Newsletter Issue 10 Autumn 2013 News and information for young people suddenly diagnosed with cardiac conditions
P2 Bridges Walk P3 Your story MedicAlert Partnership
Song For Stevie On a warm evening in June, CRY was privileged to be involved with a truly inspiring evening of arts and entertainment at the “Song for Stevie” concert, which was held at the Rose Theatre, Kingston Upon Thames. The event aimed to raise awareness of heart conditions, reinforcing CRY’s message of the importance of screening and getting treatment. The concert was held in memory of Stevie Jivani, who died suddenly aged 19 from a previously undiagnosed heart condition in April 2012, and was organised by Stevie’s parents, Maureen and Naz. The performance featured dancers, musical theatre, bands and a wonderful variety of poetry read by acclaimed writers, all of whom were friends of the Jivani family. Those performing included the up-and-coming band Miccoli, who travelled down from the Midlands to be part of the event. Their band consists of Francesca
P4 About myheart
and her twin brothers Adriano and myheart member Alessandro, who has Wolff-Parkinson-White syndrome (WPW). In 2009, Alessandro collapsed just after performing on stage. He has had ablation surgery four times and is hoping his latest report from the cardiologist will give him the ‘all clear’. The band’s inspiring performance was amazing and as they continue to gather momentum, their fan base increases and they go from strength to strength. Over 600 guests attended contributing to this positive and vibrant event which was a moving tribute to Stevie. It was a poignant, uplifting evening. We were proud to be associated with such a magical event, which raised almost £9,000. Autumn 2013
1