AHRC Nassau COMPASS Empowers people to live fulfilling lives. Together with Family-Friends-Community January 2018 - Annual Report AHRC Nassau - Proud to be Accredited by CQL / The Council On Quality and Leadership Working toward a world of dignity, opportunity and community for all people
Thank you Rally by Janice Shear
Save Medicaid Victory Rally August 4, 2017 AHRC Nassau Community Hub Site Council
On August 4, 2017 the Community Hub Site Council held a rally at AHRC Nassau to celebrate a victory. The Council had been advocating for a “NO” vote on the Health Care Bill. The Council wanted to thank all the Senators who voted against this bill. Medicaid funds 90% of services. Without it people could lose day hab programs, group homes and other supports that they rely on to live full, active lives. More than 100 people came to sign cards, letters and posters. They thanked the two New York Senators, Chuck Schumer and Kirsten Gillibrand, and the three Republican US Senators who joined them in voting no: Susan Collins – Maine, Lisa Murkowski - Alaska and John Mc Cain – Arizona. Members also wrote and sent Get Well cards to Senator McCain. It was a day to celebrate and give thanks.
We Shared Our Sincerest Thanks We Emailed, Called & Sent Letters To Us, It’s Personal 90% of essential benefits come from Medicaid We Will Continue to Advocate
With cuts to Medicaid proposed in next year’s Federal budget and the potential for new GOP health care bills in the coming weeks, advocacy to protect Medicaid will be ongoing for the foreseeable future. Now more than ever, we value opportunities to celebrate our successes and allies. We thank you for your continued support and encourage you to continue sharing your perspective. You can visit our website to view video and check out our advocacy toolkit at www.ahrc.org/medicaid.
MISSION STATEMENT Annual Review of the Mission Statement MISSION STATEMENT & MANAGEMENT PLAN BOARD of DIRECTORS - 2018 ANNUAL REVIEW SUMMARY PART 1 – MISSION STATEMENT REVIEW: 1. Councils Review: No changes recommended. 2. COMPASS Committee Recommendations: No changes recommended.
PART II - MANAGEMENT PLAN REVIEW:
AHRC Nassau empowers people to live fulfilling lives.
A. Council Recommendations: See below list of proposed changes. B. COMPASS Committee Recommendations: See below list of proposed changes.
Together with Family - Friends –Community
Criterion #1 - Board and Management Commitment: No changes Criterion #2 - Mission Statement and Commitment to the ISE: No changes Criterion #3 – Empowerment: No changes Criterion #5 – Self-Survey: 1. Revision shown in italic: Effective 2017, the surveys are composed of 3 main categories: a) Site Review b) Person-Centered Review completed by OPWDD and c) Agency Review. Criterion #6 – Valued Outcomes: 2. Add: There is a “DSP of the Year Award” for a staff person that went “above and beyond” to support a person to achieve their personal outcomes. Criteria #7 – Quality Improvement 3. Formalize (2017 pilot): A standard template is used to monitor and assess the attainment of quality enhancement goals throughout the Agency. And Our: Guiding Principles Work together to achieve excellence by promoting opportunities and supporting dreams. Demonstrate courtesy, respect and compassion in every interaction. Foster a unified culture that celebrates diverse talents, ideas and potential.
Glen Cove Hubsite Spreads Rocking Messages of Good Will! People at the Glen Cove/Glen Street hubsite are spreading the message of goodwill through inspirational words written on rocks. This is our newest art project to lift the hearts of others. We believe that little things can make all the difference in someone's day. So we are spreading reminders of peace, love, and kindness, as well as bringing awareness of the wonderful opportunity at AHRC. We hope that when someone sees the rock they will take it home and that the message of hope will put a smile on their face as it has on ours. The rocks can be seen all over the Glen Cove area. Whenever you visit Glen Cove and see an art rock, we hope you as well will be inspired to spread some goodwill.
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MISSION STATEMENT & GUIDING PRINCIPLES IN ACTION THE ONE AND ONLY DENTAL DONATION! Presently, the Glen Street hub site is embarking on a community relationship with its neighborhood dental office. The dental office in Glen Cove will donate magazines to the hub site, which we will be used for activities such as making “vision boards, creating tips on healthy living and favorite recipes.” Today, volunteers received the first magazine donations from the friendly staff at the Glen Cove dental office. Hopefully through this experience, the people supported at the Glen Street hub site will be less anxious when visiting a dentist in the future . The volunteers who participated in the outing were happy, and Robert O. stated, “This is a beautiful place!”
Community Recognition
Chow Chinese Restaurant
Leonardo’s Pizza Cafe
Many people in the community assist AHRC Nassau with achieving our mission and implementing our guiding principles. In recognition of these efforts, and to say thanks, AHRC Nassau recognizes individuals, businesses and others in the community who go “above and beyond” on behalf of the agency and the people we support. The recognition may be a simple “thank you” letter or a plaque presented at an honorary ceremony. Our thanks is always valued and appreciated. Chow Chinese Restaurant and Leonardo’s Pizza Cafe were recognized by the Massapequa Hubsite for the food they donate, special deliveries and their friendship.
