPY DISC formats. Ideal for fundraisings where a computer can be used to display information about CRY. Also featured is CRY`S Website so if any of you haven`t got access to the Internet and you would like to see the site now`s your chance! The cost is £10.00 inc P&P and can be obtained from the office
SECTION 64 GRANTS CRY was again unsuccessfull in it`s application for a Section 64 Grant for 1999. If anyone would like the list of successfull applicants please apply to the office
Luci’s Locket for CRY Luci has designed, especially for CRY, a superb sterling silver (or 9 carat gold) locket which opens to hold two photos. The silver chain can be any length up to a maximum of 20 inches, and the locket can be personalised with the addition of any initial. The cost, including post, packing & insurance is £75,00 and order forms are available from the office. Gold initial and clasp are available for the additional charge of £15.00. All lockets are made individually, hallmarked and engraved on the back with CRY and our ECG line. Maureen Ward CRY`s ECG “Consultant”! Maureen has offered to talk to anyone needing help with organising Mobile Screenings, ECG Testing , or Ethical Approval. You name it. She`s done it! Try her on 01834 843742
Michelle Houghton has compiled a brilliant recipes book if anyone would like a copy please contact Irene Wickers on 01254 707895. They cost £1.00 and all proceeds to go to the Neil Wickers & David Staff Memorial Fund
June Boulton is dedicating all her fundraising money for office furniture and equipment, in memory of her 17 year old son John, who died suddenly last year in his sleep of Sudden Adult Death Syndrome. She is doing a “Pubs & Clubs” circuit & would be grateful for Raffle prizes. If you have any ideas or prizes please contact her on 0151 287 2519
ESPECIAL THANKS TO NIGEL COLE FOR THE FANTASTIC AMOUNT OF TIME HE SPENT IN ORGANISING THE ORDERING & DELIVERY OF OUR WONDERFUL NEW VAN
CRY COMMANDO CHALLENGE
NEW CRY GUIDELINES
Unfortunately we have had insufficient entries for this event, which will now be postphoned for this year.
BECAUSE OF THE GROWTH OF CRY, GUIDELINES FOR REPRESENTATIVES ARE BEING INTRODUCED WHICH WILL BE AVAILABLE ON REQUEST. CRY WILL BE INTRODUCING 8 U.K DIVISIONAL REPRESENTATIVES WHO WILL BE SUPPORTED BY COUNTY REPRESENTATIVES. OUR CRY ADMINISTRATOR JAN SMITH IS ALSO PRODUCING A MANUAL ON “GETTING INVOLVED WITH CRY” WHICH WE HOPE TO HAVE READY BY LATE SPRING 2000
We anticipate running the CRY Commando Challenge again next year in the Autumn of 2001
LATEST STATISTICS NOW REVEAL THAT NEARLY 1 IN 100 CHILDREN ARE BORN WITH A HEART DEFECT QUESTIONS & ANSWERS If anyone has any questions that they would like answered in the Brochure then please fax them through to the office. If we have enough interest then a Questions and Answers Page will be included in the Update. (No medical queries please)
SINEAD CHAPMAN We have heard that the surgery Sinead had to insert a defibrilator went very well, but she will be needing to return to the hospital for further treatment. We are all thinking of you Sinead, especially your friends on the CRY Counselling Course.
UPDATE MAILING LIST
IF YOUR MAILING ADDRESS IS INCORRECT PLEASE LET US KNOW AT THE OFFICE SO WE CAN KEEP OUR MAILING LIST UP TO DATE
kids 2/04/01 513 £50 CF Bracknell Berks Royal County of Berkshire Raquets & Health Club Mrs G Childs Our grateful thanks to the "Royal County of Berkshire Raquets & Health Club" for their donation towards CRY'S work which was forwarded by Mrs G Childs picture
20/04/01 522 £58 CF Croydon Surrey Sally Kibble Many thanks for your wonderful cheque, collected at Croydon High School at Christmas for which CRY are most grateful.
9.00 148 £51.32 M/F Darwen Wickers Two little girls named Jodie and Charlotte held a 'garden wall sale' and raised this amount (their grandmother also raised £120.09p through various sales)
The Blythe Community College, in Northumberland, chose CRY as one of their charities and raised £100 through their pupils for the David Cross Memorial Fund.
