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Thursday, July 13, 2017 - July 19, 2017
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VOLUME 20, NO. 28
Monrovia Toddler Facing ‘Childhood Alzheimer’s’ - Youngest Patient in the World 22-month-old Marian McGlocklin battling Niemann Pick Type C (NPC) BY TERRY MILLER tmiller@beaconmedianews.com
Taking one look a Marian as she plays with building blocks with her mother, one finds it hard to digest the fact that this happy little girl has a rare and possibly fatal medical condition. – Photo by Terry Miller / Beacon Media News
MAN SENTENCED FOR MURDER OF HIS GIRLFRIEND IN MONROVIA A 52-year-old man was sentenced to 46 years to life in state prison for the domestic violence murder of his girlfriend, the Los Angeles County District Attorney’s Office announced.
On May 12, a jury found Joel Velazquez of Valinda, guilty of one count of voluntary manslaughter. Case GA094662 was prosecuted by Deputy District SEE PAGE 11
BUSINESS SPOTLIGHT “Dare to Be Bare” Off Kilter Kilts Page 4
Every other week, Sara McGlocklin takes her 22-month-old toddler to Children’s Hospital to see geneticist Dr. Serrano. Once there, her daughter is placed under general anesthetic and undergoes a spinal tap as part of her experimental treatment in fighting an extraordinarily rare disease that is often referred to as childhood Alzheimer’s. When we first met the absolutely enchanting toddler, Marian McGlocklin, last Friday during an interview at her home in Monrovia, she had just woken up from a nap and “she is a bit wobbly from the anesthetic..,” Mum Sara McGlocklin said. She explained that the entire process takes three hours - out of which only 25 minutes is she under the antiesthetic. Taking one look at Marian as she was smiling with a gleam in her eyes and playing building blocks with her mother, one finds it hard to digest that this happy little girl has anything medically wrong, let alone something so rare and ultimately fatal. Initially a bit shy upon our first meeting, Marian soon warmed up and quickly smiled and offered this reporter a ball to play with. Monrovian Marian McGlocklin, 22 months, is in a fight for her life against a fatal storage disorder called Niemann Pick Type C (NPC).
The Slalom That Is Foothill Will Soon Return to Normal It may seem like forever that work has been going on along Foothill Boulevard, but the end is in sight according to city manager, Oliver Chi. In his weekly City Manager’s Update, Chi reports that the work will be complete in the next two
ARTS & ENTERTAINMENT Chelsea Handler to Headline Pasadena Politicon
weeks. This last week, with the “post it note” line markers, the confusion has been rampant. People are being creative in their decisions at intersections. Next week SEE PAGE 11
Her parents, Sara and Paul McGlocklin became aware of some of the initial symptoms at a very early age, but when she was 8-9 months old, the McGlocklins really noticed that their daughter was unable to sit like other children her age. The low muscle tone was a tell-tale sign of something far more serious than initially thought. The treatment is a clinical trial called VTS 270 – a mixture of 2-hydroxypropyl-Bcyclodextrins with a specific compositional fingerprint that has been evaluated in preclinical and clinical Niemann-Pick Disease Type C (NPC) studies at numerous academic labs and at the National Institutes of Health (NIH). Cyclodextrins, is a family of doughnutshaped sugar molecules, to treat NiemannPick type C-1 (NPC), which is a lethal, inherited disease that prevents the body from metabolizing cholesterol and other lipids. The resulting accumulation of fats harms the brain, liver, and lungs. It is almost always the brain damage that kills, often by the time children reach their teens. According to Science Magazine published in October 2016, “Over the past decade, researchers working with cat and mouse models of NPC have shown that cyclodextrins can alleviate symptoms and slow progression of the disease. Although their mechanism of SEE PAGE 10
THE MONROVIA OLD TOWN REPORT Pam FITZPATRICK |
Earlier this week, as Monrovia’s Volunteer Film Liaison for Old Town, I had the pleasure of walking Old Town with another team of producers and their location manager. This group was from Universal Television and the pilot is intended to air on USA Network with activity beginning next
pam@oldtownreport.com
week in Old Town. I don’t have a detailed schedule at this time, but it appears that the filming activity will be on July 19th and 20th in several locations, including Library Park, W. Lime, the 400 block of South Myrtle (east side) as well as the SEE PAGE 11
SPORTS
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La Salle Flag Football Camp In Pasadena: Learning Fundamentals
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