Dance Fit
By Hope Marmo, Day Program Nursing Coordinator
Fitness, a concept we all strive to achieve, can mean something very different to each individual. Fitness can be achieved in many different ways - a long walk, a bike ride or going to the gym. Then there is dance. Dance is not only a venue for physical fitness, but a form of expression. Dance transcends gender, age and levels of ability. When Denise Licata and I decided to pursue a Dance Fit Club, we could not foresee the pure joy this club has given not only to our dancers, but ourselves. Every week on a Tuesday evening from 6:30 to 7:30 pm, people of different abilities, age and gender gather together and dance. We move, laugh and make new friends not only with people within our own agency, but with volunteers from different communities who willingly donate their time and energy. We cannot express how grateful we are to the agency, staff and volunteers for their support and participation in such a worthwhile venture. Every week we witness our dancers’ personal growth and expressions of joy. I would like to say we have enhanced our dancers’ lives, but the truth is they have made us better people and given us so much more than we ever imagined. Thank you to our AHRC Dance Fit Club members! Remember, keep on dancing! 3
Validation Visit Follow-up on Validation Team Recommendations During the week of May 9, 2017, AHRC Nassau welcomed the NYS Division of Quality Improvement (DQI) and Bureau of Program Certification for the annual COMPASS validation visit. AHRC Nassau was recertified as a COMPASS Agency. We thank our colleagues from DQI and the Bureau of Certification for their rigorous review and much valued input. Recommendations were provided and have been addressed as follows: Remove the terminology of ‘Mentally Retarded’ from ‘Individualized Plan of Nursing Services and Medical Oversight’ – Anne Miller, Director of QA reported that this is underway and MRC (Medical Review Committee) will monitor this until completed. Do more to develop a systemic training for people and staff to be empowered to deal with situations where people and family have conflicting views on decisions which are truly the person’s to make. This will be added to Empowerment Training and Family Seminars, as well as reviewed at house meetings and site meetings. Continue to pursue implementation of HCBS requirements in all programs (e.g. the offer of keys to homes and bedrooms and incorporating relevant aspects of it into people’s service plans). This is reviewed at Council, staff and site meetings. Palm cards are given out at the New Hire Orientation.
New Community Connections An organ demonstration and recital at Grace Episcopal Church in Massapequa was enjoyed on December 15, 2017. It was a wonderful event arranged by DSP Darryl Small. From the impromptu caroling to the call outs for particular hymn requests, the high spirits were infectious.
Within the last month Kate, Daryl and Maria and the Clocks Boulevard team have created five new community connections with local churches and other non-profits.
Outstanding!
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Personal Mission Artist First Place Award Chris Williams Director of Day Program Services
Wenceslao Herrera (above) won First Place in The Arc New York’s Imagine Art competition. Paul Giordano, Board President and Stanfort Perry, Executive Director, welcomed Wenceslao and his family to AHRC’s November Board meeting to congratulate him this wonderful achievement.
NYSARC (now The Arc New York) held its 67th Annual Convention from Thursday, October 20, through Saturday, October 22, 2017 in Albany. Representatives from all of The Arc New York’s 53 chapters attended the convention to discuss important issues and celebrate the accomplishments of staff, Board members, and the people supported. Artwork from many Arc New York chapters was prominently featured on Friday. Wenceslao Herrera, a person supported through AHRC Nassau, was the proud recipient of the First Place Award for his painting entered in the Imagine Art Competition. This year, two artists, Richard Infante and Wenceslao Herrera, represented AHRC Nassau by entering their artwork . Richard Infante is a wonderful artist who is part of the East Meadow Art Gallery Hub site. Richard is a talented sketch artist and acrylic painter. He has always had a love of drawing and painting.
Wenceslao Herrera enjoyed his first trip up to the art show this year. Wenceslao attends the Oceanside Anchor hub site and he enjoys sharing his paintings at the East Meadow Art Gallery hub site. Wenceslao began painting at an early age and he has a family member who is also an artist . Wenceslao's favorite medium is acrylic paint. Weeks before the two-day overnight trip, staff assisted Richard and Wenceslao with getting better acquainted by scheduling lunch dates. It was really great to see two talented artists spending time together on the trip. The day of the show Richard and Wenceslao enjoyed meeting other artists from the New York area. They received lots of praise for their work and Wenceslao received first prize! Both gentlemen said it was a great experience! Wenceslao was honored to be selected as the winner of the Imagine Art competition and brought his family to the AHRC Board meeting in November. Shown above is a copy of the remarks he prepared and presented at the November meeting. 5
BOARD OF DIRECTORS
Meetings were held monthly, except for December and a summer break, consistent with the Management Plan.
Personal Outcome Measures—Annual COMPASS Training Kevin Wilber, Assistant Director of Self-directed Services and Personal Outcome Measures (POM), provided annual training at the November Board meeting as per the Management Plan. The training focused on POM. POM focuses on:
My Self—who I am as a result of my unique heredity, life experiences and decisions. My World—where I work, live, socialize, belong or connect.
Kevin Wilber, Assistant Director presenting to the Board of Directors
My Dreams—how I want my life (self and world) to be. My Focus—what is most important to me and is the basis from which all planning and personal goals flow. Personal outcomes assist us in developing a person-centered plan to improve the quality of life for people. Outcomes are used to learn about people. People should design outcomes for themselves; however this can be challenging for many if words are not used to communicate and other alternate forms of communication prove a challenge as well. In these situations, people who know the person best provide insight into what the person enjoys most, where they are most happy and who is important in their life. This could be a trusted advocate, family member, friend or all. People are happier when they are surrounded by the people and the things they want for their life.