Debbie Thomas lost her brother Karl in May of 1998. Through numerous activities at Ysglong Grange School in Wrexham Cry received a kind donation of £40.00. Many thanks
2/4/01 446/7 £143 MF Nawton York Allan & Marjorie Scott Lady Lumley's once again raised money(£128) from a non-uniform day in Mike's memory. Also a cheque from Mrs Gamble , Mike's Auntie who donates each year instead of putting flowers on his grave.
10.01.01 No Ryedale School last year decided that instead of sending cards to each other they would put a greeting onto a Christmas Tree in the staff room and donate funds to CRY in Mike's memory. Through this idea they raised a fantastic £190.00
Andrew Blow Children and staff at Holy Cross R.C. School and St Bede's R. C. High School held a nonuniform day raising over £500 in memory of Andrew Blow. St Anne's Scout raffle raised £58 in Andrew's memory
16.11.00
Yes
Write up and photos sent in 16.11.00. Dame Allens Girls School
Over Wednesday and Thusday in early Novemeber, the girls of Dame Allan’s class 11J took it upon themselves to raise money for charity. They made cakes and biscuits, bought sweets and sold the lot off in school, at their very own stall, over the lunch and break times. Over £160 was raised and it was decided to donate it all to CRY through one of teh girl’s boy freinds mum. Richard, the boy in question had recently died very suddenly from teh not so rare heart disorder HOCM (Hypertrophoci Obstructive Cardiomyopathy) and all the girls including his friend Helen Bell had all agreed that this was a very worthwile charity to receive their money. Well done girls!
13.12.00 Last December a tremendous donation of £1,200 was presented to Jo Cross from the Junior section Northumberland Caravan Club, who adopted CRY as their charity for 2000. A huge thank you to all those on the Junior Committee of the Northumberland Caravan Club.
GARY CHALWIN 23.10.00
Yes
£2556.04
‘The reason for throwing ourselves out of this plane was in memory of my 20 year old cousing Gary Chalwin who sadly died in APril. He was found dead in a bus shelter five minutes from his home in Cuckfiled. He was taken to hospital where they tried to resusitate him but after two hours they declared him dead. The doctoers siad he probably died before he hit the ground. The only signs Gary had were two weeks before when he had severe chest pains but only told his girlfriend.’ ‘This has been a tragedy for our family. Our friends have been very supportive and have helped us raise over £3,000 for CRY.’ Photos: Sally Mitchell (1st from left), Amanda, and Paul Mason before jumping 3500 ft from a plane travellin 70 miles an hour. ‘Very scary!’
CORE FUNDING 27/02/01 469 £370 CF Gulidford Sy University of Surrey (Student Union)Sarah Broadley Many thanks to The Student Union of the University of Surrey for raising a fantastic £370 for Cry. We're so glad you had such fun raising this money.
08/02/01 474 £150 CF Tyne & Wear Ingham Reunion Mrs Cecilia Gibson SRN Many thanks for your kind donation of £150, raised at Inham Infirmary's staff reunion
14/02/02 472 £100 CF Tadworth For the loan of our CRY Van many thanks.
Rod & James Sumner
2/4/01 452 £250 CF Woodthorpe Sheffield Mr JP Howell Jason Howell who himself suffers from Cardiomyopathy, has raised a fantastic £250 by having all his hair shaved off. The money was raised with the help of family and friends and work collegues. We have to admire your total dedication to our cause Jason, to take such a drastic action.
ANDY GARD
27/02/01 461 £365 MF ring fenced Frinton 0n Sea Caroline Gard Received the sum of £365 from Caroling Gard, proceeds from ECG Testing on 9/12/00 27/02/01 459 £1561.2 CF Frinton 0n Sea Caroline Gard Thank you Caroline for your support in selling a huge number of Xmas Cards for CRY and for your cheque of £1561.25.
27/02/01 460 £500 CF Frinton 0n Sea Caroline Gard A magnificent £500 was raised in memory of Andrew Gard. £400 from the Lock & Barrel pub at Frinton and £100 from the fundraising efforts of Julie Moorhen.
