1 Complete the IBD Patient Survey

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Go with the flow

Crohn’s and Colitis care only improves when we listen to the people who experience it first-hand. People like you.

The 2023 IBD Patient Survey is your opportunity to tell us about diagnosis, treatment and care.

This year, the survey responses will be collected by the IBD Registry, a partner in IBD UK –an alliance of 17 organisations chaired by Crohn’s & Colitis UK.

IBD UK is dedicated to ensuring that everyone with IBD receives safe, consistent, high-quality, personalised care.

The last IBD Patient Survey took place in 2019, before the pandemic. Here we look back at how you helped to make a difference to the lives of people with Crohn’s and Colitis. Thank you to everyone who contributed their experiences and views.

1. Your voice at the centre of care

Over 10,000 people shared their experiences in the last patient survey. Your voices provided a unique picture of IBD care across the UK.

2. Influencing change

The IBD UK report set out clear recommendations to transform care, giving vital recognition of the specific needs of the over 500,000 people living with IBD across the UK.

3. Early diagnosis

You told us that early diagnosis would have made the biggest difference to your life. The result is our early diagnosis campaign, which so far has helped 60,000 people to get checked for Crohn’s and Colitis. We’re working with policy-makers and healthcare professionals to ensure that early diagnosis is high on the agenda.

4. Improving local services

Your feedback, together with the team’s own assessment of their service, showed what was working well and what needed to improve.

5. Increasing visibility

Stigma means people often suffer in silence. We used the evidence of your experiences to raise awareness of the issues you face with MPs, health services and the media.

WE WANT TO HEAR FROM YOU! Tell us about your care and treatment by completing the 2023 IBD Patient Survey. Visit ibduk.org/patient-survey

Lace up your shoes and choose to walk a 5km, 10km, half marathon or marathon distance during the month of June. Take on your own challenge, your own way, in your local area. Do it solo or with friends; whichever way you choose, you’ll be supporting and raising vital funds for all those affected by Crohn’s and Colitis.

Registration is FREE and you’ll receive an exclusive My WALK IT T-shirt to wear with pride during your challenge. You’ll also have the chance to unlock amazing fundraising rewards along the way!

We can’t wait to see where your walk will take you!

REGISTER NOW crohnsandcolitis.org. uk/challenges/ my-walk-it