Board of Directors - Physical Plant Inspections Over the past six months, Board Inspectors continued to conduct physical plant inspections for AHRC Nassau sites. The inspections are completed 60-90 days after the regulatory selfsurvey to verify that maintenance needs identified in the agency selfsurvey have been addressed. The inspections also provide an additional support, ensuring quality living standards are upheld and met at every site. Board Inspectors get the opportunity to personally see the condition of each site and meet staff and people supported. This is a tremendous asset which keeps the Board on the front lines of services.
There have been 43 Board Physical Plant inspections since 9/1/2017 . A total of 2 deficiencies were found open and 44 new work orders were generated. There was 1 hazardous citation noted and corrected. Thank you to all the Board Inspectors for their hard work and dedication.
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SIBLING Holiday Party On December 7, 2017 over 100 people gathered for the annual sibling holiday party in Brookville. It is a wonderful way to get together, celebrate and grow the sibling group, and seven new families became AHRC Nassau members! A special visit by Santa and Mrs. Claus was enjoyed by all. Paul Giordano, Board President and sibling group founder, encouraged all in attendance to remain involved. As parents age, the role and responsibilities of siblings supporting siblings usually increases and they become one of the strongest natural supports for their brother or sister. 2018 SIBLING GROUP Please Join Us!
March 8, 2018 6:30-8:30 p.m. in Plainview June 5, 2018 Annual BBQ 6:00-8:00pm Brookville September 13, 2018 6:30-8:30 p.m. in Plainview December 6, 2018 Holiday Party 6:00-8:00 p.m. in Brookville For more information, call (516) 293-2016 extension 5492
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AHRC Nassau COUNCILS Executive Council Met Monthly (except summer break and November)
Twenty-two people were supported to attend the State Self-Advocacy conference in September, including Michael McCabe, Recipient of The Ivy Ferdinand Memorial Scholarship. Leigh Fanuzzi from the training department attended the meeting and did an empowerment training on money management. Tom Moore, AHRC Board Vice President attended the council meeting in August and offered the Council high praise. He informed them that a Board seat will open soon and to advise him of any nominees. Feedback on the occupancy agreement was forwarded to the Regulatory Affairs Director who was informed that some of the words within the agreement were difficult to understand. Eric Rosen, Director of RA, worked to revise some of the wording. Conflict Resolution empowerment training was developed and forwarded to all Councils for review and feedback. A Pancake Fundraiser was held in October for a friend of the IRA’s that is experiencing health concerns. The Rights and Responsibility Rally was held in October with over 100 people in attendance. This is an annual event to educate people on Rights and Responsibilities. Over 30 people attended the Long Island Region Conference in October, with people from AHRC Nassau also there as presenters. The weekly book club continued to meet. The focus of the stories is on advocacy.
Sharon Faucett The Councils and Board members joined together to raise funds for Sharon Faucett, a former volunteer and employee. Board member Tom Moore was very moved by what the Councils were doing to raise funds to help Sharon Faucett in her time of need. Sharon has been an amazing partner in our work over these many years. Several Board member’s made donations in support of the Councils’ desire to help Sharon. Thank you to all for your work on this. Sharon has supported so many through her talents and her spirit and it is a pleasure to assist her on her journey to recovery. 8
AHRC Nassau—Councils Long Island bFair2DirectCare Rally On Tuesday, December 19, 2017 advocates, families and staff all joined together at the Long Island #bfair2directcare rally at Nassau Community College to urge New York State's legislators to accelerate the process of increasing wages for Direct Support Professionals (DSPs) and other lower-paid staff in NYS. The work that a DSP does is critical to men and women with developmental and other disabilities. Not only do they help people to live safe and fulfilling lives, they are professionals that are highly trained in a wide variety of critical areas. A sample of responsibilities include medication administration, tube feedings, first aid and CPR, de-escalating behavioral crises and oxygen administration. They also provide assistance with activities of daily living such as bathing, eating, etc. Direct Support Professionals provide transportation throughout the community and are trained in how to operate equipment such as lifts, specialized beds and vans. It is with great pleasure that we advocate for these very special and highly skilled workers—they make a difference every day.
Freeport Workforce Council Met Monthly (except summer break) Workforce Council hosted 2nd annual BBQ held in August Workforce Council hosted 1st Annual Empowerment Now Showcase – members got to showcase their talents. Workforce Council participated in a mock interview session with Roslyn Savings Bank Workforce Council welcomed 2 new members from the SEMP department Five Council members attended the SANYS Conference in Melville Some Workforce Council Members attended a job fair in Hauppauge Council members attended the Rights Rally
Residential Council Met Monthly (except summer break) Over the past 6 months the Residential Council achieved the following: Held a Movie Night fundraiser which raised $230 for “Convoy of Hope,” a non-profit organization which provides disaster relief as well as children’s feeding initiatives and community outreach. The Council enjoyed Empowerment trainings on topics that included: Internet Safety, Relationships (Pam Boyle), Fire Safety (George Pitts), Choking Prevention, PHP / Care Coordination (Chris O’Connor). The Council had a toy drive for the children of Cap-Haitian, Haiti. On June 13, Council members enjoyed the annual COMPASS appreciation dinner at which the Council was recognized for its achievements over the year.