08/00 225/6 £600 &£508.12 MF Caroline Gard sent in two super cheques, one for £600 raised from various donations badge sales etc plus a further £508.12 from Merrill Lynch & Co, both in memory of Andrew Gard. Thank you for all you do for CRY Caroline.
LEWIS MARSH 26/02/01 458 £5600 MF Sandhurst Berks Sally Reid Yes A Colossal £5600 sent in by Sally Reid. This fantastic amount was raised by The Sandhurst Boys Football Club at The Lewis Marsh tournament last September, in memory of Lewis, this included a cheque for £200 collected at the tournament weekend through a tomboy stall. Gill Marsh and her family are very keen that the money is used to donate an ECG machine to their local hospital "Frimley Park".
Lewis Marsh 20/4/1 506 £3454.79 MF Sandust Berks Gill Marsh We Were open-mouthed when a total of 83 cheques came in from Gill Marsh raised by holding a show in memory of Lewis. What an absolutely amazing success for all of you, and of course for CRY.
27/02/01 479/478 £112 & £95 MF Sandhurst Berks Sally Reid Received from Sally Reid £207 in payment for merchandise for fundraising events. Thank you Sally and Good Luck
INCLUDE FRONT OF CONMCERT
IAN BOWEN
Terry Glasper, who lives next door to Chris (front right),nominated CRY to Uniquema who donated £400 to Ian’s Memorial Fund
At the initiative of Tony Duffy raised over £175 from a quiz night for Ian’s Memorial Fund. Neil and Judy with Kenny and Maralyn
In April of this year, Neil & Judy Sereinson generous donated a bike after winning it in a raffle. Kenny & Maralyn Bowen raised a huge £600 for Ian's Memorial Fund by raffling the bike once again. The person who won the bike, Mrs Betty Taylor, kindly gave it straight back to be re-raffled and therefore raised an even greater amount. Once again a Boxing day dip was held in memory of Ian. A Freezing Fantastic £377.14 was raised by Chris Brouder, and The Middlesborough Teeside Lions Club.
Transco staff raised £590 from the sale of disused cameras. Peter Race and Steve Lanley presenting the cheque???
Congratulations to Steven Davison for raising a super £127 by running the Great North Race in memory of Ian Bowen.
Ann & Nick with Kenny & Maralyn Ann and Nick Coulson giving a cheque for £500 for Ian’s Memorial Fund. Ann and Nick, along with friends Yevonne Flintcroft, Stewie Jones, Ged Ryan, and Barbara Clarkson, from the Pig and Whistle, did the Lyke Wake Walk, a 42 miles hike across the North Yorkshire Moors.
LAMB
20/03/01 509 ÂŁ77.69 MF Stakeford Northumberland Asda Blythe Charity Fund Keith Lamb A colleague of Keith Lamb, Simon Story of Ashington Northumberland was training to run in the London Marathon but an injury has prevented his participation. Asda has seen fit to donate the money ÂŁ77.69 despite the fact Simon is unable to run.
ROWENA MINSHALL CRABB Crabb-Minshall Rowena 1869 £115.70 MF Yeovil Somerset Somerset County Council Annie Cant A big thank you to Somerset County Council for their donation of £115.70 for the Rowena Crabb-Minshall memorial fund.
Crabb-Minshall Rowena 1302/3/4/5 £266.41 MF Yeovil Somerset Fords of Oakham Rutlands Dept Store Jenny Thompson/Mrs J Minshall Thank you so much for the generous cheques to the value of £266.41 given to CRY in lieu of flowers in memory of the late Rowena Crabb-Minshall (age 15 yrs) received from "Fords of Oakham Department Store".
Crabb-Minshall Rowena 1570 £300 MF Yeovil Somerset Oakham School Mary Frimley Mary Frimley and house members sponsored run efforts raised a super £300 for CRY in memory of their friend Rowena Crabb-Minshall.
Crabb-Minshall Rowena 1471 £650 MF Yeovil Somerset Oakham School J L Carnell A kind and generous donation was received for the Rowena Crabb-Minshall MF. The money was raised from the proceeds of a play held by Oakham School.
