PiPe bands go for gold in scotland
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someone needs a vacation
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auto sales on track for record
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friday
August 10 2012 www.burnabynewsleader.com
a stellar performance ends in heartache for burnaby soccer star christine sinclair. see page A17
Chevron seeking a better deal
MARIO BARtEL/NEWsLEADER
megan thomson, 3, shows off her belly button during story time with her mom, cindy. megan has Prader-Willi syndrome, a genetic disorder that prevents her from knowing when her stomach is full and often leads to morbid obesity.
Helping kids who don’t ‘get’ full Mario Bartel
turns off the reflex that tells us our stomachs are full. It’s the number It’s not unusual for a kid to sneak one genetic cause of childhood an extra cookie when their parents obesity. It randomly affects one of aren’t looking. every 12,000 births. Given the chance, Cindy Thomson knew something wasn’t Thomson’s three-year old daughter right with Megan when she drooped Megan will sneak the whole box, like a rag doll after she was born. the container of noodles next to it, Poor muscle strength and tone is maybe everything in the cupboard, another manifestation of PWS. then on to the garbage container Doctors confirmed their suspicion under the sink, even the squashed of PWS with a series of tests, a CT spider on the front stoop. scan, spinal tap, blood work. Megan has Prader-Willi “I had1 heard of it, but I didn’t 4x1.25_small_appliances_ad_final.pdf 12-03-05 1:20 PM syndrome, a genetic disorder that know what it was,” says Thomson
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of getting the diagnosis. Already challenged by her own struggles with Multiple Sclerosis, Thomson tasked her husband Glen to do more research on the Internet. “I couldn’t bring myself to do it,” says Thomson. “It was just too hard. Everyone has dreams for their child when they’re born and knowing they have any kind of condition, you have to let those dreams die.” They tapped into the resources and support available from the British Columbia Prader Willi
Syndrome Association, meeting other families facing the same struggle. They were referred to genetic counsellors at BC Women’s Hospital. They connected with physical therapists. For the first weeks of her life Megan had to be fed by a tube through her nose. When she progressed to a bottle, her diet had to be supplemented with formula. She never cried, never made any sound to indicate she was full, or hungry. Please see BuILDINg, A3
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The National Energy Board (NEB) will begin public hearings into an application by Chevron Canada for priority access to capacity on Kinder Morgan Canada’s Trans Mountain Pipeline on Jan. 15, 2013 in Calgary. Chevron filed for approval of Priority Destination Designation in June. If granted the company would be second in priority to ensure an adequate supply of crude oil from Alberta to its Burnaby refinery. Shippers that contract for fixed volumes on the pipeline get first priority. Currently Chevron is in the third level of priority and must request the amount of volume they need to ship on the pipeline. If Kinder Morgan receives requests for more capacity than the pipeline can accommodate, the shipments are reduced equally for all shippers. Since that apportioning has been going on since 2010, Chevron has had its requests reduced by as much as 70 per cent, according to spokesman Ray Lord. Please see pRIORIty, A3