Residential Council Movie Fundraiser The Residential Council is proud to announce that the October movie fundraiser was a big success, raising $230 for “Convoy of Hope.” The movie was "The Secret Life of Pets.” This charity was chosen specifically by the Residential Council to lend a helping hand and offer disaster relief to those communities hit hard by the recent natural disasters in Texas, Florida, California & Puerto Rico. A big "Thank You" to all those who attended and helped make this event a huge success.
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AHRC Nassau COUNCILS Community Hub Site Council—Met Monthly (except summer break) The Community Hub Site (CHS) council met in September after a two month summer hiatus and went right to work. They continued with their plan to advocate and be more involved with the Be Fair To Direct Care Campaign. The council helped organize DSP Celebration Week with letters and notes and took pictures with their staff. Vice President Katie Keenan of the CHS North attended the Statewide SANYS (Self-Advocacy Association of New York State) Conference in September and accepted the award for The Community Hub Site Council which was selected as the #1 Council in New York State 2017. On September 26th, a party was held in Plainview to celebrate this honor. In October Council members participated in the Long Island Region SANYS conference. Council members participated in the Rights Rally that was held in Brookville on October 26 th. Board member, Tom Moore, was a very motivational Keynote speaker. A contest was held to name the new store at the Hicksville Hub Site. The Look Nook was closed and a new and exciting retail space will be opening soon. The One Stop Gift Shop will be making its debut in early spring. Council members participated in a Karaoke Halloween party, held at Levittown Hall in Hicksville. On November 14th, a new event, “Name That Tune” was held Hicksville’s Levittown Hall. The event was co-sponsored by the Mott Street and Hicksville hub sites. More than 100 people attended. Host Patrick Sherrard was on hand as teams competed to show their knowledge of songs in various categories. The Freeport team walked away with the grand prize. The Nursing Department, along with Student nurses from Adelphi University, set up an all-day Health Expo as a hands-on learning experience for Council members and day hab sites. Healthy living, diabetes prevention, nutrition and exercise were discussed. On December 1st the Council held their monthly meeting in Brookville. In attendance were Stanfort Perry, Executive Director, Chris O’Connor and Barry Donowitz, Associate Executive Directors, Karen Tanzillo, Senior Director, and Chris Williams, Director. The Council gave a Poinsettia plant to Patricia-Gill Fisher as a thank you for all her assistance with planning events throughout the year. On December 19th council members joined in with other advocacy groups and met at Nassau Community College in support of the #bfair2DirectCare rally.
Community Hubsite Council
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AHRC Nassau COUNCILS Self-Advocates Rally In NYC
On July 9, 2017 self-advocates joined others from across the state and marched in the Disability Pride Parade. It was a fun and productive day!
Self-Advocates Rally In Albany Under the banner of #bFair2DirectCare, direct care workers, the New Yorkers with disabilities they support and their families joined with current State lawmakers and others on December 6, 2017 to urge Governor Cuomo and the Legislature to speed up a plan to pay these workers a living wage. Advocates from AHRC Nassau were there to ask the Governor and lawmakers to not only keep the promise but accelerate it because DSPs and the people they support desperately need their action. The rally was held in the State Capitol’s “War Room,” where Governor Cuomo in March pledged to a similar overflow crowd of #bFair2DirectCare advocates that he would not sign a State budget that did not include the first phases of living wage funding for direct support professionals (DSPs). Now, faced with a worsening staffing crisis and increased competition for workers from commercial establishments, not-for-profit agencies that provide services that would otherwise have to be provided by State entities are feeling the squeeze between their budgets and the ability to recruit and retain direct support professional staff. “My DSPs matter to me,” said Coleen Mackin, AHRC Nassau Self-Advocate and President of the Self-Advocacy Association of New York State, which represents people with developmental disabilities. “Without them I don’t have the support I need to be successful. My DSPs are my family and have helped me through hard times. Coleen stated “It is sad that many DSPs find it hard to support their own families. I stand with them to say that they deserve, and need, a living wage.” 11
EMPOWERMENT The Self Advocacy Association of NYS (SANYS) - State Conference The Self Advocacy Association 2017 State Conference, titled “Our Voices Count: Nothing About Us Without Us!” was held September 7–9, 2017 in Albany. Over 20 Advocates attended from AHRC Nassau. The State Self-Advocacy Conference is a great opportunity to meet and network with selfadvocates across the state. People learned about major issues of the day and the importance of speaking up for themselves and others. With so many changes going on, mini forums such as Supported Decision Making, Empowerment, and Self Determination assisted people with understanding their choices. Coleen Mackin and Jessica Campbell were once again leaders at the conference. Both shared their inspiration and tips for navigating self directed services.
The Self Advocacy Association of NYS (SANYS) The Long Island Regional SANYS conference took place on October 30, 2017 at the Melville Marriott and over 40 advocates from AHRC attended. The mission was “Be the change you wish to see in the world.” -Ghandi. The theme was, “Preserving our Advocacy in Challenging Times.” There were many sessions offered and also the opportunity to meet self-advocacy leaders who shared thirty years of self advocacy history. Supported Decision making was a hot topic for many in addition to the HCBS waiver and important policies impacting people with disabilities. It was a fun and educational day.