DAVID CHAPMAN Chapman David 1557 £300 MF Hawes N Yorkshire Janet Chapman Janet Dinsdale and Janet Chapman raised a super £300 for her brother David Chapman's MF by having a very successful disco evening.
Chapman David 1858 £150.00 MF Hawes N Yorkshire Janet Chapman Janet Chapman sent in a super cheque for £150 raised by organising a disco for her brother David's MF
kids
DARREN CHASE
half page
MICHAEL ANDREWS 16.11.00
Yes
We were lucky to have a fine clear day, so two car loads of friends and very anxious parents made an early start for Dunkerswell Airfield in Devon. Claire, Esther and Andrew went off to get dressed up and instructed for their jump. Bob, my brother said " They jump two miles, that's not too bad, that's just up to the shops and back again". Sue and I tried to imagine 'up to the shops and back again' stood on end! - it just made us feel worse. The plane was so small, it would only take two instructors, two jumpers, the pilot of course and a cameraman. Everyone but the pilot sitting on an old piece of carpet on the floor with not even a door to the plane just an old piece of Perspex to pull over the opening! Claire and Esther were first up. It took 20 minutes of circling to get to 10,000 feet. The place looked so small, we heard its engine splutter and knew that was when the girls strapped to their instructors had to somersault out of the doorway. We couldn't see them until the parachutes opened at 5,000ft. The first 5,000ft had been freefall. Once the parachute opened I felt a little better, but once they were on the ground a 100 times better. Poor Sue had to go through it all over again an hour later when Andrew jumped. It was a long morning for us parents. All three enjoyed every minute, and would have gone straight back up. I drive home, they were on such a high, no way was I going to let anyone of them drive on the way home. (I've had enough excitement for one day). Now they are wondering how they can beat a freefall parachute jump for thrills, any idea? All the money raised is for The Michael Andrews Memorial Fund who was Claire's Godson and cousin.
WICKERS AND STAFF
?July 2000 214/215 £440.00 M/F Darwen Photo Rotary Club of Heywood donated this amount. Money was raised by holding a duck race on the River Roch (all plastic!) and a maggot race. Nothing included cruelty to animals. The 22/5/00 130 £303.50p M/F Darwen Assoc. AND Cleansing Dept of Blackburn/Darwen Football Match and Quiz Night.
Galligreaves & District Comm. Irene Wickers
00 3, 4 & 5 £542.00 M/F Darwen £500 Bolton Evening News.£15 C.Bannister£27 Joanna Baxter, Paul Pickup & John Marsden Granville Staff Lovely Card whichAlisonWould like included The card included messages of remembrance to David 12/99 1843 £50 M/F Darwen,Lancs Wickers Irene wrote to Julie Hesmondhalgh (Coronation Street Star) asking for photo of her for a sale to be held in November. She sent this and also a CAF cheque for £50. 1837 £1,209.65p M/F Darwen Wickers An incredible Christmas Fair - fantasticly bright posters advertising Fair (letter looked up) Could the photographs of Father C be this fair/ Irene says that his name is Brian Elvey and the children loved the fact that he came from australia, where he and his wife May and family live. The lucky ladies sitting on his knee are Pat Rutter (a great fund raiser) and Jacqueline who has been like Irene's right arm since Neil died - nothing is too much trouble for her. Staff/Wickers 23.8.99 1653 £204.25p M/F Darwen Wickers Tombola Stall (nothing on letter) Staff/Wickers 1546 £400.30p M/F Darwen Wickers Proceeds from various fundraising events. She asked that Mrs Squelch and Mrs Yates were thanked for their tremendous freely given help for Cry. 30.5.00 144 £321.98p M/F Stall - I could not find letter in file!
Darwen
Wickers
Charity
158 £200 M/F Darwen Wickers Donated from Sainsbury's in Darwen - no letter 170 £238.12p the Lions Gala Day
M/F
19/6/00
£397.37
182
171-174
£500 M/F
Darwen M/F
Wickers Darwen
Charity Stall at Wickers
Irene applied to John Frederick leach Charity
21.12.00 At the back end of November friends of Neil Wickers hosted a Carity Concert where they kindly raised £135.00 18.10.00 No The Two gates Bowling Club in Darwen held a raffle at their Bowling match in October which raised over £117.00 for Neil Wickers Memorial Fund.
