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MONROVIAWEEKLY
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Thursday, August 17, 2017 - August 23, 2017
Since 1996
VOLUME 20, NO. 33
MONROVIA FIREFIGHTERS RAISE FUNDS TO ASSIST 2-YEAR-OLD BATTLING RARE DISEASE Susan MOTANDER motander@yahoo.com
M
embers of the Monrovia Fire and Rescue are helping to raise funds to aid Marian McGlockin, a 2-yearold with Nimann-Pick, Type C (NPC), a disease that is often referred to as childhood Alzheimer’s. As of now the toddler has been involved in experimental treatment of the normally fatal disorder, and the family has started a GoFundMe account to help offset the cost of her treatment and care. The treatment is a clinical trial called VTS 270 – a mixture of 2-hydroxypropyl-Bcyclodextrins with a specific compositional fingerprint that has been evaluated in preclinical and clinical NPC studies at numerous academic labs and at the National Institute of Health (NIH). Cyclodextrins is a family of doughnutshaped sugar molecules that is used to treat NPC, which is a lethal and inherited disease that prevents the body from metabolizing cholesterol and other lipids. The resulting accumulation of fats harms the brain, liver and the lungs. It is almost always the brain damage that kills, often by the time children reach their teens. Currently there is no cure for this rare disease, but Marian is the youngest person undergoing an experimental treatment in the effort to find the cure. Part of that treatment involves trips every other week to the Chil-
Toddler Marian McGlocklin is getting some extra love and attention from Firefighters in Monrovia who are going the extra mile for the infant who is facing a very rare disease. - Photo by Terry Miller/ Beacon Media News
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THE MONROVIA OLD TOWN REPORT Pam FITZPATRICK
pam@oldtownreport.com
I’m not sure where summer vacation went, but Monrovia schools are back in business this week. And, because it’s already mid-August, I’m about to SEE PAGE 10
BUSINESS SPOTLIGHT Branding… Imprintability Can Do That
Carl Foote’s Body Discovered Near Jones Peak, Bailey Canyon, Sierra Madre Staff Writer editorial@beaconmedianews.com
The Sierra Madre Police Department and the Sierra Madre Search and Rescue Team with the assistance of Los Angeles County Sheriff’s Search and Rescue along with search teams from Altadena, San Dimas, Antelope
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Valley and Montrose concluded an exhaustive search for Carl Foote Saturday afternoon. Foote had been missing since Sunday Aug. 6. Sierra Madre resident Carl Foote was reported missing by his wife on Sunday, Aug. 6 at approximately 6:30 p.m. Carl was last seen walking in the
ARTS & ENTERTAINMENT Beauty and the Beast Coming To Pasadena Playhouse
SEE PAGE 11
Death of a Newborn Son Spawns a Monrovia Father’s Fight for Life Staff Writer editorial@beaconmedianews.com
Monrovia residents Billy Becerra and his wife welcomed a baby boy by the name of Rex earlier this year at Children’s Hospital Los Angeles. Upon arrival, little Rex was diagnosed with Aortic Stenosis and a
Hyperplastic Aortic Arch, meaning blood flowed to his heart but could not exit the heart to maintain its flow and eventually his heart became swollen, in which he had to undergo an extremely complicated open heart surgery. Although Rex was fighting for his SEE PAGE 11
SPORTS Are You Ready for some Football?
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