Advocacy Table at Walk a Thon At last year’s AHRC Walk, QA Advocates/Trainers once again set up an advocacy table to share various advocacy information. The information consisted of rights packets, new home and community based waiver information, person-centered information, meeting schedules and much more. The QA Trainers also shared with others their experience with advocacy and how to get more involved.
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EMPOWERMENT Dignity of Risk by Lisa Moosmueller Maintenance staff member, Ron P., is a fantastic employee and a person who exemplifies inclusion, active engagement and an overall respect for the people we support every time he enters the building. This month, we are learning about the Dignity of Risk and I want to share with you how Ron was a great example of this right. Last week, he was at the hub site to put together chairs. He came to me and asked if it would be ok if volunteer, Douglas Walcott, learned to use the electric screw gun as he was showing an interest. I spoke with Douglas who confirmed that he did in fact want to learn to put together the chairs. I have to admit that I was a bit nervous, but Ron was wonderful. He was so patient and thorough with Douglas. In the end, 7 chairs were put together, 5 done by Ron and Douglas, and the last 2 done by Douglas with minimal assistance. I wish you could have seen how proud Douglas was of himself. He knows exactly which 2 chairs he put together by himself and he loves showing them off to everyone. I want to thank Ron P. for providing such a great opportunity for Douglas. He is the best maintenance employee we have ever had and an outstanding advocate for the people we support.
Women's Enrichment Weekend By Pamela Boyle On a beautiful weekend in September, twelve women “of a certain age” and four staff traveled north from Long Island to the beautiful serenity of Camp Loyaltown in the Catskill Mountains. This group of kindred spirits came together for a much anticipated Women’s Enrichment Weekend. It was a weekend filled with talking about life and aging and learning about each other. There were discussions about health and self-care, mindfulness, breathing and positive self-talk. There was music: The Beatles, CSNY, James Taylor and hits from the 50s and 60s. The tunes brought broad smiles as we remembered the words to soundtracks of our lives and sang along. We watched movies and shared some laughs. We made art and it was beautiful. There was a blazing campfire, which included muchrequested s'mores. Around the fire we talked about change, how scary it can be and how inevitable it is. We practiced really listening to each other, a seemingly simple thing to do but something that is, if it is done well, actually pretty difficult. We walked on the camp paths. We shared meals around the large dinner table. Sitting in the warm September sun, we enjoyed simply being. We bonded in a way that happens when people take time to celebrate what really matters in this life: friendship and human connection. 13
Valued Outcome AHRC Nassau’s annual Rights Rally was held On October 26, 2017. Tom Moore, Board Member, was the keynote speaker and Jonathan Drexler, supported by Citizens Options Unlimited, was the Master of Ceremonies. The FREE Singers performed at the inspirational the event. Many people took the opportunity to speak and share the rights that are most important to them. The rally focused this year on exercising rights responsibly. Jessica Campbell, Field Rep for SANYS, did an exercise on rights. It was an informative, fun and motivating event!
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Personal Outcomes Personal Outcomes: 2017 Update By:
Kevin Wilber, Assistant Director
Thus far in 2017, a total of 372 interviews have been completed. Data represented below encompasses data collected for both AHRC Nassau and Citizens Options Unlimited. When reviewing the data, we have shown progress in many of the 21 indicators when compared to data from 2016. Improvements have been noted in both outcomes and supports. Overall, the people interviewed in 2017 compared to 2016 have made improvements in meeting his/her outcomes in 13 of the 21 quality indicators (see chart below). In addition, the people interviewed in 2017 compared to 2016 feel that the supports they are receiving are being met. In total, improvements have been noted in supports for 17 of the 21 quality indicators (see chart below). Improvements in these areas show a continued commitment by the agency to assist people in realizing their personal goals. Through continued focus on the CQL/POM philosophy, we hope to see continued progress in achieving personal outcomes and agency supports. Data reflecting a decrease in outcomes being met may be attributed to the expansion of residential services for Citizens. Decreases can also be attributed to the education, experience and exposure that the people we support receive on an ongoing basis.
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Valued Outcomes “Your Body- An Owners Manual” By Elizabeth Stillwell st
On November 1 2017 twelve nursing students from Adelphi University, under the leadership of their professor Lesley Cooper, held a very original presentation to help people understand their bodies. This exciting presentation, “Your Body – An Owner’s Guide”, was very successful with more than 50 people in attendance. Attendees were able to learn more about their senses of sight, hearing, smell and taste by participating in tasting, smelling and listening activities. The respiratory system was explained and then explored using bubbles. Stethoscopes were provided for people to listen to their own heartbeat during the cardiac presentation. Other activities helped with learning about hygiene, digestion and skin. This program was so well received that two additional presentations are planned for the Spring 2018. Thank you Adelphi Nurses !
POM/CQL Promotional Day On January 10, 2018 a CQL promotional day was held in Plainview to educate and inspire everyone. Re-accreditation will occur the last week in February. Crossword puzzles, matching games, balloons filled with Basic Assurance questions and educational materials were handed out to over 75 people who attended. The POM poster contest was also judged. Prospect Ave IRA and Oceanside hub site were the winners and each will enjoy a pizza party.