IAN JOHNSON
STAFF 11.12.00 Yes THE GREAT NORTH RUN ADVENTURE IN MEMORY OF DAVID STAFF. Saturday 21 st. October - the eve of the Great North Run 2000. I was sitting in a B & B somewhere to the west of Durham City, and feeling extra-ordinarily nervous. I can honestly say that the three leaves of lettuce and a single cherry tomato that I had consumed earlier weren't going to help me get through thirteen miles the following day. " Shouldn't you be eating pasta ?" asked my parents. Why did I feel so anxious ? I had always enjoyed running for my own sake and although this was the first time I had taken part in an organised event, I had spent seven or eight months training for it.I was fairly confident about finishing the race and no one was really expecting me to beat Paula Radcliffe, even on a bad day. Were the other thirty nine thousand, nine hundred and ninety-nine runners feeling the same way. Having survived the night, I woke early to catch the train to Newcastle. Having been an under graduate at Durham for four years, it was a journey I was used to, but as a shopping trip or a night out Fortunately, by this time, my nerves had disappeared, I was more concerned with safety pinning my race number to my Tshirt rather than my flesh and trying not to think about that my fingers and toes were so cold that I could no longer feel them. By this time I had made it to the start of the race and had managed to link up with Uncle Granville ( David's father and running partner extraordinaire ), I was really caught up in the atmosphere. The anticipation was almost palpable and the thirteen miles ahead of us seemed irrelevant as everyone was in party mode. It felt entirely natural to be sharing a motorway with forty thousand people on a Sunday morning in Newcastle whilst mingling with a group of Teletubbies chatting to a Giraffe. As the race began, the party continued with much shouting, shuffling and excitement - I missed Jonathan Edwards but ran past Jimmy Saville. Amazing ! The real live Jim'll Fix It ! ( God to my generation despite his dubious taste in jewellery. ) Crossing the Tyne Bridge on a clear, sunny morning with thousands of other people was fantastic and an experience beyond compare. In fact, my good mood continued right up until I had crossed the bridge and faced the first hill of the morning. So this was what the training was for then………. Miles 3 - 10 passed in a reasonably pleasant way, and once I had settled into some sort of steady pace, I actually started to notice more of what was going on around me. There were runners making money for babies, older people, younger people, people-in-between and I have not even started to mention the variety of human organs that were represented……. Apparently, every postcode in the country had a representative too. " What an incredible event." Mile eleven was, shall we say, less enjoyable and even forgettable. It was a hill, not a short hill, but a long, drawn out hill. As I paused for my sixth bottle of water I started to doubt that the end of the race would ever happen. This feeling became stronger as I looked ahead to try and spot the fluorescent yellow twelve mile marker that would mark the beginning of the end. I became increasingly convinced that someone had been moving the mile markers as the race had gone on, I firmly believed that Blackpool Tower would appear somewhere on the horizon. Fortunately, it didn't, and with a great deal of encouragement from my running partner, I began the last mile. " Come on pet, only six hundred to go someone shouted !!! Six hundred !!! Six hundred what ??? Six hundred ice cream vans, six hundred hot dog stands, six hundred people, actually it was six hundred metres. Then four hundred, then two hundred, and with twenty five metres to go, I managed a smile and sprinted over the line in two hours and sixteen minutes. Jubilation !!! I had always been told that running is as much about psychology as it is stamina and fitness. In my case, that was certainly true, there was a
lot more to MY run than just getting from Newcastle to South Shields in the quickest time possible.A few years ago, I would not have believed myself capable of such an undertaking - me ? A half marathon ?? Never !!! No way !!! Impossible !!! However, a few years ago I would not have conceived of losing a dearly loved cousin to an undiagnosed heart condition about which I knew nothing. David died at Christmas in 1994, just weeks after his seventeenth birthday due to Hyperthrophic Obstructive Cardiomyopathy. The emotions that derive from such an event need not be discussed here, suffice to say that none of us quite understand what had hit us. The death of any young person leaves in it's wake many questions and the need for justification impossible. It is then that attention has to be turned to life and the living. With that in mind, I chose to take part in the Great North Run and to raise money for C.R.Y. It was a privilege to represent C.R.Y., an honour to represent my family and I hope, a suitable tribute to David. Gillian Haddow.
one staff only to go in 13.21.00 No Duncan & Lisa Nield also took part in the Great North Run and raised an amazing £408.00 which is to be donated to The David Staff and Neil Wickers Memorial Fund.
Granville Staff has raised a fantastic £336 for CRY. £250 from The David Staff Memorial Fell Race which takes place each year. We hope Ross, Nathan, Neil and Adam have all recovered from their experience in the Fells …thank you lads for your wonderful effort for David, and for the £71 raised. Are you up for this year too ??? Also included was a donation of £15 from Mrs P Little, thank you so much for your kind support.
LISA JANE BROWNE
12/03/01 484/487 £120 CF (councelling) Flintshire N Wales Doreen Harley We're glad to see how keen and dedicated you are Doreen to attend our CRY Counselling Course, by raising all this money to pay for the costs. Keep up the good work !!
12/03/02 492 £450 CF (councelling) Flintshire N Wales Doreen Harley Fundraising for your counselling course is going great guns Doreen with another £450 toward its costs.
02/04/01 502 £500 CF Flintshire North Wales Doreen Harley Yes Doreen Harley has sent in a further cheque for £500 from MBNA International Bank toward her counselling course. You certainly have the knack of persuasion Doreen at getting great sponsors to identify with your cause. WELL DONE.
DARREN BRUCE
27/02/01 477 £300 MF Colchester Sue Bruce Thank you Sue for your fundraising efforts for CRY in memory of Darren and David and for sending your donation of £300
1494 £825 MF Walker roast Colchester Essex Eileen Upster A very generous donation of £825 towards The Darren Bruce MF was made by his fathers company "Walker roast" . This is money that would have been spent on corporate gifts, but in view of Darren's tragic sudden death they felt it would be more appropriate to make a donation to CRY.
Richard Allan
443 ÂŁ836 MF Newcalstle Mandy& Denis Allan Mandy and Denis Allen have sent in a magnificent total of ÂŁ836 in memory of their son Richard. This total was made up from a variety of fundraising events, their encouraging comment say's " We find our fundraising gaining strength and the people willing to support us growing each day".
William Tyley
This was from a kind donation from Mr & Mrs Peter Culley donated £480, the proceeds from their Golden Wedding Anniversary to Williams Memorial Fund
199
Mr and Mrs Rodney Coward the owners of wood farm, Mear Wiltshire and Mr David Marks (right)
Mr and Mrs R Coward of Wood Farm, Mere, Wiltshire had a clay pigeon shoot held on the farm on 19 September 99. A fantastic £782 was raised.
A tot tions her a peop expla drink
4.30am - 1.1.2000 CRY TAXI Daphne Tyley &’C jumper & polo shirt ‘uniform’
IAN MERCHANT
20/04/01 519 ÂŁ350 MF St Albans Herts Mr & Mrs Merchant A super cheque for ÂŁ350 sent in from Dennis & Barbara Merchant for their son Ian's memorial fund raised from a raffle and collection box's.
recepit 321 Sally Mitchell of Hertfordshire jumped to raise money for Ian Merchant who died 5 years ago on 25th September to Sudden Death Syndrome. Jumped with Amanda Chandler and Paul Mason (Check all of this?????)
LYNSEY BOWE
1514 ÂŁ465 MF Carlisle Cumbria Angela & Peter Bowe Having a fundraising dance in their village hall raised over ÂŁ900 in memory of Angela & Peter Bowes daughter Lyndsey. The amount was shared between CRY and The British Heart Foundation.