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Valued Outcomes/Personal Outcomes Dare to Dream By Joyce Guarneiri In November of 2016 I had the pleasure of interviewing Vincent Conforti to complete a Personal Outcome Measures interview. Vincent is a pleasant young man who is easy to talk with and has a quick smile and great sense of humor. Vincent shared his passion for competing in power lifting competitions and told me about his rigorous training schedule. Vincent often trains six days a week and has been working with his Personal Trainer, Patrick, at NYC Sports Club in Garden City for the past two and a half years. Vincent has been in several Special Olympic events and has done well. However Vincent was not content with this. Vincent wanted to compete in a different type of competition and this summer he found just the right event. On July 9 th Vincent competed in the “Power Against Violence and Abuse” lifting event. The event was a RPS Revolution Power Lifting competition. The power lifting consisted of Squat, Dead Lifting and Bench Pressing. In the Squat, Vincent lifted 185 lbs. In Dead Lifting, his first lift was 300lbs, his second was 395 lbs. and in his third lift he attempted a 400lbs lift. In Bench Press his first lift was 190 lbs. and his second attempt was 195 lbs. Vincent placed 1st in all 3 categories! Vincent was quite proud of this accomplishment and shared the good news with me while I was visiting Freeport. His hard work and dedication paid off. Vincent is looking forward to his next competition, as well as many more in the future. Great job, Vincent!
My Night Out With Paul McCartney
By Ed Richardson
On September 27th, one of my dreams came true. I was able to see Paul McCartney at Nassau Coliseum. I went with Sue Limiti from Freeport. We went out to dinner at the Olive Garden before the concert and I enjoyed my meal.
We got to the concert early and played a trivia Beatle game while waiting in the car. When it was time to go in, we saw that our seats were way up top, but they were facing the stage so we were happy. Paul came out singing “A Hard Day’s Night” and I knew that it was going to be great. He sang some of his hits with the Beatles, some of his Wings’ songs and then some of his solo songs. Paul talked to the audience about what inspired him to write some of his songs and shared his experiences with fellow musicians, such as Jimi Hendrix and Mick Jagger. He did a tribute to John Lennon and George Harrison, which was very touching. Paul interacted with the audience and let a gentleman propose to his girlfriend on stage. It was an amazing night that I will never forget. He closed the concert with my favorite song, “Golden Slumbers.” I had a really great time and hope to see him again in the future!
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VALUED OUTCOMES Clocks Hub Site joins the COMPASS Meeting in November 2017 Volunteers from the Clocks Blvd Hub Site joined November’s COMPASS meeting as they had a special request. Many want to partake in a raffle that would benefit one of their friends who has been trying to get back to the basketball court, but does not have the proper wheelchair to do it. It was explained at the meeting that personal allowance could not be used per state personal allowance standards. Furthermore, in the past, when people did participate in raffles, it was not clear that everyone understood the process and at times people misunderstood that only one person would receive the prize. These advocates remained and participated in the COMPASS meeting and provided feedback throughout. I do not think we have heard the last of the raffle issue.
“Painting his Own Room” What an amazing job Andy and his new friends did painting his bedroom! With help from painters Alex and Benny, Andy was able to select paint, prepare the supplies and paint his room. As shown in the pictures, Andy was very happy with the results and is extremely proud of his work. Andy said he really enjoyed painting his room but was tired after it was done. A sincere thanks to the painting crew for going above and beyond and joining in to get the job done.
Lynbrook High School Visits Lynbrook Students from Lynbrook High School came to visit the Lynbrook hub site on October 19, 2017. The hub site volunteers were in the middle of cooking and preparing a meal. They stopped to speak with the teens about what they do each day, both in the hub site and the community. They spoke about “Meals On Wheels,” delivering hot meals to the senior citizens, as well as helping at the local soup kitchen to serve lunch to the homeless. The volunteers took the teens on a tour of the hub site and shared some photos they took while on community jobs, including selling sweets and treats at Plainview. The teens had many questions that the volunteers were happy to answer. It was a nice visit and the volunteers invited them back for lunch one day.
“Friendsgiving”
“Friendsgiving” is now an annual tradition. Each year, Richard Bruno hosts a “Friendsgiving” and cooks a complete Turkey dinner for his friends.
Richard hosted the celebration at Plainview this year to have more space and make it easier for all his friends to attend. After cooking the day away, Richard’s efforts paid off and all enjoyed his yummy dinner. 18
VALUED OUTCOMES Family Questionnaire Results 2017 The family questionnaire is a vital component of AHRC Nassau’s COMPASS Management Plan. This year a paper version of the questionnaire was sent due to the low response received last year when it was completed electronically. The response rate for 2017 is 30.7% in comparison to 20.5% in 2016 and 38% in 2015. The questionnaire is sent to all families to obtain their feedback, assess level of satisfaction and improve services. The 2017 agency wide results are below. A trend is defined as a score of 89% or lower. There are no agency wide trends or individual program trends for 2017. These are outstanding results which reflect the excellent services AHRC Nassau provides.
AHRC NASSAU 2017 OVERALL AVERAGE SCORES PER PROGRAM Negative Responses Positive Responses 120 98.6
100
98.1
97.1
98.1
97.5
80 60 40 20 1.4
2.9
1.9
1.9
2.5
0 CLS
Comm. Hab
Comm. Hub Site
Freeport Site Based Pre-Voc
Freeport SEMP
House and Family Meetings by Deanna Allen Throughout the holiday season, many people hosted parties and festivities at their home with family and friends. House and family meetings, along with holiday parties, continue to be a great time to come together and share information, make plans and just enjoy each other’s company.
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VALUED OUTCOMES DIRECT SUPPORT PROFESSIONAL APPRECIATION BBQ In honor of Direct Support Professional (DSP) week, DSPs were treated to a barbeque, which capped off a week-long celebration of AHRC Nassau’s DSPs. Everyone enjoyed the food and simply being acknowledged for the fantastic work they do supporting men and woman within the agency to live fulfilling lives—great job!
Workforce Development by Jason Persan The 2017 offering of our “Project You” Wellness Program has been active since February of last year and closed on December 31st. We are happy to report that more than seven hundred employees have registered and are actively participating in the program. That number represents an increase of more than three hundred people over our 2016 program. The Project You program focuses on the participant’s health, activities, finances and social engagement. Financial incentives for eligible employees that met designated program requirements were paid out during the second pay period in January. We are working now to develop a new program for 2018 that will offer all of the great benefits of this year with some additional resources to make the program even more user friendly. Tuition Incentive, Reaching Up and The College of Direct Support educational assistance programs continue to be some of our most popular employee benefits. Eligible employees can receive financial assistance towards books, registration and credit costs. The program is a great support for both new and continuing students pursuing a variety of coursework.
For information about one of these great benefits please contact us at jpersan@ahrc.org or lfranzen@ahrc.org. Thank you for your participation.
Family Seminar Series by Michael Cannet The AHRC Family Seminar Series held its third seminar, Positive Behavior Supports for Families, on August 17th in Plainview. We had a great response to the seminar and those who attended enjoyed Glen’s presentation. Many attendees had specific positive behavior support questions for Glen. At the end of the seminar, all attendees stated they enjoyed the seminar and that they felt more informed about positive behavior supports. All who attended gave the family seminar very high ratings in the satisfaction survey. Overall, the seminar was another great success! Last year was another great year as our families were able to benefit from the many different topics covered during the year. Keep an eye out for the 2018 seminar schedule!
As always, we welcome any ideas or suggestions for our family seminars, as well as topics for future seminars. Please send your ideas/suggestions to either Michael Cannet or Leigh Fanuzzi at mcannet@ahrc.org or lfanuzzi@ahrc.org or call 516-293-1111. 20 Thank You!
VALUED OUTCOMES 2017 EMPOWERMENT & FAMILY SEMINARS Empowerment Series February 7, 2018 Community Involvement Freeport, 10:00 a.m. February 9, 2018 Employment Freeport, 11:00 a.m. April 13, 2018 Self-Direction Freeport, 10:00 a.m. April 25, 2018 Rep Payee Plainview, 7:00 p.m. April 25, 2018 Conflict Resolution Plainview, 11:00 a.m. June 6, 2018 Nutrition Freeport, 10:00 a.m. July 11, 2017 Money Management Freeport, 10:00 a.m.
For information or registration:
Family Seminar Series May 15, 2018 Preserving Quality of Life Special Need Trusts & Estate Planning Saundra Gumerove, Esq. June 26, 2018 Benefits & Entitlements and Pre-Needs Assessments Overview Tom Schinkel and Denis Zadorecki July 12, 2018 Introduction to Self-Directed Services Kevin Wilbur August 7, 2018 Positive Behavior Supports for Families Glenn Kaplan, M.A. & Michelle Gladstone MSEd. Date TBD Supported Decision Making/Guardianship Presenter TBD Date TBD Conflict Resolution Psychology Department All seminars are free. 7:00 pm—9:00 pm AHRC Nassau Plainview Center 115 E. Bethpage Road, Plainview, NY 11803 For information or registration:
Empowerment Series by Laura Franzen The Empowerment Series of trainings for the men and women supported by AHRC Nassau has concluded for 2017. We were excited to present many new topics this year such as “What My Rights Really Mean” and “Treating My Body Right.” The Empowerment Series is geared toward supporting people in obtaining their valued outcomes through working together and learning new skills. We look forward to our upcoming schedule for 2018 and we greatly appreciate all of the feedback that the Councils have provided as we work together to develop trainings that will empower people to live independent lives. For any information about the program, please contact Laura Franzen @ 293-1111 extension 5621.