SARAH LOUISE WILLIAMSON
2/12/99 1859 £215.00 M/F W.Midlands John Williamson YES Group of lads borrowed a raft earlier in year and entered a charitable raft race. They are friends of friends so no real details - only that the firm is Inbis Limited and the organiser was Craig Wall. THE PHOTO IS (from far right clockwise Nick (Swifty) Davies, Graham Cox, Brian (Smithy) Smith, Alan (Rodney) Hindley, Temple (Moza) Jones, myself (complete with Rod Stewart wig), Scott Morris and Mark (Gaffer) Smith - John Williamson took this off the Fire Station notice board to send to us. John is Sarah's UNCLE. He is a member of Red Watch at Tipton Fire Station in W.Midlands and raised £200 for their efforts) Also a young girl walked into fire station (K.Fenton) and said she had raised this amount for charity and wanted it to go to the same one as the fire station. picture
July/99 1601 £90.56 Somerset Primary School was Sarah's old school and they have been very
Martock
EPA Foy Apr.99 1465 £162.20p M/F Somerset Supportive in their fundraising. £90.56 was raised by a collection at their end of
" " 29.3.99 1405 £487.09 YES (not on this file) Term service, £44 from the Easter Service and a fantastic £605.29 for a mini-marathon which was run in the school grounds.
1.11.00 Yes Westland Ladies Bowls Club raise £300.00 for CRY. See PictureGoldenstones Leisure Centre based in Yeovil Somerset have successfully raised more funds to go towards the Sarah Louise memorial Fund. An amazing £500.00 was raised through enthusiastic children participating in a sponsorship swimathon. See Picture.
PETER JORDAN
10/99 1751 ÂŁ500 MF Mrs Costandina Jordan sent in a grand cheque for ÂŁ500 raised through her work as an event co-ordinator with a Leeds based company Speed Queen. She would like the money to go toward an ECG machine in memory of her brother Peter Jordan who died in November 1998.
KEVIN SAYER
Nov.99 1220-1222 £127 M/F Bergh Apton Bergh Apton & District Society I could not find correspondence. £51 from Gus and Steve's winnings on Race Night and £35 from Bergh Apton & District Soc. £41 from bergh Apton Sculpture Trail.
18.5.99 235 £546.57p M/F Norwich Jet Rangers FC There was a whole day of hard work for thefootball club who completed in friendlies. They forwarded us a staggering amount of £546.57p. Overall they have donated over £800. The lads are aged 89-16 yrs of age. The club has progressed over the years to one of the biggest youth football clubs in Norwich. Kevin played with this club and most of the lads he played with are now grown men and not now actively involved in the club, apart from one who is now an FA coach! = Oct.991728-30 £520 total M/F Yes The Loddon United FC held a memorial match for Kevin and raised £295.50p.The other cheques were for a Victorian Musical Evening where three ladies from ARCADIA entertained everybody for the evening. This event was organised by the Church who kindly gave the proceeds to Cry.
Apr.00 102 £100 M/F Bergh Apton Bergh Aptom Community Arts Programme Hayley and Evy kindly supplied the refreshments for this event which was held at the village hall. 12.00 1764 £329 M/F Bergh Apton Lorraine did a parachute jump raising a fantastic £210.50p and £110 from Buckland Plasterings Race Night.
16/8/99 1644 £268.50 £268.50 - no details
M/F
Norwich
Jex Rangers Football Club
BULLETIN BOARD RING FENCED FUNDRAISING Please remember that unless you notify us and get the necessary documentation and confirmation from the office for “ring fenced” fundraising before you start a fundraising venture all funds raised will be used for CRY Core Funding. Retrospective “ring fencing” is unfortunately just not possible. CRY cannot be responsible for any “ring fenced” fundraising unless it has been authorised. APPEAL FOR CURTAINS We are currently seeking Stage Curtains to cover our ‘up and over’ door downstairs, if anyone can help please call the office. Have you run in The Flora London Marathon for CRY? Did you raise at least £1,000? Would you like to be featured in our Update Brochure? Could you write an account of your run in 400-700 words? Can you supply a photo of yourself at the event? If you have answered ‘Yes’ to all of the above Tony would be very pleased to hear from you on 01737 363222
Would you like to run in The London Marathon for CRY?
Munah & Margy for Badir Al-Chalabi 1999
If so please contact Jo Roffey at the office on 01737 363222 SPECIAL THANKS TO Steve Ashworth for nominating CRY to receive 2 CRY Van loads of donated office furniture from his company ACCO UK based in Aylesbury. This wonderful donation of excellent quality furniture has made such a brilliant difference to the feel of the office.