Employee Diversity Luncheon at Plainview held on November 15, 2017
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The COMPASS Committee & The Quality Improvement Process AHRC Nassau: 2017 QUALITY ENHANCEMENTS In 2017, there were 32 quality improvement goals/enhancements with 65%of the goals/objectives met. Outstanding! RIGHTS People feeling supported to exercise their rights increased in 2017 based on data from Personal Outcome Interviews. A wallet-size card which summarized rights was made and distributed to all. Tangible items that portray rights were developed throughout the year such as key chains, “do not disturb” signs, etc. to further educate people about their rights. Two people participated in a “My World, My Day” event. Both people completed the training and developed goals for what they desire in their life. A Rights Rally was held to inspire and educate people about their rights. DIGNITY & RESPECT Progress was noted regarding people having the privacy they desire. Specifically, 286 out of 311 people surveyed (91.9%) indicated they were satisfied and have the privacy desire. Individual privacy plans were developed for anyone who wanted additional privacy. Enhanced training was added to the monthly rights curriculums on the grievance process. NATURAL SUPPORTS There was an increase in natural support Personal Outcome Measures data. People who are connected to natural supports increased 12% from 63.48 % in 2015 to 75.24% in 2016 . People who have intimate relationships increased 2% from 68.97% in 2015 to 70.93% in 2016. People who have friends increased 3% from 64.18% in 2015 to 67.79% in 2016. People’s satisfaction with their natural supports slightly reduced, but remained in the 90th percentile, based on the individual satisfaction questionnaire scores; and family satisfaction slightly increased based on the Family Questionnaire. All scores for satisfaction levels remained in the 90th percentile. Amazing! Natural supports information, and the importance of maintaining them, was added to the material provided people and their families prior to moving to their new home. Activities were hosted throughout the year (book club, game night, etc.) to support people in connecting with others who share common interests and in establishing new friendships. Natural support month was celebrated in November, which highlights the importance of natural supports. Training also continued on natural supports at orientation. This training was presented by a parent. FREEDOM FROM ABUSE, NEGLECT & EXPLOITATION 2016 Trend Analysis report found a 29% decrease overall in substantiated allegations of neglect occurring in an AHRC vehicle. Thus the goal for 2016 met for AHRC. A trend in choking (14 incidents) was identified in the first half of 2016 & continued throughout the year. The trend was brought to the Quality Improvement Committee and the Councils were asked for input on how to alert their peers about safe eating guidelines. As a result, a large decrease in choking is noted with to date this year 2 choking incidents. A Nutritionist attended Council meetings to discuss choking prevention. An on-going analysis of injuries of unknown origin identified eight minor injuries involving appendages (more than half were feet or toes), with the trend addressed and reduced. BEST POSSIBLE HEALTH Seventeen people were supported to create a health care proxy. Forty two people enhanced their health and had fun participating in Dance Fit fitness program! A “Healing at Home” initiative started and supported nine people recuperating at home versus at a rehabilitation center. A database to track and analyze medication incident reports was developed. It is hoped that it will assist in identifying trends and decreasing medication errors. POSITIVE SERVICES & SUPPORTS Eight people supported by AHRC had one or more restrictions removed from their behavior support plan and 7 people had one or more restrictions faded. The development of a registered behavior technician training program was initiated. CONTINUITY AND SECURITY The goal to increase satisfaction in people choosing where they want to live increased from 25.50% in 2016 compared to 57.95% in 2017, based on Personal Outcome Measures data. Satisfaction in choosing where people want to work increased from 25.50% in 2016 compared to 53.91% in 2017, a 28.41% increase; and people’s satisfaction with continuity and security increased from 64.87% in 2016 compared to 70.08% in 2017, a 5.21% increase. An independent fiscal audit for 2016 revealed no negative findings and noted the agency to be fiscally sound. STAFF RESOURCES AND SUPPORTS The retention rate for AHRC increased from 78% in 2016 to 87% in 2017 (9% increase). PERSONAL OUTCOME MEASURES People choosing personal goals increased from 11.54% in 2016 to 31.83% in 2017 based on POM interviews.
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QUALITY ENHANCEMENT & SELF-SURVEYS Regulatory Affairs
By Eric Rosen During calendar year 2017, the Regulatory Affairs Department completed one-hundred fifty five (155)) surveys. Surveys were completed for one hundred percent of the Agency’s sites/programs during this calendar year. These included surveys of the agency’s small/large IRAs, day habilitation programs, the community habilitation program, the prevocational program, the supported employment program and the respite program. Multiple exceptional practices were observed during the aforementioned surveys; including but not limited to people being very active in their community, satisfaction with service/supports provided and the promotion of independence. Congratulations to all at the below sites/programs; as each received the designation of “exceptional survey” in 2017.
Exceptional Survey Awards Go To!…... EXCEPTIONAL SURVEY AWARDS CONGRATULATIONS! Bellmore Hubsite Glen St. Hubsite Bethpage Hubsite Stewart Ave, IRA Westbury Livingston, IRA Westbury
Bellmore Hub Site
Stuart Ave, Westbury
Livingston St. Westbury
Bethpage Hub Site
Glen St. Hub Site 23
AHRC Nassau 189 Wheatley Road Brookville (Glen Head) New York, 11545
Non-Profit Organization U.S. Postage PAID Permit No. 11 Glen Head, NY Please Rush Dated Material
TO:
Good to Know Are you aware that you must have access to lock your front and back door? Yes, you do!
Do You Know About Care Coordination? Care Coordination is coming July 1, 2018. Care Coordination will combine services for people with developmental disabilities with health, wellness and behavioral health services to create a single, integrated and individualized Life Plan— replacing the ISP. Care Coordination Update Meetings February 13 & 22 | 7-8 pm 115 East Bethpage Rd. Plainview, NY 11803 RSVP: 516.626.1075 ext. 1166 24