If you would like Tony to consider any item for Bulletin Board please fax details (including your item) through to him on 01737 363444 Please bear in mind when organising fundraisings that it would be brilliant if you can take photos of your great day. It would also be extremely useful to Tony if, when you write in to the office, that you clearly state how much was raised, and by whom.
JAMES DAVID DUDLEY
James David Dudley 08/99 1641 £919 CF A wonderful donation was received of £919 in memory of David Dudley James, from Mrs Shortall of Ballard & Shortall Ltd. This will be an enormous help towards Cry's valuable work.
COLIN DOYLE 21/7/00 208/9 £2110 MF article Richard Haynes wrote in enclosing magnificent cheques to the value of £2110 from two fundraising events for The Colin Doyle MF. In June 2000 the Willow Tree Pub raised a super £660. The other event a Charity 5-a-side Football Tournament and Evening Disco at Slough Post Office Sports & Social Club on Sat 8 July 2000, which was a huge success and enjoyed by many, raised a further £1450 for Colin's fund. Richard arranged for the Slough Observer to attend and have since published an article in their "Observer Midweek".
1.11.00 No For the 3rd year running friends and family hosted The Colin Doyle Memorial Tournament at the Royal Standard, Gwinear in Cornwall. This annual event, yet again was a truly memorable and enjoyable for all those who attended. Success was evident and raised in excess of £500.00. The money raised will be donated to Colin Doyle's Memorial Fund.
PAUL DAVIES
Davies Paul 2000 188 £300 MF Redditch Worc Chelmsley Wood Lodge D Hill A super cheque for £300 has been sent in by Chelmsley Wood Lodge, The Banbury Club of Solihull after an appeal by Graham Taylor a staunch member of the Lodge and Order and friend of the family of Paul Davies. They say, "We wish it could be more but we are a small Lodge consisting of mainly pensioners, but wish us well in all future fundraising activities". The family have raised over £700 which has ;been donated to the costs of sign writing the CRY van a nd for the CRY office sign
BULLETIN BOARD If you have ever wanted to do a parachute jump here is your chance. CRY - Cardiac Risk in the Young are looking for adventurous volunteers to make a fundraising parachute jump and if you raise enough in sponsorship you will get to jump for free! There are two types of jump available - a 'Tandem Skydive' from 10,000 feet attached to a professional instructor and a 'Static Line' jump which is performed solo for up to 3,000 feet - and you can jump from any one of 23 British Parachute Association approved airfields across the UK. No experience is necessary as all training is given and if you raise between £260 and £330 you will receive your jump for free. So if you would like to make a thrilling skydive from 10,000 feet or an exhilarating solo jump from up to 3,000 feet give Jo Roffey a call at the office on 01737 363222 - she'll send you a full information pack and everything you need to take part in the experience of a lifetime. CRY NOW HAS A
We have received a few requests for a copy of the ‘That`s Eshter’ programme which was broadcast NEW WEBSITE on 30.04.99. If you would like to borrow a copy ADDRESS WHICH IS then please send a self addressed padded Jiffy www.c-r-y.org.uk bag with stamps to the value of 66p to the Office. E MAIL CONTACTS CRY head office - cry@c-r-y.org.uk Keeley Ashley - keeleyashley@aol.com Roy & Gill Ball - royandgillball@selcroftavenue.freeserve.co.uk Nigel & Jenny Cole - nigel1949@hotmail.com Jo & Charlie Cross - chascross@compuserve.com Caroline Gard - carolinegard@hotmail.com Harry Hindle - capt.harry@ntlworld.com Anne Jolly - jollyjon@netcomuk.co.uk Alan & Gloria Moss - mosses@cherrystonescottage.freeserve.co.uk Tim & Sylvia Salisbury - thesalisburys@cwctv.net Granville Staff (work) - granville.staff@darwen.deconorth.com Jan Smith - jsmith@sghms.ac.uk Adrian Woodhead - adrian@woodhead88.freeserve.co.uk
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